I’m 3 weeks in and also have young kids to run around after.
I was given a steroid (dexa) pre treatment which kept me up all night after the infusion. Just wide awake and the sleep deprivation really affected me the next day. I just had my 3rd infusion without the dexa and slept all night! Makes a difference.
I’m doing cold boots and gloves and have a little tingling for about 30 seconds occasionally. No nausea for me.
For me, I do get a lot of fatigue. I was pretty fit, loved the gym and doing weights so I’ve had to seriously adjust my expectations on what I can do. Honestly walking in to school pickup some days in this heat is exhausting.
With the kids, plan down time after an activity to rest. I get out and do things with my kids and then will need to lie down for a couple of hours. I’m not someone who previously liked to sit still so but my body is saying slow down : ) Still plenty of good times in amongst the hard times.
Everyone says that it hits people differently. All the best with starting your treatment