Forum Discussion
Hi there
Well done for coping so well so far. I can't comment on radiotherapy as I didn't have it, nor on scalp treatment as my head was fine after the hair fell out (sore and itchy before).
But Taxol! Like you, I had an easy run with A/C (4 treatments) - no nausea, no fatigue, worked right through. I did get a late side effect, after I had started Taxol (but almost certainly not caused by Taxol) - an arrhythmia, but that was probably a result (as so much in cancer probably is) of several issues - surgery, chemo, my age, and a bit of high blood pressure. Main thing is it is perfectly manageable, I have no unpleasant side effects, and not using much medication to keep my heart rate controlled.
Conventional wisdom is that if you tolerate A/C, Taxol will be easy. Taxol however affects the soft tissues - so don't be surprised at a sore, or bloody nose, dry eyes. Vaseline will help your nose, and the problem will stop when you stop the Taxol. I did get peripheral neuropathy - some contributors blame Herceptin for that, but I am quite sure it was Taxol and so were my oncology nurses. Starts with tingling, pins and needles in fingers and toes. It can get extreme - painful and makes it hard to do normal things (or if in the feet, to walk), so don't ignore it if it starts. Most people return to normal but it can take a long time. You may need your dosage adjusted. Then again, you may not get it at all. I found Vitamin B helped, but talk to your oncologist.
I lost my taste buds! Very good if you are trying to lose weight, as everything tasted of precisely nothing, except a few things - again conventional wisdom is to try spicy, flavoursome food, but the things I could actually taste were eggs, bananas, avocados and salad! Recovered almost immediately when I stopped treatment. With luck you will be fine. If you have some side effects, keep focused on the fact that every treatment brings you nearer to the end, of chemo at least.
Best of luck