Sort of Began Radiotherapy...
I walked in to radiation oncology and tapped on at the self check-in. I'd been told to wait in a special room for my first session so I shuffled down the hall away from the main rooms and started a pu...
Forum Discussion
Okay! So I've actually started it now :lol:
I have a new attending that was very on the ball and seemed to actually care how I was, even telling me that everything I was shrugging off and not pushing people about were pretty serious and I needed to be meaner about my pain.
For background: Over my last three oncology consultations I've reported 1. The development of clicking in my joints (I sounds like change rattling when I walk now) 2. Bad back pain (third month of it now), not 'a bit of back pain' I mean by the end of an hour or so I need to stretch, sit, or lie down. 3. The hormonal changes leaving me dizzy and unable to sleep (in night sweats - yep I came here for advice because I didn't get any from the doctor I told about it), and 4. That I'm experiencing what I really suspect is lymphedema on my left side (what else explains localised and progressively more severe swelling).
The oncologist following me through chemo was lovely, I have no problem with her personally at all, but evidently the professional advice on what action I should be taking or checks that should be happening consisted of the words "You poor thing". I just don't feel taken seriously or listened to. You'd think I'd at least be handed a pamphlet or something. During our last consult she literally said there was nothing much for her to do so she was "going to let [me] vent". I can vent on-line :( I need medical advice on this mountain of stuff happening to me, and I honestly thought that's why I was even here (and paying?). *sigh*
Tomorrow I get to meet my radio oncologist (who has been away as I've started it) and get to nag the poor lady's ear off about everything that has been paid no attention to on top of hear about how the dreaded radiotherapy fatigue with a little nausea to boot has started to set in.
I'll let you all know how it goes tomorrow and see how much of my mile long list was actually worth wanting to have checked out. :neutral:
Sorry about the super complainy-pants post, but I've had my fill of feeling like my pain is being ignored.
I have a new attending that was very on the ball and seemed to actually care how I was, even telling me that everything I was shrugging off and not pushing people about were pretty serious and I needed to be meaner about my pain.
For background: Over my last three oncology consultations I've reported 1. The development of clicking in my joints (I sounds like change rattling when I walk now) 2. Bad back pain (third month of it now), not 'a bit of back pain' I mean by the end of an hour or so I need to stretch, sit, or lie down. 3. The hormonal changes leaving me dizzy and unable to sleep (in night sweats - yep I came here for advice because I didn't get any from the doctor I told about it), and 4. That I'm experiencing what I really suspect is lymphedema on my left side (what else explains localised and progressively more severe swelling).
The oncologist following me through chemo was lovely, I have no problem with her personally at all, but evidently the professional advice on what action I should be taking or checks that should be happening consisted of the words "You poor thing". I just don't feel taken seriously or listened to. You'd think I'd at least be handed a pamphlet or something. During our last consult she literally said there was nothing much for her to do so she was "going to let [me] vent". I can vent on-line :( I need medical advice on this mountain of stuff happening to me, and I honestly thought that's why I was even here (and paying?). *sigh*
Tomorrow I get to meet my radio oncologist (who has been away as I've started it) and get to nag the poor lady's ear off about everything that has been paid no attention to on top of hear about how the dreaded radiotherapy fatigue with a little nausea to boot has started to set in.
I'll let you all know how it goes tomorrow and see how much of my mile long list was actually worth wanting to have checked out. :neutral:
Sorry about the super complainy-pants post, but I've had my fill of feeling like my pain is being ignored.