Forum Discussion
Scan day freaking sucks......yet again. Probable curse words included.
With only minor trepidation and my shit mostly together I went to clinic today to get my results. I stopped to give a co worker that had just been diagnosed (MOFO BC) a hug and a shoulder to cry on for a bit while we were waiting. I heard my name called and promised her she would get through and I would be happy to help if I could in any way. She thanked me with that smile you put on when you are trying so hard not to burst into tears and your heart is aching as I waltzed on in to the doctors office.
Well the whole thing went sideways and turned into me leaving work in a shaky, teary eyed mess. My goodness this thing still rocks you when least expect it.
Here we go again with another fucking ambiguous result about the mystical eliptical thingamajjigy that has taken up residence in the rogue boob. Said thingy has decided to grow 2mm in 6 months. BIRAIDS score now moved up from a 3 to a 4 and hey lets poke a needle in it this time. This presents a problem. Considering the MRI is still the only machine that can see thingy (again it can't be felt by anyone either) and it's positioning, it is probable that a biopsy can't be done in the MRI machine. Still waiting on an answer for that one.
So do we just poke around in there and try to hit it?? Cut it out or off just for the heck of it?
No body is prepared to say it is anything sinister nor are they prepared to say it's not.
Seriously, can someone please tell me how, for the love of god, you can have 4 MRI's, 4 mammograms and 6 u/sounds in a period of 12 months and still not know what this is or isn't.
So as it sits, back to headlining the MDT on Thursday to get input from group of guru's as quote "my breast don't scan normally". Another targetted u/s on Friday. And wait for an answer on whether the biopsy can be done by MRI.
Waiting waiting waiting yet again. Fuckity fuck fuck. I am sick of this roller coaster. I want to get off and my money back.
Mental status right now = somewhere between zoned out numbness and seriously pissed off.
Strongly considering ostrich tactics at the moment.
Thanks for listening. :/
Well the whole thing went sideways and turned into me leaving work in a shaky, teary eyed mess. My goodness this thing still rocks you when least expect it.
Here we go again with another fucking ambiguous result about the mystical eliptical thingamajjigy that has taken up residence in the rogue boob. Said thingy has decided to grow 2mm in 6 months. BIRAIDS score now moved up from a 3 to a 4 and hey lets poke a needle in it this time. This presents a problem. Considering the MRI is still the only machine that can see thingy (again it can't be felt by anyone either) and it's positioning, it is probable that a biopsy can't be done in the MRI machine. Still waiting on an answer for that one.
So do we just poke around in there and try to hit it?? Cut it out or off just for the heck of it?
No body is prepared to say it is anything sinister nor are they prepared to say it's not.
Seriously, can someone please tell me how, for the love of god, you can have 4 MRI's, 4 mammograms and 6 u/sounds in a period of 12 months and still not know what this is or isn't.
So as it sits, back to headlining the MDT on Thursday to get input from group of guru's as quote "my breast don't scan normally". Another targetted u/s on Friday. And wait for an answer on whether the biopsy can be done by MRI.
Waiting waiting waiting yet again. Fuckity fuck fuck. I am sick of this roller coaster. I want to get off and my money back.
Mental status right now = somewhere between zoned out numbness and seriously pissed off.
Strongly considering ostrich tactics at the moment.
Thanks for listening. :/
177 Replies
- @kezmusc, hope you get some answers soon.
- Yes it's possible @Nefertari. My decision where to go.
- @kezmusc, I agree it is time for a new set of eyes, is that possible?
- @iserbrown,
She was a bit confused that she coulon't see anything as well. It's so well defined on the scan pictures I guess she assumed once she was in there it wouldn't be too hard to locate. Especially with the clip and the hookwire which theoretically should have gone right through the middle of it. Who knows. Whatever it is definitely does not want to be located.
xoxo - Agree wholeheartedly with new set of eyes!
It's hard to fathom that the surgeon is of the view there's something there but can't find it! Doesn't do anything for your confidence in the medical team! - Yes @kezmusc - I was thinking the same, @Zoffiel and @kmakm - a new set of eyes and machine!
Take care xx - At this point @kezmusc I think a new machine and a fresh set of eyes wouldn't hurt, and could even be beneficial. K xox
- @strongtogether,
Options are running out really. Just a wait and see at the moment. If it's still showing on the MRI I assume they will suggest mx. Can't see that happening without a bloody good reason though.
@Zoffiel I was thinking that as well.
xoxoxo - I am very fond of Macavity. The art of macavitying is quite complex and occasionally charming. My four year old grandson is showing real
potential. But yes, huge scope in bc land - the middle of my toes macavitied years ago and that’s really clever given the beginnings and tips seem still in place! - Go somewhere new @kezmusc Fresh eyes with no preconceptions. They can still compare the files if they need to.
