Hi, I am likely going to start chemo possibly next week. It’s will be TC for three months. I am very worried about it of course. I would like very much to reduce my risk of peripheral neuropathy and wondered if there’s any advice on best things to use for hands and feet. Does anybody have any other advice or experiences from this sort of chemo?
Hi - I just saw your post and thought I would share with you. I had a 12 week course of Paclitaxel which I believe is similar (though not exactly the same) as TC along with immunotherapy. I am now having a course of Doxirubicin. I did get peripheral neuropathy in my hands and feet to the extent that I had to stop driving for a little while. This has improved since I stopped the Paclitaxel regimen but is still there a little bit in my feet - sometimes flaring a little more (I am able to drive again now). I didn't use the ice gloves or booties for much the same reason I never wore an ice cap - I just couldn't deal with the freezing situation on top of everything else. Your oncologist may be able to allay your fears a little if you speak with them. All the best with your treatment
I didn't do TC but peripheral neuropathy was a risk for my chemo too.
I would recommend using ice gloves and booties. They were provided by the hospital where I went last year.
I used them when I felt a hint of neuropathy and stopped using them when symptoms had consistently gone away. I'd recommend using them throughout as it was my experience (and a few friends too) that the peripheral neuropathy showed up more strongly after finishing chemo so perhaps if I had persevered with icing throughout this would have been minimised. It can be hard to keep the ice gloves and booties on so don't beat yourself up if you don't use them!
Thank you I appreciate your help. 🙂
Having had neuropathy start quickly my GP suggested a B12 injection which my oncology department gave to me which helped. Also would tell my acupuncturist and he worked on areas also x
Newwingstoo Thankyou for starting the conversation. While we wait for others to share their own lived experience, we thought you may find the below resources useful:
Listen to Podcast: Peripheral Neuropathy
eviQ also have a helpful factsheet Peripheral neuropathy during cancer treatment
Please feel free to contact BCNA's Helpline 1800 500 258 if we can assist further.
