Forum Discussion

Blister's avatar
Blister
Member
5 years ago

Found out this week I have DCIS

I’m 60 years old and I noticed a slight indentation under my left nipple and a dull ache in my left breast.  I was supposed to have a Mammogram in May, but you know COVID happened.

Anyway I finally arranged my Mammogram for early this month, mentioned change did the scan, had an examination, was told the usual call if something found or letter in 8 days.  Well it was the phone call. 

Went back had the tests exams and biopsy.

Was asked to come back with my husband for the biopsy results, while being prepared by staff that things didn’t look good and everything looked very suspicious. 

I’ve been lucky been diagnosed, had specialist appt and my surgery is due Tuesday exactly 1 week after.  We are still waiting for the staining results to come through.

I don’t feel like I’m allowed to feel anything but calm about my diagnosis, my husband keeps telling me with our knowledge of cancer  (he’s a two time survivor) there’s nothing to worry about, it’s early and contained so I just need to be calm and relaxed about the whole process.  

For the sake of my adult children I’m trying to be, but the things going through my head, is the cancer still contained, has the biopsy caused it to spread.  I can’t ask this question as I haven’t had time along with a medical person since I’ve been diagnosed, I know I have no right to complain, my family want this treated and treated quickly so I seem to have lost control of my treatment and care.

Are these feelings normal, my surgeon has told me this cancer I have has a 100% survival rate, so why do I feel like I do, there are so many women/men worse off than me, everything seems to be happening so fast no time to process
  • @Blister Sending love & strength your way. Such a difficult time & so much to take in. Its OK to feel overwhelmed & confused with so many questions continually going through your mind. Write down all your concerns & questions & ask your medical team at your next appointment. I found a McGrath breast care nurse to be an invaluable source of knowledge & I would ask her all those "dumb" questions. Its hard when you want all the answers now but just keep taking one step at a time & try not to worry about things you cant control....easier said than done!
    Another good tip is to take someone with you on your appointments as an extra set of ears is invaluable & take notes yourself.
     I was diagnosed with DCIS coming up 3 years ago & have been so blessed with a great outcome & I am praying you will to. I had successful surgery & then had 3 weeks of radiation. I didnt have to endure chemo & I am on no medication so I have been so lucky. 
    Stay strong & good luck for next Tuesday. Try to stay positive & be kind to yourself. love & hugs xxxx

  • Sorry to hear your diagnosis. No one wants to go through this no matter how good the prognosis. Its a shock and you will feel what you feel. Its ok to. Other peoples experiences are not yours and you have every right to experience it your way. All the best. 
  • Dear @Blister

    I may be reading your post the wrong way but your family, with the best of intentions, seem to be taking over for you. Sooner or later, and possibly easiest sooner, you may have to gently remind them that it’s your body, even your cancer, and you’d like to be the one leading the discussions. Their thoughts and experience of course are valuable, but cancer tends to be different for everyone - not just the pathology but mentally and physically. So keep the team by your side, but remember it’s your game. Best wishes. 
  • @Blister

    A diagnosis can cause a lot of angst internally.  Understandably hubby is trying to take the angst out of it, especially since he is a survivor

    There's excellent information on the BCNA website, these links talk about your diagnosis

    https://www.bcna.org.au/understanding-breast-cancer/what-is-breast-cancer/types-of-breast-cancer/

    https://www.bcna.org.au/understanding-breast-cancer/what-is-breast-cancer/ductal-carcinoma-in-situ/

    https://www.bcna.org.au/resource/fact-sheet-breast-cancer-pathology/

    Best wishes with your upcoming appointment
  • Hello @Blister 🙂
    You are very lucky you caught it early, yes. The outlook is also fantastic 😊. However, it is cancer. And you need time to process it. And you have every right to feel like you do. It’s fine that people are telling you that you’ll beat it and to be calm, it’s necessary to have encouragement and positivity. But in the beginning I also think it’s necessary to allow yourself to feel whatever it is you feel about it. It’s your body, your battle and your emotions around it. And none is allowed to tell you how to feel about it. You need to go through the fear, confusion, sadness, anger etc. You need to feel all this. Don’t suppress or ignore it, or it will only get worse. Allow to feel what needs to be felt, then after that you can transfer to feeling calm, after things have progressed and you’re more familiar with the whole thing. 
    Good luck with the surgery, and ask for a psychologist where you are able to discuss whatever you feel without being judged or made to feel guilty about it 🍀❤️