Is this the normal process?
Hey Guys, I posted recently that I was diagnosed last Friday with triple neg breast ca stage three. All this week I’ve had the CT scans, bone scans, tomo the PET scan then Friday I’ll meet up again...
Forum Discussion
Hi @Nix, I had genetic testing and had to wait 4 weeks for the result. I was referred by my oncologist to a geneticist. I had the appointment via video call as we were in lockdown at that time. The specialist went through my pathology and my family history, included my parents and their siblings and their children. I went prepared to that appointment with a cancer family tree which included the types of cancer and the ages of people who died from it. He was particularly interested in anyone with ovarian cancer.
I only had one cousin with ovarian cancer and they passed at age 56. I also had a cousin who had breast cancer and an aunt with cancer of the cervix. I had another cousin with liver cancer and another with bowel cancer and lots of relatives with various skin cancers.
He recommended i get tested because of the ovarian cancer in the family. He also wanted me to get tested because I had 3 malignant melanoma which were successfully removed but there is a link with breast cancer and melanoma in brca2. He did say that there was only a very small number of people with the mutated gene of Brca 1 or 2. He said most breast cancer has nothing to do with genes.
I had to order the test online as it came from America. He had approved it. It arrived by courier it is a saliva test. I gave the saliva, called the courier to collect it and waited 4 weeks I received a negative result 4 weeks later via an online report and a letter from my dr.
Here in Brisbane there is alot of work going into genetic testing and using the gene results to target the breast cancer treatment. I guess your team of medical people are looking at this for your treatment. When you have your appointment go prepared with your family cancer history. Write down any questions you have for them. Take a support person if you need to as well.
Good luck with it. Sending you a hug x
I only had one cousin with ovarian cancer and they passed at age 56. I also had a cousin who had breast cancer and an aunt with cancer of the cervix. I had another cousin with liver cancer and another with bowel cancer and lots of relatives with various skin cancers.
He recommended i get tested because of the ovarian cancer in the family. He also wanted me to get tested because I had 3 malignant melanoma which were successfully removed but there is a link with breast cancer and melanoma in brca2. He did say that there was only a very small number of people with the mutated gene of Brca 1 or 2. He said most breast cancer has nothing to do with genes.
I had to order the test online as it came from America. He had approved it. It arrived by courier it is a saliva test. I gave the saliva, called the courier to collect it and waited 4 weeks I received a negative result 4 weeks later via an online report and a letter from my dr.
Here in Brisbane there is alot of work going into genetic testing and using the gene results to target the breast cancer treatment. I guess your team of medical people are looking at this for your treatment. When you have your appointment go prepared with your family cancer history. Write down any questions you have for them. Take a support person if you need to as well.
Good luck with it. Sending you a hug x