The information available on the Breast Cancer Network Australia website is not medical advice and is provided for information purposes only. It should not be viewed as a replacement for a consultation with a qualified medical professional. Our website is designed to offer information and support to the general public. Be aware that we do not provide any medical advice, and for medical advice we recommend you speak to a qualified medical professional or doctor. 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I am awake early (every morning, if I have slept much at all), I have another infection it seems. I finished antibiotics not a week a...","body@stringLength":"3893","rawBody":"Morning Ladies,
My apologies in advance for the long read...
I am awake early (every morning, if I have slept much at all), I have another infection it seems. I finished antibiotics not a week ago (14 days worth). I have had enough. Post-op Seroma drained x 3 this will be infection number 2, started day 1 of 5 weeks of radiotherapy yesterday.
I know having the seroma drained is an infection risk, but when my breast was twice the size of the other one, an it was reducing my ROM in that arm and extremely painful, I had little choice.
Feeling just miserable. While on the antibiotics, it was the first time I had-for the most part-been pain free since my surgery date on the 5th of November. I am truly exhausted. Pain is back with a force in the night and am red and hot on my breast. Combine that with the hot flushes I have had since having to stop HRT at diagnosis and we have one hot bed!! (Not in the sense I’d like it to be that’s for sure!).
So I guess back to the Doctors where, as we have moved into another year and I no longer have my safety net threshold, I will have to pay for all of my services again.
I went private as we knew no better, the option of going public was not discussed and I have to say I was certainly naive about paying the ‘gaps’ that going private would mean.
Literally it has cost us a decent European holiday. Or at most it has cost me my ability to take some time off work. The approximately 8k (I’m too scared to count), so far we have spent could have allowed me some time off work. I have watched our bank balance decrease while our credit card has increased. Instead I have struggled to work because once I used up all of my sick leave and am now owe annual leave, I have no choice but to continue working.
Despite having an an infection and then radiation after work today(who knows how I will manage to get to the doc), I have to go to work today.
I wish I had known that private health cover does not mean that you are in fact covered. Or even that EVERY test, treatment that you have done has major out of pocket costs. The bills, including those I was never informed there would be a gap, keep rolling in. Yesterday I received a bill for the gap for my lymphoscintigraphy that I had on surgery day (5th November), another $198, and one from S & N $170 for the testing of the drained seroma fluid. A crazy $368 in one day-I can’t even pay for that with my days work!
It it should be compulsory for providers to disclose that there will be a gap and what that gap will be at the time of service.
What do I do now? I honestly can’t afford to keep going like this. Does anyone know if I can now be referred into the public system? And if that is not an option, would it happen if I start to refuse treatment based on the fact that I just can no longer afford it??
Its my 50th Birthday in 6 weeks and instead of celebrating in Bali as was the plan, I’m not even sure I will feel well enough to do anything. Definitely don’t feel like I have much to celebrate right at this minute. We have had to cancel the Bali trip as it is said to be just too risky for me and I likely wouldn’t be covered for anything that may happen anyway. We have travel insurance, but this will still be at a cost to us.
I feel like my life has changed in so many ways in the past 2 months, I can’t even begin to list them. I’ve had enough, I am exhausted yet there is still so much to go through. On top of that, I have this guilt that my treatment and cancer is not as bad as some, and that I should be grateful.
As we have all said many a time since this shitfest started-I WANT MY OLD LIFE BACK!!
Thanks in anticipation, Michelle XOX","kudosSumWeight":0,"postTime":"2019-01-02T11:26:26.000-08:00","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"tags":{"__typename":"TagConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[{"__typename":"TagEdge","cursor":"MjUuMnwyLjF8b3wxMHxfTlZffDE","node":{"__typename":"Tag","id":"tag:costs","text":"costs","time":"2025-03-25T05:02:22.277-07:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}},{"__typename":"TagEdge","cursor":"MjUuMnwyLjF8b3wxMHxfTlZffDI","node":{"__typename":"Tag","id":"tag:radiotherapy","text":"radiotherapy","time":"2025-03-25T05:01:39.532-07:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}},{"__typename":"TagEdge","cursor":"MjUuMnwyLjF8b3wxMHxfTlZffDM","node":{"__typename":"Tag","id":"tag:seroma","text":"seroma","time":"2025-03-25T05:02:23.382-07:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}}]},"timeToRead":3,"currentRevision":{"__ref":"Revision:revision:120779_1"},"latestVersion":null,"metrics":{"__typename":"MessageMetrics","views":241},"visibilityScope":"PUBLIC","canonicalUrl":null,"seoTitle":null,"seoDescription":null,"isEscalated":null,"placeholder":false,"originalMessageForPlaceholder":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"archivalData":null,"body":"Morning Ladies,
My apologies in advance for the long read...
I am awake early (every morning, if I have slept much at all), I have another infection it seems. I finished antibiotics not a week ago (14 days worth). I have had enough. Post-op Seroma drained x 3 this will be infection number 2, started day 1 of 5 weeks of radiotherapy yesterday.
I know having the seroma drained is an infection risk, but when my breast was twice the size of the other one, an it was reducing my ROM in that arm and extremely painful, I had little choice.
Feeling just miserable. While on the antibiotics, it was the first time I had-for the most part-been pain free since my surgery date on the 5th of November. I am truly exhausted. Pain is back with a force in the night and am red and hot on my breast. Combine that with the hot flushes I have had since having to stop HRT at diagnosis and we have one hot bed!! (Not in the sense I’d like it to be that’s for sure!).
So I guess back to the Doctors where, as we have moved into another year and I no longer have my safety net threshold, I will have to pay for all of my services again.
I went private as we knew no better, the option of going public was not discussed and I have to say I was certainly naive about paying the ‘gaps’ that going private would mean.
Literally it has cost us a decent European holiday. Or at most it has cost me my ability to take some time off work. The approximately 8k (I’m too scared to count), so far we have spent could have allowed me some time off work. I have watched our bank balance decrease while our credit card has increased. Instead I have struggled to work because once I used up all of my sick leave and am now owe annual leave, I have no choice but to continue working.
Despite having an an infection and then radiation after work today(who knows how I will manage to get to the doc), I have to go to work today.
I wish I had known that private health cover does not mean that you are in fact covered. Or even that EVERY test, treatment that you have done has major out of pocket costs. The bills, including those I was never informed there would be a gap, keep rolling in. Yesterday I received a bill for the gap for my lymphoscintigraphy that I had on surgery day (5th November), another $198, and one from S & N $170 for the testing of the drained seroma fluid. A crazy $368 in one day-I can’t even pay for that with my days work!
It it should be compulsory for providers to disclose that there will be a gap and what that gap will be at the time of service.
What do I do now? I honestly can’t afford to keep going like this. Does anyone know if I can now be referred into the public system? And if that is not an option, would it happen if I start to refuse treatment based on the fact that I just can no longer afford it??
Its my 50th Birthday in 6 weeks and instead of celebrating in Bali as was the plan, I’m not even sure I will feel well enough to do anything. Definitely don’t feel like I have much to celebrate right at this minute. We have had to cancel the Bali trip as it is said to be just too risky for me and I likely wouldn’t be covered for anything that may happen anyway. We have travel insurance, but this will still be at a cost to us.
I feel like my life has changed in so many ways in the past 2 months, I can’t even begin to list them. I’ve had enough, I am exhausted yet there is still so much to go through. On top of that, I have this guilt that my treatment and cancer is not as bad as some, and that I should be grateful.
As we have all said many a time since this shitfest started-I WANT MY OLD LIFE BACK!!
Thanks in anticipation, Michelle XOX","customFields":[]},"Conversation:conversation:120779":{"__typename":"Conversation","id":"conversation:120779","solved":false,"topic":{"__ref":"ForumTopicMessage:message:120779"},"lastPostingActivityTime":"2019-01-06T02:07:22.000-08:00","lastPostTime":"2019-01-06T02:07:22.000-08:00","unreadReplyCount":11,"isSubscribed":false},"ModerationData:moderation_data:120779":{"__typename":"ModerationData","id":"moderation_data:120779","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"Revision:revision:120779_1":{"__typename":"Revision","id":"revision:120779_1","lastEditTime":"2019-01-02T11:26:26.000-08:00"},"ForumReplyMessage:message:120783":{"__typename":"ForumReplyMessage","id":"message:120783","conversation":{"__ref":"Conversation:conversation:120779"},"author":{"__ref":"User:user:20543"},"revisionNum":1,"uid":120783,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:chemotherapy-and-radiotherapy"},"subject":"Re: Stressed, exhausted physically and financially","readOnly":false,"editFrozen":false,"moderationData":{"__ref":"ModerationData:moderation_data:120783"},"parent":{"__ref":"ForumTopicMessage:message:120779"},"body":"@Mjheke Ask for an immediate transfer to a public hospital in Brisbane. You need to do this for your wallet, your mental and physical health. Take a deep breath and start the process today. (I rarely advise people so firmly but you definitely need to do this.) As someone has already suggested, you could even just go to the public hospital and say you didn't realise how much you would have to pay by going private, and it's sent you broke and you can't cope any more.
You should be able to get your radiation plan sent to the public hospital, I would think - though I'm not absolutely sure about that. You may need to have planning again. But it would be worth it for the sake of your anxiety.
I was public for EVERYTHING and I've not paid a cent - except for parking. I'm an age pensioner but I'm pretty sure it's the same for anyone without private health insurance. The radiation people in the public hospital I went to are magnificent. And the oncologists. And the pathologists. And the medical imaging people. And the pharmacists.
Fran x","body@stringLength":"1089","rawBody":"@Mjheke Ask for an immediate transfer to a public hospital in Brisbane. You need to do this for your wallet, your mental and physical health. Take a deep breath and start the process today. (I rarely advise people so firmly but you definitely need to do this.) As someone has already suggested, you could even just go to the public hospital and say you didn't realise how much you would have to pay by going private, and it's sent you broke and you can't cope any more.
You should be able to get your radiation plan sent to the public hospital, I would think - though I'm not absolutely sure about that. You may need to have planning again. But it would be worth it for the sake of your anxiety.
I was public for EVERYTHING and I've not paid a cent - except for parking. I'm an age pensioner but I'm pretty sure it's the same for anyone without private health insurance. The radiation people in the public hospital I went to are magnificent. And the oncologists. And the pathologists. And the medical imaging people. And the pharmacists.
Fran x","kudosSumWeight":0,"repliesCount":0,"postTime":"2019-01-02T13:12:06.000-08:00","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:120783_1"},"latestVersion":null,"metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","isEscalated":null,"placeholder":false,"originalMessageForPlaceholder":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"customFields":[],"replies":{"__typename":"MessageConnection","edges":[],"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}}},"CachedAsset:theme:customTheme1-1743643394041":{"__typename":"CachedAsset","id":"theme:customTheme1-1743643394041","value":{"id":"customTheme1","animation":{"fast":"150ms","normal":"250ms","slow":"500ms","slowest":"750ms","function":"cubic-bezier(0.07, 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Like you I had the wire and the dye the morning before my surgery, it was hectic too believe me. To insert the wire they use the mammogram to guide the wire, it is uncomfortable but not overly painful, They had issues with mine and did it twice. The dye for me was 4 needles around my nipple, to be honest it wasn't as bad as I had anticipated and the needles are over with very quickly, its like a bee sting. I had a blue dot the size of a 50 cent peiece on my breast for about 18 months, it just faded away with time.
\n
My daughter came with me though she wasn't allowed in with me, whilst I was waiting and there was loads of that I was with her.
\n
Whilst you aren't seeing your surgeon for a few weeks if you have questions ask the breast care nurse, I am sure you will find her helpful.
\n
Donna
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Like you I had the wire and the dye the morning before my surgery, it was hectic too believe me. To insert the wire they use the mammogram to guide the wire, it is uncomfortable but not overly painful, They had issues with mine and did it twice. The dye for me was 4 needles around my nipple, to be honest it wasn't as bad as I had anticipated and the needles are over with very quickly, its like a bee sting. I had a blue dot the size of a 50 cent peiece on my breast for about 18 months, it just faded away with time.
\n
My daughter came with me though she wasn't allowed in with me, whilst I was waiting and there was loads of that I was with her.
\n
Whilst you aren't seeing your surgeon for a few weeks if you have questions ask the breast care nurse, I am sure you will find her helpful.
\n
Donna
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