Sort of Began Radiotherapy...

I'm not sure if this is of any help or if someone else has mentioned but i went to a physio preop and after surgery and had pressure levels measured. I will continue to go for sometime yet to keep a check. I would most definitely question why this is happening.

My left leg is swelling up to the knee if I sit for prolonged periods, it isn't painful until I walk on it then there is pain in both the taught skin and what seems like nerve pain in my foot. It will also gradually swell as I walk. My left hand and wrist to around the middle of the forearm also swell occasionally but not as severely. Everything appears to be usual in colour, the left leg seems to have remained thicker, I'm getting nerve tingling more frequently in the left foot. I had a sentinel node removed for biopsy under the arm on my left side where pain and tenderness has also come back.
*sigh* Monday it took 2 hours of elevation to start going down and 4 hours to be nearly regular.

Any pain in the leg, how far up your leg does it go? I thought you were meaning in your arm,  thst you had lymphoedema.  Did you have any treatment or anything done to groin nodes to cause leg lymphoedema?  Is your left leg normal colour? Sorry, I'm a nurse, medico kicking in. PM me if you haveany questions, if you like, Lyn

Inkpetal, hopefully your radio oncologist will point you to a Lymphoedema clinic. My oncologist made a referral to the clinic attached to my cancer therapy centre and said she should have sent me there as part of my initial visit!! Don't feel bad about asking questions about your health. These wonderful doctors have trained for many years to be able to answer your questions!!! You're assisting them be the best they can be and vice versa.   :) All the best Xx Cath

Thank you Lyn, I'm in inner Sydney, I'll be asking for a referral tomorrow if the doctor agrees that's what it is. *nod* I've taken photos as it's happened to make sure it's not just shrugged off as imagination like it seems to have been previously. Call me crazy but a single ankle disappearing in fluid doesn't seem like a doxetaxel side-effect :warning:.

Not sure where you are, but if you are thinking you have lymphoedema you should find a lymphoedema therapist. Check out the Australian Lymphology Association website. They have a section where you can find your closest therapist by putting your postcode in. The sooner youstart treatment, the better chance you have of managing it. 
Wishing you well, Lyn

Okay! So I've actually started it now :lol:

I have a new attending that was very on the ball and seemed to actually care how I was, even telling me that everything I was shrugging off and not pushing people about were pretty serious and I needed to be meaner about my pain.

For background: Over my last three oncology consultations I've reported 1. The development of clicking in my joints (I sounds like change rattling when I walk now) 2. Bad back pain (third month of it now), not 'a bit of back pain' I mean by the end of an hour or so I need to stretch, sit, or lie down.  3. The hormonal changes leaving me dizzy and unable to sleep (in night sweats - yep I came here for advice because I didn't get any from the doctor I told about it), and 4. That I'm experiencing what I really suspect is lymphedema on my left side (what else explains localised and progressively more severe swelling).

The oncologist following me through chemo was lovely, I have no problem with her personally at all, but evidently the professional advice on what action I should be taking or checks that should be happening consisted of the words "You poor thing". I just don't feel taken seriously or listened to. You'd think I'd at least be handed a pamphlet or something. During our last consult she literally said there was nothing much for her to do so she was "going to let [me] vent". I can vent on-line :( I need medical advice on this mountain of stuff happening to me, and I honestly thought that's why I was even here (and paying?). *sigh*

Tomorrow I get to meet my radio oncologist (who has been away as I've started it) and get to nag the poor lady's ear off about everything that has been paid no attention to on top of hear about how the dreaded radiotherapy fatigue with a little nausea to boot has started to set in.

I'll let you all know how it goes tomorrow and see how much of my mile long list was actually worth wanting to have checked out. :neutral:

Sorry about the super complainy-pants post, but I've had my fill of feeling like my pain is being ignored.

@WavingNotDrowning Me too! *hug* I hope the nap was excellent at least :lol:

Thank you @Melhay. It was quick and easy at 10:15 today... 6 hours later and I'm already feeling the burn and am suddenly so tired I think I might just go to bed. Uh oh!