Forum Discussion
Unicornkisses
8 years agoMember
@LMK74 has the Oncologist given you the fact sheets listing the possible side effects?
I know reading these can be good or bad.
Mine did go through and highlight with me which ones were the most likely and how we would deal with them, this can be reassuring.
I did find a good drug website that listed the side effects and the percentage of people who experienced them, I found that helpful.
I went back to that website for each of the different drugs I was prescribed and printed off the pages.
Knowing that only 10% of people or less experienced a certain sideeffect I found comforting.
Other than that, except for a couple of other online support groups that came up when I googled a question, I left Dr Google alone.
If you want helpful sites, the main BCNA site has a section on resources which has a download page with reputable websites listed on it.
Thank you for your experience on Paclitaxel, I am not sure how it differs from Docitaxel either. But your side effects are also listed in the information sheets on it, so I guess they are similar.
I think my main fear is how I will react to the drug on infusion and immediately after, as I did react to the FEC on infusion.
I am on Neulasta for all infusions which I am happy about, challenging to give myself but make the recovery much better and I don't have to worry about going out in public, or suddenly being landed in hospital, quite as much.
So if you have to have them, they are not the devil that I had feared, as long as you take the Clarytyne for about a week after and manage with Panadol if you get pain.
I don't know where you are, but on the Central Coast NSW our Cancer Care Central Coast support runs workshops, exercise groups and Tai Chi during the year.
Friday we had a Stress workshop where we did a relaxation excercise, designed to minimise a stressful situation and lower stress levels.
As a coincidence I was going for a brain MRI Friday afternoon that I was terrified about, I am very claustrophobic, I took Valium, which might have helped a little, but I went through the exercise over and over throughout the MRI, it wasn't perfect, but it got me through it.
Maybe you can see if there are such groups run in your area, they would help give you skills to help with your anxiety.
And don't forget you are eligible for the Chronic Care Mental Health Management Plan giving you 12 psychologist visits each year. Organised through your GP.
The information on this is also in the downloads on the Resources page.
We are paying all these Medicare levies, might as well get to use some of it.
If you need anything to get you through any treatment, use it.
There are no awards for getting through cancer treatment without additional help.
If you need Valium and can use it, do so. If you need strong pain killers use them.
Be much kinder to yourself than you normally would be.
Thinking of you, Jennie
I know reading these can be good or bad.
Mine did go through and highlight with me which ones were the most likely and how we would deal with them, this can be reassuring.
I did find a good drug website that listed the side effects and the percentage of people who experienced them, I found that helpful.
I went back to that website for each of the different drugs I was prescribed and printed off the pages.
Knowing that only 10% of people or less experienced a certain sideeffect I found comforting.
Other than that, except for a couple of other online support groups that came up when I googled a question, I left Dr Google alone.
If you want helpful sites, the main BCNA site has a section on resources which has a download page with reputable websites listed on it.
Thank you for your experience on Paclitaxel, I am not sure how it differs from Docitaxel either. But your side effects are also listed in the information sheets on it, so I guess they are similar.
I think my main fear is how I will react to the drug on infusion and immediately after, as I did react to the FEC on infusion.
I am on Neulasta for all infusions which I am happy about, challenging to give myself but make the recovery much better and I don't have to worry about going out in public, or suddenly being landed in hospital, quite as much.
So if you have to have them, they are not the devil that I had feared, as long as you take the Clarytyne for about a week after and manage with Panadol if you get pain.
I don't know where you are, but on the Central Coast NSW our Cancer Care Central Coast support runs workshops, exercise groups and Tai Chi during the year.
Friday we had a Stress workshop where we did a relaxation excercise, designed to minimise a stressful situation and lower stress levels.
As a coincidence I was going for a brain MRI Friday afternoon that I was terrified about, I am very claustrophobic, I took Valium, which might have helped a little, but I went through the exercise over and over throughout the MRI, it wasn't perfect, but it got me through it.
Maybe you can see if there are such groups run in your area, they would help give you skills to help with your anxiety.
And don't forget you are eligible for the Chronic Care Mental Health Management Plan giving you 12 psychologist visits each year. Organised through your GP.
The information on this is also in the downloads on the Resources page.
We are paying all these Medicare levies, might as well get to use some of it.
If you need anything to get you through any treatment, use it.
There are no awards for getting through cancer treatment without additional help.
If you need Valium and can use it, do so. If you need strong pain killers use them.
Be much kinder to yourself than you normally would be.
Thinking of you, Jennie