Forum Discussion

Caatje50's avatar
Caatje50
Member
11 years ago

What to do - family history

After mum lived through breast cancer, it's now happening to my sister, no more then 2 years after mum.

She is doing ok, just finished her radiation and will be starting chemo in about 3 weeks. In the mean time she's been tested for the gene, results in 6 to 8 weeks.

If she's positive I will have to get a letter from my place of birth to prove both my mother and sister have breast cancer to enable me to be tested.

Discovered another fact that might increase my chances of getting breast cancer. It's all a bit nerve wrecking, to say the least.

Any advise anyone can give me?

It seems so unreal that I have to get a request for testing from my sisters oncologist located in the country of my birth, before anyone will believe me I'm not lying to them.

It actually gets me a bit angry to tell you the truth.

chemotherapy

3 Replies

  • Caatje50's avatar
    Caatje50
    Member
    11 years ago

    Hi Tracy

    I'm in Melbourne and that's the story I got from my GP. My mother also took DES during the time that she was pregnant with me which increases my chance even more. I had my mammogram and ultrasound done over 5 weeks ago and still no word from my GP, which I find puzzling and rude to be honest. I've been told by Beastcancer Victoria there is even a waiting list for testing and the interview could be even 4 to 6 Months away after you get approved. If my sisters test comes back negative I will not be able to be tested. Perhaps I should move back to QLD. If I were to be tested and it would come back positive I would not hesitate to have a double mastectomy. I don't know what to do.  Thanks for responding xx

  • Tracy62's avatar
    Tracy62
    Member
    11 years ago

    Not sure why you seem to be geting put through all this. What state are you in and is it the same one where this all occurred????

    I am in Queensland and am in the process of having genetic testing done - simply took a referral from my GP to Queensland Health (I did find and download a form for him) - after the question was raised and agreed to by 3 specialists I still see.

    The referral was sent in, I have had an inital phone interview (asking what I want to get from this and why I want to have it done) and paperwork (including permission forms for collecting more medical info on me and family cancer history) has been completed and sent back. Now just waiting for an actual appointment date.

    I will keep you informed - puzzling why things should be different - we all have the same concerns.

    Tracy xxx

  • Tracy62's avatar
    Tracy62
    Member
    11 years ago

    Not sure why you seem to be geting put through all this. What state are you in and is it the same one where this all occurred????

    I am in Queensland and am in the process of having genetic testing done - simply took a referral from my GP to Queensland Health (I did find and download a form for him) - after the question was raised and agreed to by 3 specialists I still see.

    The referral was sent in, I have had an inital phone interview (asking what I want to get from this and why I want to have it done) and paperwork (including permission forms for collecting more medical info on me and family cancer history) has been completed and sent back. Now just waiting for an actual appointment date.

    I will keep you informed - puzzling why things should be different - we all have the same concerns.

    Tracy xxx