Forum Discussion

terrymoore's avatar
13 years ago

chemo sucks

Im on my second round of chemo and day 5.  Im to be given 4 rounds of IV chemo 21 days apart and round one wasnt too bad apart from a little fatique and a UTI after diahorrea. I didnt lose all my hair and my eye brows are still intact.

This round of chemo is horrible i cant find any energy Im so exhausted. I feel like all my muscles are so tired and I ache all over. All I can do is sleep and spend a bit of time on the PC then back to bed. I so want to get on with life and excercise and be healthy but its just impossible at present. Please someone tell me this is what everyone else has too. PS I dont have a temp. gee this is awful

  • Hey @Cathy_b1961, so sorry you're having such an awful time of it on chemo. Take it one day at a time and soon it will be over.

    This is a really old thread that hasn't been posted in since 2015, so @terrymoore and @SueVR may not be checking in here anymore. If you do want someone in particular to see your post, you need to pop the @ symbol before their name.  :)

    Big hug, K xox
  • SueVr omg Sue i can hardly bear going thru 4 treatments much less your 16. Hang in there hun thoughts and prayers your way.
  • terrymoore my first round of chemo went well. After all the stories and warnings I was surprised, however round 2 hit me like a Mack truck . Four days in hospital with 38.9 temps better now. days 4 to 8 seem to be the pitts. Onco has dialled back round 3 by 20% and it is much better. Day 4 no temps just all the other things intense fatique insomnia, bit cranky , sorry hubby, muscle aches. One more round to go, hanging in.
  • Hi Terry, I've just finished my 4th chemo and whilst the nausea improved on the 2nd the tiredness seemed worse. My veins have gotten harder to find. Each chemo though has been slightly different, day 4-5 is definitely the worst. The 4th chemo has been the best of them. I'm due to start Taxol and Herceptin on the 8/4 and been told these side effects are not as severe. Hmm we'll see.
  • howdy sue, oh you poor darling I couldnt imagine having 16 rounds agghh too much to even think about. We were talking about having babies and the pain we endure today well i think Chemo is up there on a parr only lasts longer. i do so hope you are going to be ok now i so want a clear head for you and a body that feels alive and not just being dragged around. i wish you normal and bright and happy . cheers Terry

  • Hi Terri,

    I am about have my 16th round chemo this Friday and I am just like you each round. Good news for you is that you have 3 weeks between so will have some better days before they "poison" you again (that's what I like to call it). I find that if you try to do too much you only feel worse, it has taken me a long time to finally admit that I need help from my friends. Let your loved ones and family help you, don't be too proud to ask for help.

    I tell my Onc that I only visit him so he can make me feel like crap again. But for me this will be my last (hopefully) and I have been told that Radiation is nowhere near as bad.

    After almost 5 months I am so looking forward to getting rid of the foggy head and wanting to sleep all the time. But as Janet said it does pass quickly and now you are half way through so look forward to the end. Sue

  • thankyou Janet so much for answering . Yes I guess what you said is what I suspected. So nice of you to reply though really appreciate that someone out there knows what im on about Im sure some people think oh just get on with it or if you go out youll feel better agh! if only they knewi fake it most of the time trying to make others comfortable but this time i cant im so weak i just want to sleep and youre right i will because thats what i need

    thanks so much again and yes i am lucky to be alive and here this will pass and i will be ok

  • Hi Terry, Yes, I think what you are going through is pretty normal. Last year I had four rounds of chemo, 21 days apart like you. With each one I found that around day 4 and 5 was the worst - so tired I could hardly get out of bed like you describe. It is very frustrating when you're used being busy and active. Unfortunately you've just got to ride out it, let yourself rest, let your family and friends take care of you.

    On the plus side, you will probably feel a bit better in a couple of days. It's cyclical thing. You have the chemo, it takes a couple of days to really kick in and you feel terrible and then you gradually feel better and better until the next one. I won't lie to you though, even on your best days during chemo you probably won't feel as energtic as you normally would. There was always a lingering lethergy, for me anyway. And that tiredness and lethargy got more pronounced with each treatment.

    It does suck, I know, but four is not that much compared to what some women have to endure. You will get through it. Be kind to yourself and look at it as a time to take a much needed rest - read books, watch some mindless TV or some DVDs, just sleep if you need to. It's a drag, but it passes and in a few months you will feel good again. Take care, Janet. :)