Forum Discussion
shiney50
12 years agoMember
Radiation
I'm wondering if anyone has had radiation after their tumor has been removed?
My Oncology team have chosen to start radiation therapy for me this week.
If so, has the tumor re-occured for anyone.
I was diagnosed in early July 2014 with a Phyllodes tumor in the right breast. Lumpectomy was done 21st July to remove the tumor. Now radiaton.
I really would like to hear from others about this.
Thank you,
Shiney50
9 Replies
- NicolettaMember
I have been reading a few medical studies on phyllodes and they have indicated that recurrance rate is reduced with radiotherapy. I am 6 weeks post op and also had an anti-radiotherapy view before I read these studies . But given the options area limited and results are best if done soon after surgery, I am going to bite the bullet. I think I would kick myself if I had skipped it. I know there are some theories that radiotherapy triggers worse cancers later , but I'm not convinced. Interested to hear if others have looked into this.
- shiney50Member
Thank you so much
Yes the discomfort is now gone. Due to the high dose of radiation there was a fair amount of blistering that lasted about 3 weeks after radiation. Now all clear and there is a return of energy now.
shiney50
- TrenaMember
Hi Shiney50
I guess you have now completed the radiation. I was pleased to read that your discomfort is minimal, great news.
Take good care.
Trena
XO
- TrenaMember
Hi Shiney50
I guess you have now completed the radiation. I was pleased to read that your discomfort is minimal, great news.
Take good care.
Trena
XO
- shiney50Member
I have had 18 of my 25 radiation treatments after a lumpectomy and have been told it is an insurance policy against further tumors. I hope this turns out to be true.
Only reaction so far to radiation is a little discomfort from redness in areas around the breast that were exposed to sun over the years. A red and uncomfortable area under the breast. However with good skin preservation methods advised by the breast care nurses this has been minimised.
After coming from an attitude of " I will not have radiation" to accepting and realising it is the one thing I can do to help myself I feel it was worthwhile sharing this experience for those offered this treatment.
Dr Barth in USA has done studies and found radiation does reduce the risk of further tumors. Lets hope this is the case...
Shiney50
- shiney50Member
Hi Trena
Thanks I am told it is a good way to ensure not further tumours however not convinced and my family heard the doctor so I am going ahead with radiation starting on Wednesday this week.
Shiney50
- shiney50Member
Hi thanks
I will look for that facebook page.
Shiney50
- TrenaMember
Hi Shiney
Trena again. I had a malignant tumour removed via lumpectomy then followed up by mastectomy (sept 2013) to ensure good margins and that all was definitley removed. My Dr did not recommend readiation after the mastectomy.
I have heard of quite a few ladies particulary overseas getting radiation after surgery. Maybe it's beoming more popular. The FB support page the other ladies recommended sounds great.
Good luck with the radiation, thinking of you.
Trena XO
- bethybMember
I'm also part of the Phyllodes Support Group. It's great! I agree with onthemove, check it out.