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Loobylou
7 years agoMember
Completely overwhelmed
so, found lump a week ago, had biopsy 3 days later after mammogram and ultrasound. Had to wait to today for results. Thought was going to have lumpectomy and radiation but today told it's a triple negative high grade tumour so seeing oncologist next week to talk about chemo.
feel very under researched! I had spent the intervening days looking at all the lumpectomy reading and therapy, now feel like I have hit by a truck...
my main worry (after the cancer and my kids) is costs, I do not understand how the health system works for cancer. My consultant has sent me to a private oncologist, is this normal? I have bupa (who, when I thought it was lumpectomy said they cover costs) but I don't know what they pay. I am having CT and bone scans on Monday, and I know there is a rebate on that. I am just so confused, just wanted to talk, thanks X
feel very under researched! I had spent the intervening days looking at all the lumpectomy reading and therapy, now feel like I have hit by a truck...
my main worry (after the cancer and my kids) is costs, I do not understand how the health system works for cancer. My consultant has sent me to a private oncologist, is this normal? I have bupa (who, when I thought it was lumpectomy said they cover costs) but I don't know what they pay. I am having CT and bone scans on Monday, and I know there is a rebate on that. I am just so confused, just wanted to talk, thanks X
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93 Replies
- LoobylouMemberSo, bone and ct scan clear :)
just the one lump, so AC chemo starts next week for 4 weeks then taxol for 12 weeks.
Had echogram today and bloods.
Feeling remarkably positive...Sign in to react to this post - LoobylouMemberSorry, AC for 4 Rounds - 1 every 2 weeksSign in to react to this post
- kmakmMemberHooray! And phew! That is excellent to hear.
@JJ70 had dose dense AC. She might be able to advise you broadly what to exppect. Remembering that beyond a few similarities, the side effects can be wildly varied.
Onwards and upwards! K xoxSign in to react to this post - JJ70MemberHi @Loobylou......if you have any questions let me know..I did 4x Dose Dense Ac then 4x Dose Dense Paclitaxel from Dec 2107-March last year.Sign in to react to this post
- LoobylouMember@jj70 thank you. Yes will message you if anything comes up, still processing it all at the moment and what to get done in the next week before everything changes...Sign in to react to this post
- ZoffielMemberCongrats on the scans @Loobylou That is truly excellent news. MxxSign in to react to this post
- kezmuscMemberGreat news @Loobylou. xoxoxoSign in to react to this post
- SoldierCrabMemberAwesome News LoobylouSign in to react to this post
- tigerbethMemberGreat news ! @Loobylou you'll smash this with the help of everyone!
i can't help with chemo stuff but anything else please don't hesitate to contact me
hugs xxSign in to react to this post - JJ70MemberOne recommendation @Loobylou would be to have some pharmaceuticals on hand. AC usually messes with your gut - it goes one way or the other. I had severe constipation for months - if you notice any gut changes, just get on to it quickly. I ended up with an arsenal of things like Actilax, Coloxyl with Senna, Movicol etc. Some people get diarrhea, though so just be vigilant and don't wait....once you notice which way you're going - take action! Ask your oncologist for advice - if you've got a good one.Sign in to react to this post