Radiation burns how to treat

Totally agree, @lrb_03 .... there should be at least one qualified burns treatment nurse in every Cancer Centre/Rads Centre .... @MicheleR's treatment has really been totally unacceptable and I am so sorry it has been this bad for this long.

Have you been keeping pics of the burns?  I would suggest everyone with bad burns to do so.

I have just written off to the Fiona Wood Foundation in WA (she invented the liquid skin for burns victims) to see if Fiona & her team might be interested in looking into the treatment of Radiation Burns specifically - as it can be such a nasty type of burn and can leave people scarred forever - both mentally and physically.   I look forward to hearing back from them & will pass it on to you.  xx

Take care & have as good an Easter as you can. xx

Thanks @lrb_03.
Think i needed to vent. Im feeling a bit grumpy. Probably the whole 9 month slog and its still not over....

@MicheleR it always makes me mad and sad in equal measure when I hear of stories like yours.
Undertaking wound care should be considered part of your ongoing treatment, as the wounds are a direct result of your treatment. Rad Onc nurses should be specialists in that area but too often I hear of people having to work it out for themselves
My radiation burns weren't severe but I  believe that once they start to heal it happens quickly

Take care

Hi @lrb_03,

I had a telehealth. Mainly because it hurts to drive. I texted rad onc a photo. He said my side effects were severe. I think i needed reassurance that i was doing the right things and it would end sometime . He said i could arrange as many appts with him as i wanted. 

I agree that the nurses are a bit unhelpful. I attended a large organisation that treats public and private patients. Im private but it should not make a difference in the treatment. Pain is pain and care should be given where it is needed. I do wonder if the "trying to be a profitable business," interferes with the caring. Im sure they do their best but empathy should not be in short supply and once your treatment is over you should not be made to feel that they are too busy to care for your "normal" experience. Im not a trained health person and trying to decide how to look after wounds whilst in pain has been hard. Luckily my sister, who lives interstate, is a nurse and told me what dressings to buy so things stopped sticking. 

Anyhow, im told it will take time to heal. 

I have a surgeon appt thursday which will be interesting since he wont be able to touch me. He usually likes to admire his work and check for lumps. I do not know what he will say. 

Thanks for asking. It hasnt been pleasant but i think it will get better.

Michele

How did you go with the rad onc today @MicheleR . Hope you're starting to find some solutions.

Unfortunately, the nurses in my local public radiation oncology unit were less than helpful when I had my treatment a few years ago. From all accounts that I've heard recently, nothing's changed, sadly. The Radiation therapists were fantastic. Sometimes a wound care nurse through the community nurses can be useful 

Hi @Jane_Elizabeth,

Chemists in SA dont seem to know this drug. I have a consult with rads onc tomorrow. Will ask.

Thanks

Michele

Flamazine/flamigel. You'll be surprised how fast it heals. Good luck

Wow. A whole heap of blister spontaneously broke. Not sure if this is good or bad...

Great news @MicheleR! 👌🏻. Glad you’re feeling better. And happy birthday!! May you celebrate many more wonderful years with good health 🍀🎉🎂♥️

SO pleased to hear this.  Many happies xxx