Forum Discussion
MKitty68
9 years agoMember
results after mastectomy & chemo plan
On 23rd May I had a skin & nipple sparing mastectomy, all went well with the surgery. My wound has healed well.
3 weeks post surgery I still have the drain in, finally today the output is down to 40ml, i'm hoping it's the same or less tomorrow so I can get it gone!
They removed all 17 lymph nodes and all 17 were cancerous. They were able to leave 1mm of healthy tissue between my cancerous spots & my chest wall. Originally there were 3 spots, but the Dr i saw said only two - apparently two had merged into the one. Estrogen & Progesterone positive, HER2 negative
I saw the Oncologist yesterday & have my chemo plan; I start chemo on 26th June. The plan is - Doxorubicin & Cyclophosphamide every 2 weeks for a total of 4 times. Following that, Paclitaxel every 2 weeks for a total of 4 times.
3 weeks post surgery I still have the drain in, finally today the output is down to 40ml, i'm hoping it's the same or less tomorrow so I can get it gone!
They removed all 17 lymph nodes and all 17 were cancerous. They were able to leave 1mm of healthy tissue between my cancerous spots & my chest wall. Originally there were 3 spots, but the Dr i saw said only two - apparently two had merged into the one. Estrogen & Progesterone positive, HER2 negative
I saw the Oncologist yesterday & have my chemo plan; I start chemo on 26th June. The plan is - Doxorubicin & Cyclophosphamide every 2 weeks for a total of 4 times. Following that, Paclitaxel every 2 weeks for a total of 4 times.
Following that will be radiation & hormone blockers for 5 years.
64 Replies
- AnonymousNot applicableBest of luck with chemo. I was nervous the night before. I've mentioned this in another post but I took a few things for chemo, including:
a bottle if water with ice cubes
thinly sliced apple / rice crackers
magazine/ipad
scarf
warm socks
I avoided hot drinks an hour before or after ( my oncologist told me to so that I avoided ulcers)
I also avoided soft drinks/ milk drinks etc the nurses offered.
I visualised a relaxing place like a beach when they were injecting me and I did this for radiotherapy too sometimes.
I also did one nice thing either before or after chemo. I look back at my first day of chemo with my sister where we stopped for sushi, a holiday during the first week of chemo and a mini break in the city after my last treatment. I only have 2 photos from chemo so my memories are of
The activities I did. I also just sat in a garden/ in the sunshine to feel better sometimes.
I don't know if any of this is useful, but it worked for me. Take care x - fairydustMember@LMK74 regarding hair loss. I think I must be one of the few people that did not shave my head. My hair just came out gradually. What I found most useful were cloth caps I wore to contain my hair at night so it didnt go everywhere. I got mine free from the cancer council shop. My eyebrows came out in stages.
I now have hair and eyebrows again. When you are in the middle of it it is confronting. Looking back I just got used to it.
My only advice is do what you can now. Stock up on food for freezer and pantry. - LMK74MemberGood idea, pack now. You may tolerate chemo really well, but the last thing you need while doing treatment is worrying about packing up a house. I hope chemo goes really well for you.
- MKitty68Member@LMK74 thanks Lisa. I'm booked to do my chemo at North Lakes, which is much closer to home for me at the moment. I will be moving in with my boyfriend once I get my tax return back. He's currently staying with his parents in Norman Park & works on that side of Bris, so we're looking for something on that side of town. Advantage for me is it will be a lot easier to get a job once treatments are over than it is on this side of town (Deception Bay) with a much shorter commute.
My lease here isn't up until 24th August, but I'll move sooner if we find something suitable. I just need to get my tax return so I can afford to move. I was paid until the end of my contract 7/7/17) + annual leave, but taxed at around 36%, leaving me rather short changed.
I'd rather not break my lease, but this house should be very easy for them to re-let, especially as I had them put in ceiling fans & an air conditioner early this year. I'm hoping that as it's so close to the end of my lease they'll just do a mutual termination of lease.
I just need to start the cull & pack now whilst I have some energy left. - LMK74MemberHi mkitty68, I was nervous as hell starting chemo and whilst it's not a pleasant experience it's not as bad as I expected. Yes my eyebrows and lashes are falling out but not much we can do. The chemo nurses are brilliant at the rwbh. I had tears rolling down my face for my first ac chemo as I was petrified from all the horrible stories I had read. Only two more to go. Don't stress, you will be ok.
Lisa x - MKitty68MemberThank you @Brenda5 for those tips, I'm a bit nervous about it.
- Brenda5MemberGee I have never heard of all the nodes positive. Thank goodness it's been detected before its metastasized. I had the exact same chemo except mine was every three weeks instead of two. Best tips I can give you is get a special card from your oncology doctor to fast track you in the hospital emergency ward should you need to go there. I didn't go to emergency but it did make me feel much more at ease to know there would be no hours and hours waiting if I had needed to go. Tip two is get yourself a good thermometer and if your temp rises to 38C or more go straight to emergency. I checked my temp twice a day every day and although i got close to 38C it went down after a few hours and I got over whatever infection my body was annoyed at. Follow those two tips and you will be right as rain. <3
- socodaMemberHey @MKitty68, Excellent that you've got your plan ready to go. Wishing you all the best with it. Xx
- ZoffielMemberPeople who've never done it say 'Its only hair.'
Mine's now growing back, slowly. I'm ridiculously pleased to have eyelashes--no more pointlessly stabbing the mascara wand into my eyeballs trying to make the best of the stragglers that hung on until nearly the end. - MKitty68MemberThank you everyone,
Marg, for me it also means getting through the chemo faster I think.
They have also told me that I will definitely lose my hair, and possibly my eyebrows & eyelashes as well. I know that i really going to affect me, but at least I am prepared for it to happen.