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Jaime_r's avatar
Jaime_r
Member
11 years ago

Finished chemo today

Hi all

Im new to this group I was diagnosed with ibc in January while 37 weeks pregnant. My baby girl was induced the next day and I started chemo a week later. Today marks my last chemo after 8 cycles. I am now at the point of making a choice about reconstruction. My breast surgeon wants to remove one breast but I rely want both gone. Does anyone have any personal experience?

Thanks in advance

jaime

7 Replies

  • I had a single mastectomy when first diagnosis with breast cancer had chemo and then radiation then decided to have the other breast removed due that we had a few scares with lumps and waiting for the results was unreal. Have not wore my prosthesis for some years and don't miss them only thing is getting some clothes that look good.
  • Hi Jaime Wow, I think you're amazing having 4 small children & going through all of the treatment needed for IBC. I am almost 4 years post diagnosis & my surgeon was pleased that I decided to go for a double mastectomy due to the risk of my cancer returning in the other side. I decided not to have reconstruction as I wanted any return of the cancer to be easily detected. I had large breasts originally & I was happy to become flat chested. I was lucky also that my husband was supportive of me whatever my decision. I have a pair of prosthesis I slot into my mastectomy bras when I want to look womanly or fill out certain clothing but most of the time, I don't wear them. It is liberating to just wear a singlet top & not have to worry about a bra. I don't have the expense of mammograms either. Hope this helps & best of luck with the remainder of your treatment.
  • I had a mastectomy when I was diagnosed 7 years ago. I didn't have a reconstruction as my treatment still continues. I regret that I didn't have both breasts removed. Firstly, it would just be more convenient than having to wear a prosthesis to look even all the time. Also, I am having regular mammograms and ultra sounds which is a real nuisance (and expense). Hope this helps, just another opinion! Hope you ladies are all doing well X
  • Thanks Meg

    That was very helpful.  I guess i am anxious about it coming back especially with 4 small children.  I don't and to worry about it.  Also i don't want to go as big as i was so i don't want there to be a notable difference. 

     

    Thanks again for the information

  • I finished chemo this week and am going in for a tissue-sparing mastectomy next week. I am going to have reconstruction after radiotherapy. I feel comfortable with a single breast reconstruction. It may not be matched, but I'm happy to keep an original. Your circumstances may be different but here are my reasons:

    - I feel that the risk of cancer arriving in the unaffected breast will be low, lower in any case compared to the risk of recurrence that I've already got. My family does not have any history of breast cancer.

    -I'm having a modified TRAM and not implants due to radiotherapy, so there's plenty of tissue and less likelihood of one side of the reconstruction not actually taking.

    -There's probably a good reason why surgeons don't want to encourage bilateral mastectomies except where there's a good case for it. I assume it's because of reduced operating times, quicker recovery, higher success rates. 

    -I have low anxiety about recurrence.

    -I really want to minimise surgery even though I'm going ahead with reconstruction which will involve more than one op.

    -I don't mind that the breasts will have differences, I kind of just want them evenly weighted, evenly shaped so I can return to an active lifestyle without worrying about prostheses. 

    In saying all of this, I have had some really anxious weeks worrying about the physical consequences of having multiple ops and residual scar tissue and potential pain or stiffness and annoying tummy weakness, but now that I've made my decision, I will go with the flow now and manage whatever comes.

    I hope you get good advice from the women who have gone with the bilateral reconstruction. I met with a group of BC women last week and those who have had reconstruction are happy that they did. I'm also sure that those who haven't are also happy with how they are going too! :)

    ETA: And congratulations on finishing chemo! Yay! Wow and with a new baby too!

    Cheers, Meg xxx

     

     

     

  • I finished chemo this week and am going in for a tissue-sparing mastectomy next week. I am going to have reconstruction after radiotherapy. I feel comfortable with a single breast reconstruction. It may not be matched, but I'm happy to keep an original. Your circumstances may be different but here are my reasons:

    - I feel that the risk of cancer arriving in the unaffected breast will be low, lower in any case compared to the risk of recurrence that I've already got. My family does not have any history of breast cancer.

    -I'm having a modified TRAM and not implants due to radiotherapy, so there's plenty of tissue and less likelihood of one side of the reconstruction not actually taking.

    -There's probably a good reason why surgeons don't want to encourage bilateral mastectomies except where there's a good case for it. I assume it's because of reduced operating times, quicker recovery, higher success rates. 

    -I have low anxiety about recurrence.

    -I really want to minimise surgery even though I'm going ahead with reconstruction which will involve more than one op.

    -I don't mind that the breasts will have differences, I kind of just want them evenly weighted, evenly shaped so I can return to an active lifestyle without worrying about prostheses. 

    In saying all of this, I have had some really anxious weeks worrying about the physical consequences of having multiple ops and residual scar tissue and potential pain or stiffness and annoying tummy weakness, but now that I've made my decision, I will go with the flow now and manage whatever comes.

    I hope you get good advice from the women who have gone with the bilateral reconstruction. I met with a group of BC women last week and those who have had reconstruction are happy that they did. I'm also sure that those who haven't are also happy with how they are going too! :)

    ETA: And congratulations on finishing chemo! Yay! Wow and with a new baby too!

    Cheers, Meg xxx

     

     

     

  • Thanks Robyn for u reply. It nice to see how people feel about their decisions. I wish u all the best.