Good on you if you dont have to have any treatment. be guided by the medical team & the results following surgery. I was like you & agreed with my surgeon to have a lumpectomy over a mastectomy as I thought why take it off if a smaller operation would do the trick. It's a gamble game but i am happy with my decisions & the rad provided me the extra protection without having chemo. All the best & stay positive & strong. love & hugs xx ","board":{"__ref":"Forum:board:dcis"},"conversation":{"__ref":"Conversation:conversation:78813"},"author":{"__typename":"User","login":"Anne65"},"postTime":"2019-08-14T21:20:08.000-07:00","kudosSumWeight":3}},{"__typename":"MessageEdge","cursor":"MjUuM3wyLjF8b3w1fDE0OjAsMzk6MXwz","node":{"__typename":"ForumReplyMessage","uid":78819,"body":"@Pip47 Many ladies on this forum have used Mepitel & I know that Giovanna is a huge advocate of it also. I have a link below which describes it to you. I had my treatment at a private hospital & they used it often. https://store.independenceaustralia.com/mepitel-film-1-7dc7538f41cbee2be86aa2559ade080c.html It is reasonably new & my onc was very much in favour of it. It is like an invisible film that sticks to your body over the radiation area. It is VERY important that the film has no tears or bubbles in it so I had a nurse check me every day before treatment & if needed, performed & nip & tuck to ensure it was sticking directly to my skin. They may replace it entirely if it starts to lift at all but best to leave it in place. It basically reflects the rad beam so it doesnt penetrate your skin. The film stays on you the entire treatment plus around 3 weeks after treatment has finished as that is when the radiation hits it peak, which does seem strange I know. The great thing about mepitel is that you dont use ANY creams throughout the whole process. You can shower normally also but try not to rub vigorously or the film may come off. Yes, you may initially feel like a cryovac chicken but you do get used to it. My 3 y.o. great niece called it \"my special skin\" as she knew it was protecting me! Its so important that if you feel any bubbles in the film, that you let the nurse know as bubbling actually makes it worse. The rad beam actually reflects back into your skin. The nurse at the hospital checked me every day & they dont mind as that is there job. You may as well see them every day to ensure it is OK otherwise it defeats the purpose. I finished 3 weeks of treatment with no redness, burning or peeling. You wouldnt have even known I had rad treatment. I couldnt believe how good my skin looked, just as it did before. I was very lucky to have been offered this product. I took the film off myself around 3 weeks after it finished & then I just used a Vit e non-scented moisturiser over my skin just because it has been wrapped up in film for 5 weeks. You need to use fragrance free & non scented bodywash using the treatment also just to minimise any reaction. I do hope you can get hold of it or ask for it if they can get it in. i know it can be different in private & public hospitals. I am a huge supporter of this product if you maintain it well. I have seen pics of rad burns that really shocked me so i know I have been lucky.Good luck & let us know how you get on. Love & hugs xx
","board":{"__ref":"Forum:board:dcis"},"conversation":{"__ref":"Conversation:conversation:78813"},"author":{"__typename":"User","login":"Anne65"},"postTime":"2019-08-15T20:55:02.000-07:00","kudosSumWeight":3}},{"__typename":"MessageEdge","cursor":"MjUuM3wyLjF8b3w1fDE0OjAsMzk6MXw0","node":{"__typename":"ForumReplyMessage","uid":78815,"body":"Thanks for your post. I'm waiting for a full diagnosis and plan so not quite up to where you are. Good luck with your surgery and thanks for sharing the choice that you made. ","board":{"__ref":"Forum:board:dcis"},"conversation":{"__ref":"Conversation:conversation:78813"},"author":{"__typename":"User","login":"Felicia29"},"postTime":"2019-08-14T20:36:18.000-07:00","kudosSumWeight":2}},{"__typename":"MessageEdge","cursor":"MjUuM3wyLjF8b3w1fDE0OjAsMzk6MXw1","node":{"__typename":"ForumReplyMessage","uid":78818,"body":"@pip47 Mepitel is a film that goes on the skin to be irradiated. It affects how the radiation enters the skin (somehow - can't quite remember - by changing the depth, I think). It doesn't make the treatment any less but does protect the skin a lot. I was treated in a public hospital and had to ask for the film. No problem in getting it but it wasn't offered up front. There was a couple of days when I had a slight gap between two pieces. In that short time, I got a dark tan line so I know it did do a lot to protect me. It stayed on all week during treatment and then I could take it off for the weekend and moisturise the area. I had no real problems with my skin except for a red tender spot 3 weeks after treatment 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The information available on the Breast Cancer Network Australia website is not medical advice and is provided for information purposes only. It should not be viewed as a replacement for a consultation with a qualified medical professional. Our website is designed to offer information and support to the general public. Be aware that we do not provide any medical advice, and for medical advice we recommend you speak to a qualified medical professional or doctor.
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w...","replies":{"__typename":"MessageConnection","edges":[{"__typename":"MessageEdge","cursor":"MjUuM3wyLjF8aXwxMHwzOToxfGludCw3ODgxNCw3ODgxNA","node":{"__ref":"ForumReplyMessage:message:78814"}},{"__typename":"MessageEdge","cursor":"MjUuM3wyLjF8aXwxMHwzOToxfGludCw3ODgxNCw3ODgxNQ","node":{"__ref":"ForumReplyMessage:message:78815"}},{"__typename":"MessageEdge","cursor":"MjUuM3wyLjF8aXwxMHwzOToxfGludCw3ODgxNCw3ODgxNg","node":{"__ref":"ForumReplyMessage:message:78816"}},{"__typename":"MessageEdge","cursor":"MjUuM3wyLjF8aXwxMHwzOToxfGludCw3ODgxNCw3ODgxNw","node":{"__ref":"ForumReplyMessage:message:78817"}},{"__typename":"MessageEdge","cursor":"MjUuM3wyLjF8aXwxMHwzOToxfGludCw3ODgxNCw3ODgxOA","node":{"__ref":"ForumReplyMessage:message:78818"}},{"__typename":"MessageEdge","cursor":"MjUuM3wyLjF8aXwxMHwzOToxfGludCw3ODgxNCw3ODgxOQ","node":{"__ref":"ForumReplyMessage:message:78819"}},{"__typename":"MessageEdge","cursor":"MjUuM3wyLjF8aXwxMHwzOToxfGludCw3ODgxNCw3ODgyMA","node":{"__ref":"ForumReplyMessage:message:78820"}},{"__typename":"MessageEdge","cursor":"MjUuM3wyLjF8aXwxMHwzOToxfGludCw3ODgxNCw3ODgyMQ","node":{"__ref":"ForumReplyMessage:message:78821"}},{"__typename":"MessageEdge","cursor":"MjUuM3wyLjF8aXwxMHwzOToxfGludCw3ODgxNCw3ODgyMg","node":{"__ref":"ForumReplyMessage:message:78822"}},{"__typename":"MessageEdge","cursor":"MjUuM3wyLjF8aXwxMHwzOToxfGludCw3ODgxNCw3ODgyMw","node":{"__ref":"ForumReplyMessage:message:78823"}}],"pageInfo":{"__typename":"PageInfo","hasNextPage":true,"endCursor":"MjUuM3wyLjF8aXwxMHwzOToxfGludCw3ODgxNCw3ODgyMw","hasPreviousPage":false,"startCursor":null}},"customFields":[]},"Conversation:conversation:78813":{"__typename":"Conversation","id":"conversation:78813","solved":false,"topic":{"__ref":"ForumTopicMessage:message:78813"},"lastPostingActivityTime":"2019-09-11T19:19:50.000-07:00","lastPostTime":"2019-09-11T19:19:50.000-07:00","unreadReplyCount":25,"isSubscribed":false},"ModerationData:moderation_data:78813":{"__typename":"ModerationData","id":"moderation_data:78813","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"Revision:revision:78813_1":{"__typename":"Revision","id":"revision:78813_1","lastEditTime":"2019-08-14T16:36:08.000-07:00"},"CachedAsset:theme:customTheme1-1744905822807":{"__typename":"CachedAsset","id":"theme:customTheme1-1744905822807","value":{"id":"customTheme1","animation":{"fast":"150ms","normal":"250ms","slow":"500ms","slowest":"750ms","function":"cubic-bezier(0.07, 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radiotherapy","conversation":{"__ref":"Conversation:conversation:73864"},"id":"message:73864","revisionNum":1,"uid":73864,"depth":0,"board":{"__ref":"Forum:board:dcis"},"author":{"__ref":"User:user:4592"},"metrics":{"__typename":"MessageMetrics","views":273},"postTime":"2024-10-08T00:22:06.000-07:00","lastPublishTime":"2024-10-08T00:22:06.000-07:00","body@stripHtml({\"removeProcessingText\":true,\"removeSpoilerMarkup\":true,\"removeTocMarkup\":true,\"truncateLength\":200})":"Hi, are there any community members here that have avoided radiotherapy and then regretted it later? or vice versa. 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For annual monitoring (e.g. after a diagnosis of DCIS), has anyone been offered the choice between a mammogram with contrast and an MRI with contras...","body@stripHtml({\"removeProcessingText\":true,\"removeSpoilerMarkup\":true,\"removeTocMarkup\":true,\"truncateLength\":200})@stringLength":"203","kudosSumWeight":0,"repliesCount":6,"readOnly":false,"tags":{"__typename":"TagConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[{"__typename":"TagEdge","node":{"__typename":"Tag","id":"tag:dcis","text":"dcis","time":"2025-03-25T05:01:41.715-07:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}},{"__typename":"TagEdge","node":{"__typename":"Tag","id":"tag:screening","text":"screening","time":"2025-03-25T05:02:25.042-07:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}}]},"timeToRead":1,"images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"videos":{"__typename":"VideoConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}}},"Conversation:conversation:262795":{"__typename":"Conversation","id":"conversation:262795","topic":{"__typename":"ForumTopicMessage","uid":262795},"lastPostingActivityTime":"2025-04-03T13:28:27.412-07:00","solved":false},"User:user:23679":{"__typename":"User","uid":23679,"login":"Posi","registrationData":{"__typename":"RegistrationData","status":null},"deleted":false,"id":"user:23679"},"ForumTopicMessage:message:262795":{"__typename":"ForumTopicMessage","subject":"Hello Fellow Peeps","conversation":{"__ref":"Conversation:conversation:262795"},"id":"message:262795","revisionNum":1,"uid":262795,"depth":0,"board":{"__ref":"Forum:board:dcis"},"author":{"__ref":"User:user:23679"},"metrics":{"__typename":"MessageMetrics","views":190},"postTime":"2025-04-01T19:09:38.049-07:00","lastPublishTime":"2025-04-01T19:09:38.049-07:00","body@stripHtml({\"removeProcessingText\":true,\"removeSpoilerMarkup\":true,\"removeTocMarkup\":true,\"truncateLength\":200})":" Hello - Lovely to meet you all! Didn't expect there would be so many of you! Didn't expect to be here - but here we are! Thanks to BreastSceen Qld and team of pathologists - they found DCIS G#3....","body@stripHtml({\"removeProcessingText\":true,\"removeSpoilerMarkup\":true,\"removeTocMarkup\":true,\"truncateLength\":200})@stringLength":"223","kudosSumWeight":0,"repliesCount":8,"readOnly":false,"tags":{"__typename":"TagConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[{"__typename":"TagEdge","node":{"__typename":"Tag","id":"tag:treatment decisions","text":"treatment decisions","time":"2025-03-30T05:26:07.300-07:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}}]},"timeToRead":1,"images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"videos":{"__typename":"VideoConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}}},"Conversation:conversation:262770":{"__typename":"Conversation","id":"conversation:262770","topic":{"__typename":"ForumTopicMessage","uid":262770},"lastPostingActivityTime":"2025-04-01T14:05:53.764-07:00","solved":false},"ForumTopicMessage:message:262770":{"__typename":"ForumTopicMessage","subject":"Tamoxifen - 5mg - side effects?","conversation":{"__ref":"Conversation:conversation:262770"},"id":"message:262770","revisionNum":1,"uid":262770,"depth":0,"board":{"__ref":"Forum:board:dcis"},"author":{"__ref":"User:user:4592"},"metrics":{"__typename":"MessageMetrics","views":76},"postTime":"2025-03-31T17:07:20.231-07:00","lastPublishTime":"2025-03-31T17:07:20.231-07:00","body@stripHtml({\"removeProcessingText\":true,\"removeSpoilerMarkup\":true,\"removeTocMarkup\":true,\"truncateLength\":200})":" Hello, I am considering whether to take Tamoxifen, can I please ask if anyone has experienced side affects from the low dose - 5mg per day? Thanks ","body@stripHtml({\"removeProcessingText\":true,\"removeSpoilerMarkup\":true,\"removeTocMarkup\":true,\"truncateLength\":200})@stringLength":"154","kudosSumWeight":0,"repliesCount":2,"readOnly":false,"tags":{"__typename":"TagConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[{"__typename":"TagEdge","node":{"__typename":"Tag","id":"tag:dcis","text":"dcis","time":"2025-03-25T05:01:41.715-07:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}},{"__typename":"TagEdge","node":{"__typename":"Tag","id":"tag:tamoxifen","text":"tamoxifen","time":"2025-03-25T05:01:51.381-07:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}}]},"timeToRead":1,"images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"videos":{"__typename":"VideoConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}}},"Conversation:conversation:80139":{"__typename":"Conversation","id":"conversation:80139","topic":{"__typename":"ForumTopicMessage","uid":80139},"lastPostingActivityTime":"2025-03-27T23:37:46.880-07:00","solved":false},"User:user:5646":{"__typename":"User","uid":5646,"login":"paulinagtzr","registrationData":{"__typename":"RegistrationData","status":null},"deleted":false,"id":"user:5646"},"ForumTopicMessage:message:80139":{"__typename":"ForumTopicMessage","subject":"Newly diagnosed with DCIS - starting the rollecoaster","conversation":{"__ref":"Conversation:conversation:80139"},"id":"message:80139","revisionNum":1,"uid":80139,"depth":0,"board":{"__ref":"Forum:board:dcis"},"author":{"__ref":"User:user:5646"},"metrics":{"__typename":"MessageMetrics","views":247},"postTime":"2025-03-13T15:10:33.000-07:00","lastPublishTime":"2025-03-13T15:10:33.000-07:00","body@stripHtml({\"removeProcessingText\":true,\"removeSpoilerMarkup\":true,\"removeTocMarkup\":true,\"truncateLength\":200})":"Hi all, I live in Geelong. I'm 41. Single mum to a 13yo son, co-parent 50%. I was diagnosed with DCIS estrogen+ on the 14th Feb. Luckily is stage 0, which eases my worries a bit. My mum and siste...","body@stripHtml({\"removeProcessingText\":true,\"removeSpoilerMarkup\":true,\"removeTocMarkup\":true,\"truncateLength\":200})@stringLength":"213","kudosSumWeight":1,"repliesCount":6,"readOnly":false,"tags":{"__typename":"TagConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[{"__typename":"TagEdge","node":{"__typename":"Tag","id":"tag:dcis","text":"dcis","time":"2025-03-25T05:01:41.715-07:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}},{"__typename":"TagEdge","node":{"__typename":"Tag","id":"tag:radiotherapy","text":"radiotherapy","time":"2025-03-25T05:01:39.532-07:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}},{"__typename":"TagEdge","node":{"__typename":"Tag","id":"tag:side-effects","text":"side-effects","time":"2025-03-25T05:01:42.742-07:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}},{"__typename":"TagEdge","node":{"__typename":"Tag","id":"tag:working-through-treatment","text":"working-through-treatment","time":"2025-03-25T05:02:21.661-07:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}}]},"timeToRead":1,"images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"videos":{"__typename":"VideoConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}}},"User:user:21990":{"__typename":"User","id":"user:21990","uid":21990,"login":"Mightystar","biography":null,"registrationData":{"__typename":"RegistrationData","status":null,"registrationTime":"2019-06-28T21:30:02.000-07:00"},"deleted":false,"email":"","avatar":{"__typename":"UserAvatar","url":"https://onlinenetwork.bcna.org.au/legacyfs/online/userpics/303/p02R7CNQ9T6WN.jpeg"},"rank":{"__ref":"Rank:rank:39"},"entityType":"USER","eventPath":"community:nkyiu94732/user:21990"},"ModerationData:moderation_data:78814":{"__typename":"ModerationData","id":"moderation_data:78814","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:78814":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:21990"},"id":"message:78814","revisionNum":1,"uid":78814,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:dcis"},"parent":{"__ref":"ForumTopicMessage:message:78813"},"conversation":{"__ref":"Conversation:conversation:78813"},"subject":"Re: Very Hopeful","moderationData":{"__ref":"ModerationData:moderation_data:78814"},"body":"All the best for the surgery. I couldn’t bring myself to do reconstruction, the cancer diagnosis was enough for me at that point. I believe that we make the right decisions for ourselves at those times. Take care x","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"203","kudosSumWeight":3,"repliesCount":0,"postTime":"2019-08-14T17:46:54.000-07:00","lastPublishTime":"2019-08-14T17:46:54.000-07:00","metrics":{"__typename":"MessageMetrics","views":1},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:newly-diagnosed/community:nkyiu94732board:dcis/message:78813/message:78814","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"customFields":[],"attachments":{"__typename":"AttachmentConnection","edges":[],"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}}},"User:user:22088":{"__typename":"User","id":"user:22088","uid":22088,"login":"Felicia29","biography":null,"registrationData":{"__typename":"RegistrationData","status":null,"registrationTime":"2019-08-14T14:29:23.000-07:00"},"deleted":false,"email":"","avatar":{"__typename":"UserAvatar","url":"https://onlinenetwork.bcna.org.au/t5/s/nkyiu94732/m_assets/avatars/default/avatar-6.svg?time=0"},"rank":{"__ref":"Rank:rank:39"},"entityType":"USER","eventPath":"community:nkyiu94732/user:22088"},"ModerationData:moderation_data:78815":{"__typename":"ModerationData","id":"moderation_data:78815","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:78815":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:22088"},"id":"message:78815","revisionNum":1,"uid":78815,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:dcis"},"parent":{"__ref":"ForumTopicMessage:message:78813"},"conversation":{"__ref":"Conversation:conversation:78813"},"subject":"Re: Very Hopeful","moderationData":{"__ref":"ModerationData:moderation_data:78815"},"body":"Thanks for your post. I'm waiting for a full diagnosis and plan so not quite up to where you are. Good luck with your surgery and thanks for sharing the choice that you made. ","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"180","kudosSumWeight":2,"repliesCount":0,"postTime":"2019-08-14T20:36:18.000-07:00","lastPublishTime":"2019-08-14T20:36:18.000-07:00","metrics":{"__typename":"MessageMetrics","views":2},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:newly-diagnosed/community:nkyiu94732board:dcis/message:78813/message:78815","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"customFields":[],"attachments":{"__typename":"AttachmentConnection","edges":[],"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}}},"User:user:20627":{"__typename":"User","id":"user:20627","uid":20627,"login":"Anne65","biography":null,"registrationData":{"__typename":"RegistrationData","status":null,"registrationTime":"2017-12-16T22:02:53.000-08:00"},"deleted":false,"email":"","avatar":{"__typename":"UserAvatar","url":"https://onlinenetwork.bcna.org.au/t5/s/nkyiu94732/m_assets/avatars/default/avatar-9.svg?time=0"},"rank":{"__ref":"Rank:rank:39"},"entityType":"USER","eventPath":"community:nkyiu94732/user:20627"},"ModerationData:moderation_data:78816":{"__typename":"ModerationData","id":"moderation_data:78816","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:78816":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:20627"},"id":"message:78816","revisionNum":1,"uid":78816,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:dcis"},"parent":{"__ref":"ForumTopicMessage:message:78813"},"conversation":{"__ref":"Conversation:conversation:78813"},"subject":"Re: Very Hopeful","moderationData":{"__ref":"ModerationData:moderation_data:78816"},"body":"@Pip47 Good luck with your surgery & great that you have your path planned. I also had DCIS, Grade 1 but invasive with no node involvement. I had a great surgeon who decided the best for me was a lumpectomy. Following surgery, I had clear margins & as no nodes were involved, they even debated whether I would even need rad. treatment. After meeting with my onc, we decided I would go ahead with 3 weeks of rad treatment, even though my margins were clear, as my cancer was aggressive. It is that insurance policy in case a little cell was missed!! rad treatment was a breeze. I used Mepitel film so had no redness/burning & didnt have to use any creams. I am on no medication either so was very lucky with my outcome. Good on you if you dont have to have any treatment. be guided by the medical team & the results following surgery. I was like you & agreed with my surgeon to have a lumpectomy over a mastectomy as I thought why take it off if a smaller operation would do the trick. It's a gamble game but i am happy with my decisions & the rad provided me the extra protection without having chemo. All the best & stay positive & strong. love & hugs xx ","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"207","kudosSumWeight":3,"repliesCount":0,"postTime":"2019-08-14T21:20:08.000-07:00","lastPublishTime":"2019-08-14T21:20:08.000-07:00","metrics":{"__typename":"MessageMetrics","views":1},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:newly-diagnosed/community:nkyiu94732board:dcis/message:78813/message:78816","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"customFields":[],"attachments":{"__typename":"AttachmentConnection","edges":[],"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}}},"ModerationData:moderation_data:78817":{"__typename":"ModerationData","id":"moderation_data:78817","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:78817":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:22090"},"id":"message:78817","revisionNum":1,"uid":78817,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:dcis"},"parent":{"__ref":"ForumTopicMessage:message:78813"},"conversation":{"__ref":"Conversation:conversation:78813"},"subject":"Re: Very Hopeful","moderationData":{"__ref":"ModerationData:moderation_data:78817"},"body":"May I ask what is Mepitel Film, I have never heard of it. Thank you/","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"68","kudosSumWeight":0,"repliesCount":0,"postTime":"2019-08-14T23:36:08.000-07:00","lastPublishTime":"2019-08-14T23:36:08.000-07:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:newly-diagnosed/community:nkyiu94732board:dcis/message:78813/message:78817","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"customFields":[],"attachments":{"__typename":"AttachmentConnection","edges":[],"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}}},"User:user:20569":{"__typename":"User","id":"user:20569","uid":20569,"login":"Sister","biography":null,"registrationData":{"__typename":"RegistrationData","status":null,"registrationTime":"2017-12-06T13:01:28.000-08:00"},"deleted":false,"email":"","avatar":{"__typename":"UserAvatar","url":"https://onlinenetwork.bcna.org.au/legacyfs/online/userpics/240/pC7X05PF585T0.jpg"},"rank":{"__ref":"Rank:rank:39"},"entityType":"USER","eventPath":"community:nkyiu94732/user:20569"},"ModerationData:moderation_data:78818":{"__typename":"ModerationData","id":"moderation_data:78818","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:78818":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:20569"},"id":"message:78818","revisionNum":1,"uid":78818,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:dcis"},"parent":{"__ref":"ForumTopicMessage:message:78813"},"conversation":{"__ref":"Conversation:conversation:78813"},"subject":"Re: Very Hopeful","moderationData":{"__ref":"ModerationData:moderation_data:78818"},"body":"@pip47 Mepitel is a film that goes on the skin to be irradiated. It affects how the radiation enters the skin (somehow - can't quite remember - by changing the depth, I think). It doesn't make the treatment any less but does protect the skin a lot. I was treated in a public hospital and had to ask for the film. No problem in getting it but it wasn't offered up front. There was a couple of days when I had a slight gap between two pieces. In that short time, I got a dark tan line so I know it did do a lot to protect me. It stayed on all week during treatment and then I could take it off for the weekend and moisturise the area. I had no real problems with my skin except for a red tender spot 3 weeks after treatment finished.","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"213","kudosSumWeight":2,"repliesCount":0,"postTime":"2019-08-15T01:31:27.000-07:00","lastPublishTime":"2019-08-15T01:31:27.000-07:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:newly-diagnosed/community:nkyiu94732board:dcis/message:78813/message:78818","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"customFields":[],"attachments":{"__typename":"AttachmentConnection","edges":[],"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}}},"ModerationData:moderation_data:78819":{"__typename":"ModerationData","id":"moderation_data:78819","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:78819":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:20627"},"id":"message:78819","revisionNum":1,"uid":78819,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:dcis"},"parent":{"__ref":"ForumTopicMessage:message:78813"},"conversation":{"__ref":"Conversation:conversation:78813"},"subject":"Re: Very Hopeful","moderationData":{"__ref":"ModerationData:moderation_data:78819"},"body":"@Pip47 Many ladies on this forum have used Mepitel & I know that Giovanna is a huge advocate of it also. I have a link below which describes it to you. I had my treatment at a private hospital & they used it often. https://store.independenceaustralia.com/mepitel-film-1-7dc7538f41cbee2be86aa2559ade080c.html It is reasonably new & my onc was very much in favour of it. It is like an invisible film that sticks to your body over the radiation area. It is VERY important that the film has no tears or bubbles in it so I had a nurse check me every day before treatment & if needed, performed & nip & tuck to ensure it was sticking directly to my skin. They may replace it entirely if it starts to lift at all but best to leave it in place. It basically reflects the rad beam so it doesnt penetrate your skin. The film stays on you the entire treatment plus around 3 weeks after treatment has finished as that is when the radiation hits it peak, which does seem strange I know. The great thing about mepitel is that you dont use ANY creams throughout the whole process. You can shower normally also but try not to rub vigorously or the film may come off. Yes, you may initially feel like a cryovac chicken but you do get used to it. My 3 y.o. great niece called it \"my special skin\" as she knew it was protecting me! Its so important that if you feel any bubbles in the film, that you let the nurse know as bubbling actually makes it worse. The rad beam actually reflects back into your skin. The nurse at the hospital checked me every day & they dont mind as that is there job. You may as well see them every day to ensure it is OK otherwise it defeats the purpose. I finished 3 weeks of treatment with no redness, burning or peeling. You wouldnt have even known I had rad treatment. I couldnt believe how good my skin looked, just as it did before. I was very lucky to have been offered this product. I took the film off myself around 3 weeks after it finished & then I just used a Vit e non-scented moisturiser over my skin just because it has been wrapped up in film for 5 weeks. You need to use fragrance free & non scented bodywash using the treatment also just to minimise any reaction. I do hope you can get hold of it or ask for it if they can get it in. i know it can be different in private & public hospitals. I am a huge supporter of this product if you maintain it well. I have seen pics of rad burns that really shocked me so i know I have been lucky.Good luck & let us know how you get on. Love & hugs xx
","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"211","kudosSumWeight":3,"repliesCount":0,"postTime":"2019-08-15T20:55:02.000-07:00","lastPublishTime":"2019-08-15T20:55:02.000-07:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:newly-diagnosed/community:nkyiu94732board:dcis/message:78813/message:78819","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"customFields":[],"attachments":{"__typename":"AttachmentConnection","edges":[],"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}}},"ModerationData:moderation_data:78820":{"__typename":"ModerationData","id":"moderation_data:78820","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:78820":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:22090"},"id":"message:78820","revisionNum":1,"uid":78820,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:dcis"},"parent":{"__ref":"ForumTopicMessage:message:78813"},"conversation":{"__ref":"Conversation:conversation:78813"},"subject":"Re: Very Hopeful","moderationData":{"__ref":"ModerationData:moderation_data:78820"},"body":"Anne65 thank you for all the information, sounds wonderful.","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"59","kudosSumWeight":1,"repliesCount":0,"postTime":"2019-08-15T23:34:06.000-07:00","lastPublishTime":"2019-08-15T23:34:06.000-07:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:newly-diagnosed/community:nkyiu94732board:dcis/message:78813/message:78820","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"customFields":[],"attachments":{"__typename":"AttachmentConnection","edges":[],"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}}},"User:user:22102":{"__typename":"User","id":"user:22102","uid":22102,"login":"Mich15","biography":null,"registrationData":{"__typename":"RegistrationData","status":null,"registrationTime":"2019-08-16T04:39:49.000-07:00"},"deleted":false,"email":"","avatar":{"__typename":"UserAvatar","url":"https://onlinenetwork.bcna.org.au/t5/s/nkyiu94732/m_assets/avatars/default/avatar-3.svg?time=0"},"rank":{"__ref":"Rank:rank:39"},"entityType":"USER","eventPath":"community:nkyiu94732/user:22102"},"ModerationData:moderation_data:78821":{"__typename":"ModerationData","id":"moderation_data:78821","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:78821":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:22102"},"id":"message:78821","revisionNum":1,"uid":78821,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:dcis"},"parent":{"__ref":"ForumTopicMessage:message:78813"},"conversation":{"__ref":"Conversation:conversation:78813"},"subject":"Re: Very Hopeful","moderationData":{"__ref":"ModerationData:moderation_data:78821"},"body":"Good luck for the surgery! I had invasive lobular cancer and advised for both breasts to be removed. Cancer was in the left. I was told v unlikely need for Chemo. I opted for immediate recon. However, I soon realised that having an immediate recon, then needing Chemo meant I had to wait for the Chemo treatment to be finished before we could start putting air into the expanders. This meant no running/jogging during Chemo, over 6months, which was a shock to me..as my exercise is really part of my life. Also, having the air expanders in over the period of 6months of Chemo would be a challenge. They are not very comfortable. I had to learn to sleep on my back too. Both my recon breasts had wounds, so, in the end, I needed to have both removed. I was fine with this, as it meant I could give my best to Chemo without the concerns of further wounds and the ability to exercise-running! Yay!! Have had my first Chemo treatment and out running gently at this point. So, it is always something to go back to, if desired, to have recon at a later date.","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"208","kudosSumWeight":2,"repliesCount":0,"postTime":"2019-08-16T04:56:46.000-07:00","lastPublishTime":"2019-08-16T04:56:46.000-07:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:newly-diagnosed/community:nkyiu94732board:dcis/message:78813/message:78821","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"customFields":[],"attachments":{"__typename":"AttachmentConnection","edges":[],"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}}},"ModerationData:moderation_data:78822":{"__typename":"ModerationData","id":"moderation_data:78822","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:78822":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:22090"},"id":"message:78822","revisionNum":1,"uid":78822,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:dcis"},"parent":{"__ref":"ForumTopicMessage:message:78813"},"conversation":{"__ref":"Conversation:conversation:78813"},"subject":"Re: Very Hopeful","moderationData":{"__ref":"ModerationData:moderation_data:78822"},"body":"Well done, you have certainly been very resilient and strong. I am not an exercise person walking is about all I do, I only had a hip replacement 3 months ago.","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"159","kudosSumWeight":0,"repliesCount":0,"postTime":"2019-08-16T14:53:46.000-07:00","lastPublishTime":"2019-08-16T14:53:46.000-07:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:newly-diagnosed/community:nkyiu94732board:dcis/message:78813/message:78822","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"customFields":[],"attachments":{"__typename":"AttachmentConnection","edges":[],"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}}},"User:user:20667":{"__typename":"User","id":"user:20667","uid":20667,"login":"arpie","biography":null,"registrationData":{"__typename":"RegistrationData","status":null,"registrationTime":"2018-01-13T01:35:16.000-08:00"},"deleted":false,"email":"","avatar":{"__typename":"UserAvatar","url":"https://onlinenetwork.bcna.org.au/t5/s/nkyiu94732/m_assets/avatars/default/avatar-8.svg?time=0"},"rank":{"__ref":"Rank:rank:39"},"entityType":"USER","eventPath":"community:nkyiu94732/user:20667"},"ModerationData:moderation_data:78823":{"__typename":"ModerationData","id":"moderation_data:78823","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:78823":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:20667"},"id":"message:78823","revisionNum":1,"uid":78823,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:dcis"},"parent":{"__ref":"ForumTopicMessage:message:78813"},"conversation":{"__ref":"Conversation:conversation:78813"},"subject":"Re: Very Hopeful","moderationData":{"__ref":"ModerationData:moderation_data:78823"},"body":"All the best for your surgery, @Pip47 - I was amazed at how 'easy' it was for me, given how scared I was going into it! They gave me a whole BOX of tissues as I was being admitted! LOL
The waiting from diagnosis to surgery really is the pits - just try & keep as busy as you can, doing things you love doing to keep your mind busy! Once you've had your surgery & got your pathology results, you'll have a much clearer idea of your treatment plan.
Mine was invasive lobular (1/18) & I was lucky to avoid chemo, then I had 4 weeks of radiation & now on hormone tablets. I arranged a holiday to Norfolk Island a couple of weeks after rads, as a 'Pick Me Up'!
Where abouts are you - State/town - you can add it to your profile so it shows - then others living nearby may be able to recommend different facilities available to you. ;)
Whack up any questions you may have - we've all been there, so someone will will give you a 'straight up' answer!
Most of us have found the Forum invaluable for both support and information xxx","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"213","kudosSumWeight":2,"repliesCount":0,"postTime":"2019-08-16T18:34:00.000-07:00","lastPublishTime":"2019-08-16T18:34:00.000-07:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:newly-diagnosed/community:nkyiu94732board:dcis/message:78813/message:78823","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"customFields":[],"attachments":{"__typename":"AttachmentConnection","edges":[],"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}}},"CachedAsset:text:en_US-components/community/Navbar-1742938040000":{"__typename":"CachedAsset","id":"text:en_US-components/community/Navbar-1742938040000","value":{"community":"Community Home","inbox":"Inbox","manageContent":"Manage Content","tos":"Terms of Service","forgotPassword":"Forgot Password","themeEditor":"Theme Editor","edit":"Edit Navigation Bar","skipContent":"Skip to content","external-1":"Helpline: 1800 500 258","livinginregionalruralandremoteareas":"Living in Regional, Rural and Remote areas","hereditarygeneticmutationandbreastcancer":"Hereditary Genetic Mutations and breast cancer","first-peoples":"First Peoples","breast-cancer-childlessness-and-us":"Breast cancer, childlessness and us","invasive-lobular-cancer":"Invasive Lobular Cancer (ILC)","general-discussion":"General discussion","nkyiu94732-1":"Categories","treatment-and-surgery":"Treatment and surgery","living-with-metastatic-breast-cancer":"Living with metastatic breast cancer","lifestyle-and-wellbeing":"Lifestyle and wellbeing","lgbtiq-breast-cancer-network":"LGBTIQ+ Breast Cancer Network","your-community":"Your Community","lets-talk-about-vaginas":"Let's talk about vaginas","triplepositivebreastcancer":"Triple Positive Breast Cancer (TPBC)","carers-corner":"Carers corner","bcna-mod-squad":"BCNA Mod Squad","clinical-trials-and-research":"Clinical trials and research","welcome":"Welcome","triple-negative-breast-cancer":"Triple Negative Breast Cancer","external-2":"Discussions","choosing-breast-reconstruction":"Choosing breast reconstruction","christians-diagnosed-with-breast-cancer":"Christians diagnosed with breast cancer","groups":"Groups","news-and-events":"News and events","young-women":"Young Women","social-zone":"Social zone","carers":"Carers, family and friends","men-living-with-breast-cancer":"Men living with breast cancer","external":"BCNA website","flat-chat-no-breast-reconstruction":"Flat Chat - 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