Hi @Loobylou. Welcome to the forum. I'm sorry you've found yourself here. I hope you find it as helpful and supportive as I have. It's a great hive mind, and good for a laugh, a vent and a whinge!
It does all move incredibly fast at the beginning, and for many, treatment plans change when pathology comes back.
Everything you're feeling, experiencing and expressing is entirely normal. Everyone here has been there, we get it. So take some deep breaths and slow everything down.
It's very easy to get fast tracked onto the private health treatment conveyor belt. You get to say stop. Do you like your oncologist? You can ask them if they work in the public system, many of them do.
Do not hesitate to say "how much will that cost me?" at every step of the way. If you get an answer you don't like, ask if there's a cheaper way to do it. You can go to your GP tomorrow and ask to be referred into the public system immediately, where you will pay little to nothing for your treatment. You can mix public and private treatment. Many get treated privately untill radiotherapy, when they go public. Radiotherapy is very expensive in the private system.
The care you receive publicly will be equal to private care. The biggest difference is your choice in personnel. You tend not to get it in the public system. Ie, you may not see the same oncologist each time, depending on how your local hospital/treatment centre is run.
The learning curve when you're diagnosed with breast cancer is a vertical straight line. Fire away with your questions. There's almost always someone here who knows the answers. And if they don't, they know someone who does. There are others here who can speak to your private vs public better than I. Hopefully they'll be along soon!
And you can always call BCNA helpline on 1800 500 258. They're great listeners and fantastic experts on all things BC related.
Hang in there. Big hug, K xox