Beery

Take care of yourself, and try to rest - give your body a chance to heal.

Best wishes.... Pam

Take care of yourself, and try to rest - give your body a chance to heal.

Best wishes.... Pam

Discharged from hospital yesterday. Still very tired. Drs have me on prednisione, antiobiotics and taken me off the Afinitor for the time being.  My electrolytes were very low, especially potassium and phosphates and of course the wcc were very low.  So was given an iv drip of potassium and effervessent phosphate tablets 4 times a day. Once the potassium was completed, fluids were given.

I might have to rethink about working full time, as I'm taking too much time off work at the moment.

Now that I have a little time on my hands, will checkout the Aussie website you have recommended while laying about recouperating

 

Discharged from hospital yesterday. Still very tired. Drs have me on prednisione, antiobiotics and taken me off the Afinitor for the time being.  My electrolytes were very low, especially potassium and phosphates and of course the wcc were very low.  So was given an iv drip of potassium and effervessent phosphate tablets 4 times a day. Once the potassium was completed, fluids were given.

I might have to rethink about working full time, as I'm taking too much time off work at the moment.

Now that I have a little time on my hands, will checkout the Aussie website you have recommended while laying about recouperating

 

Discharged from hospital yesterday. Still very tired. Drs have me on prednisione, antiobiotics and taken me off the Afinitor for the time being.  My electrolytes were very low, especially potassium and phosphates and of course the wcc were very low.  So was given an iv drip of potassium and effervessent phosphate tablets 4 times a day. Once the potassium was completed, fluids were given.

I might have to rethink about working full time, as I'm taking too much time off work at the moment.

Now that I have a little time on my hands, will checkout the Aussie website you have recommended while laying about recouperating

 

Hi Pam,  

Yes I'm as surprised as you are in not getting any more responses.  Thanks for replying anyway. So how invasive are your bone mets?  After discovery and fusion of L3 we had had a lot of trouble finding an agreeable hormone. Tried aromasin then tamoxifen and now exemestane.  Zometa started 4 months ago with decreasing side effects. The afinitor (10mg) has been the main problem.  I'm now in hospital with what looks like side effects from it.  Once everything is sorted and back on track will go back on 5mg of afinitor.  The worst part was the breathlessness and inability to do anything.  Couldn't walk more than 50 metres without huffing and puffing.

Oncologist admitted me to hospital as he was very concerned, for which i am thankful.   

My bone mets began in L3 which we thought was where it was contained. But over the 3 mth interval from ct bne scan previously mets progressed to T12,T11,T9,T8,and C5 with spot n ribs posteriorly in T9 and T8.  So it was very disconcerting to hear the results.

Having obs done so will check out till later, Sue

Hi Pam,  

Yes I'm as surprised as you are in not getting any more responses.  Thanks for replying anyway. So how invasive are your bone mets?  After discovery and fusion of L3 we had had a lot of trouble finding an agreeable hormone. Tried aromasin then tamoxifen and now exemestane.  Zometa started 4 months ago with decreasing side effects. The afinitor (10mg) has been the main problem.  I'm now in hospital with what looks like side effects from it.  Once everything is sorted and back on track will go back on 5mg of afinitor.  The worst part was the breathlessness and inability to do anything.  Couldn't walk more than 50 metres without huffing and puffing.

Oncologist admitted me to hospital as he was very concerned, for which i am thankful.   

My bone mets began in L3 which we thought was where it was contained. But over the 3 mth interval from ct bne scan previously mets progressed to T12,T11,T9,T8,and C5 with spot n ribs posteriorly in T9 and T8.  So it was very disconcerting to hear the results.

Having obs done so will check out till later, Sue

Hi Beery,

I haven't had any experience with Affinitor, though I believe it will soon be on the PBS and have heard about the symptoms you describe. I am surprised nobody else has picked up on your post. You might like to try on the Aussie breast cancer forum as well.

I also have bone mets, but my treatment so far has included Taxotere, Herceptin,  Denosumab and Tamoxifen. People are so different in their needs and response to treatment, but I know there are other ABC women on the same regime as you.

I hope your scan and oncologist appointment went well, in that you know what moves to make next. Let us know what happens.

Best wishes.... Pam

Hi Beery,

I haven't had any experience with Affinitor, though I believe it will soon be on the PBS and have heard about the symptoms you describe. I am surprised nobody else has picked up on your post. You might like to try on the Aussie breast cancer forum as well.

I also have bone mets, but my treatment so far has included Taxotere, Herceptin,  Denosumab and Tamoxifen. People are so different in their needs and response to treatment, but I know there are other ABC women on the same regime as you.

I hope your scan and oncologist appointment went well, in that you know what moves to make next. Let us know what happens.

Best wishes.... Pam