Forum Discussion
Collette
1 month agoMember
Fear of the unknown
I have recently been diagnosed last week l had a lumpectomy and nodes removed for further examination and, now l am anxious fearful about the follow up appointment this week. I really would like to ...
arpie
1 month agoMember
So sorry to see you joining us here Collette Getting a BC diagnosis really mucks with your brain even more than your body, I reckon xx Feeling anxious (even angry!) is totally normal - but If you get sad/frustrated with anything - give the Help team a call on 1800 500 258 (Mon-Fri 9-5) for a confidential chat.
Also, consider listening to Charlotte Tottman's podcasts. She is a Breast Cancer Onco-Psychologist who was diagnosed 5+ years ago and has 'lived experience' of what we've all gone thru - she had double mastectomy, choosing to remain flat. Her reaction to her own diagnosis (and ongoing treatment) was markedly different to what she'd been advising her clients over the years! She had the same fears & confusion with 'the process' and is well worth listening to!
She is very easy to listen to. She has 2 x 'seasons' ... this is the first from the first series.
https://soundcloud.com/bcna/what-you-dont-know-until-you-do-with-dr-charlotte-tottman-episode-1-d-day-diagnosis-shock
Also, check out this post - as there is a LOT of info in it about the general forum. We chat about our gardens, our sports, art & craft & many other topics xx Jump onto any thread that might interest you! :)
A big welcome to all New Online Network Members ..... | BCNA Online Network
Try not to get ahead of yourself with the 'what ifs' (particularly whilst you are waiting for your results) ... as they just may never happen! And please STAY AWAY from Dr Google too!! So much of the stuff on there is not relevant to your own diagnosis & may be years out of date!! Trust your Medical team and your Breast Care Nurse for your immediate, reliable information (or us, as we have a 'lived experience' of it all !!)
Definitely take a trusted friend or family member with you to all your early appointments - and also consider recording your appointments - so that you can go over it again later on, as it is almost impossible to remember everything that is said at the time xx
In the mean time, keep yourself as busy as you can, doing things you love doing (being mindful of any physical restrictions of your recovery from your surgery) is one way of stopping the brain from going off on wild tangents! xx.
Take care & all the best for your recovery & results xx
- Collette1 month agoMember
Thank you for your reassurance l have listen to the podcasts by charlotte tottman, it was so informative, listening to her story is very honest and easy to listen to. I shall continue listening to the other podcasts. I have taken on board about taking a family member with me for my appointment as, my head is still bit fuzzy with all the new changes l am experiencing and a great support as well. Going off on a wild tangent is great very informative 😃 l have been so busy l have worn myself out but l have a spotless house now. Take care Tku 🥰