Forum Discussion
Radiation Fibrosis Syndrome
Hi everyone!!!! I was diagnosed with BC last year. I had DCIS and IDC......I had conserving surgery partial mastectomy with a flap reconstruction done......I had my yearly follow up in June this year ...
Hi folks. Got lots of sympathy, things can suck for sure, we get awful diagnosis, months of feeling ropey from treatment, and then you think - great, got through that, now can I get on with my life ?
Yes of course .... but .....it's just not back to normal ......
Just seen physio, got lymphoedema in my breast, lingering neuropathy in my toes and fingers, (chemo finished12 m ago) and now..... likely fibrosis in ribs just underneath breast due to RT (finished 9 months ago). Of course I read that these (might) be an issue, but heck, do I have to have all three ?? 😊. However, got to say I am still alive, expecting a granddaughter on Christmas Day and well... lucky enough so far that simple OTC painkillers work well. And... relieved because there was me thinking metastases in bone or lung. Phew 😅. Mind you, I might think a little differently if I were younger and my original diagnosis wasn't quite so drastic.
Yes of course .... but .....it's just not back to normal ......
Just seen physio, got lymphoedema in my breast, lingering neuropathy in my toes and fingers, (chemo finished12 m ago) and now..... likely fibrosis in ribs just underneath breast due to RT (finished 9 months ago). Of course I read that these (might) be an issue, but heck, do I have to have all three ?? 😊. However, got to say I am still alive, expecting a granddaughter on Christmas Day and well... lucky enough so far that simple OTC painkillers work well. And... relieved because there was me thinking metastases in bone or lung. Phew 😅. Mind you, I might think a little differently if I were younger and my original diagnosis wasn't quite so drastic.