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Jenmcd's avatar
Jenmcd
Member
2 years ago

“This sucks”

Hi. This is a place I never thought I’d be posting in but thank you for allowing a safe space for me to just pour it out. 
I am 54 yrs and am now one week post op (partial mastectomy and nipple removal RHS, sentinel lymph node removal and bilateral breast reduction/reconstruction) having been diagnosed with high grade DCIS with Comedo necrosis on 12/2 and then following MRI, invasion into right nipple. 
What a mind blow out the past 2 months since my routine screen on 5/1 has been. Not telling you anything new as you all have been through this is some form of another. But no symptoms to “you have early breast cancer” has been a surreal trip. I don’t feel sick (well I do now post op!) so how is all this happening to me?! 
I am a psychologist and I know I “know” all the strategies to “ manage the anxiety” and “ one step at a time” and “ don’t let your thoughts become catastrophic “ etc etc but I still feel quite alone on this a journey even with all the support of family and friends. So hence I’m reaching out here with my vulnerabilities. 
I see my surgeon today for post op check and discussion about treatment etc. They are talking about radiation therapy. I am also HER2 positive and so confused about what this actually means and have confused myself more reading discussions on here. I have my questions ready to ask today as I’ve read HER2 positive requires Chemo? 
Anyway, just wanted to introduce myself and have say hi and what a shitstorm all this really is and how I am thankful that I was told about BCNA. 
  • Hi Jenmcd, welcome to the Shitstorm! This is a good site particularly if you connect with someone with a similar diagnosis - I think the saying is “problem shared is a problem halved”… or something like that. Now that you are in the health system (patient), things go at their own pace and that can be hard to accomodate but you will adjust. One of my tumours was DCIS but it was the smaller one so my treatment was aimed at the other tumour (invasive) so I can’t really share treatment plans either-sorry. I’m just letting you know that there will be someone with more knowledge of your tumour type along on here soon so know that you are not alone.. but do feel free to vent anytime!!