Radiation Fibrosis Syndrome
Hi everyone!!!! I was diagnosed with BC last year. I had DCIS and IDC......I had conserving surgery partial mastectomy with a flap reconstruction done......I had my yearly follow up in June this year ...
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Hullo @Angel61, I had full mastectomy November 2017, recovered fine, no pain or swelling (after major node clearance) then 6 weeks radiation and now 5 months later have exactly the same as you. Nobody has ever given it a name but radiation fibrosis makes perfect sense. I doubt that further surgery would do anything to help. I have to stretch a lot every morning in the shower and often wake up with the discomfort/pain during the night. If your specialist can give you something to assist the cellular inflammation, try it. I haven't had any interest from anyone about this. Physio is only interested in lymphedema which I don't have. Right through this BC experience I have got the impression that all they care about is your survival. Quality of life ... Well, make the best of it if you can. There is no real effort to make it clear that you will suffer unspecifiable disabilities and just have to put up with them. You will never be the same. It has taken me a long time to come to terms with this and although I am grateful for being as well as I am and having some time still to do things I value, I do think there is far too much waffle and not enough simple honesty about the consequences of treatment and the extent of the unknowns. I hope things get better for you soon!