Whole brain radiation
Hi everyone
Today is day 2 of whole brain radiation. Have had fluid and inflammation which has caused some side effects like blurred vision, headaches, colour changes while watching TV ( eg presenters white blouse changed to a lovely shade of pale green). Seen registrar who has increased dexymethasone by 2mg at lunch time. Hopefully this will help.
My oncologist has also spoken to me about hormone treatment. Its called Fulvestrant or Faslodex which is administered slowly intermuscularly assume to your buttocks. Apparently for the first month there are 2 injections and then one each month after that. First month is free and then I'm up for the cost of the next 3 months. Dr asked that I talk to my private health fund to see if they would give 'consideration' for costs. After a lot of phone calls a letter has been sent to health fund from my oncologist. So now waiting on response.
As I live alone, have asked for palliative care to call to start the ball rolling for help in the home, pain management, obtain aid/services that may be available and be on there books so that when things deteriorate it won't take long to get assistance.
I'm only 61 & cannot obtain all the benefits that an aged pensioner receives on health benefits so I think this is the best way to move forward. I'm hopeing there is not too much cognitive impairment to brain after rads and can cope a little longer without having to be admitted to a care facility. My children have offered to take me to their homes but I feel I will be a burden to them. Will have to see what the future holds and take one day at a time.
Getting close to my nanny nap time and my concentration is waning. So catch you all later. Sue:-)