Forum Discussion
Dandelion
9 years agoMember
1 lymph node involvement opted for Left side Radiation after a mastectom with tissue expander
hi all, I'm on my day 4 of radiation and slowing getting the swing of breath and hold (to protect my heart) feeling less stressed about that.
I have noticed my skin on spots to become extra dry almost like leather feeling. I thought this would be too early for symptoms and wonder if it's to do with the horrible sorboleen cream they gave me or because I have a tissue expander in.
It feels like it sits wet on your skin and not obsorb.
Is radiation on a mastectomy more pron to skin damage and is there a miracle cream out there?
I'm questioning how on earth will I get through the next 21 sessions .
I have noticed my skin on spots to become extra dry almost like leather feeling. I thought this would be too early for symptoms and wonder if it's to do with the horrible sorboleen cream they gave me or because I have a tissue expander in.
It feels like it sits wet on your skin and not obsorb.
Is radiation on a mastectomy more pron to skin damage and is there a miracle cream out there?
I'm questioning how on earth will I get through the next 21 sessions .
14 Replies
- DandelionMember@Unicornkisses, now that I'm saving $1000s like @Glemmis says I should treat myself with the rest of the range x
- UnicornkissesMemberLove the moo goo. I use the shower wash and the udder cream after a shower. The lip salve is also excellent.
I have Rosacea and the udder cream is excellent, no reaction at all. - GlemmisMemberEnjoy those baths @Dandelion! I did chemo private & I wasn't out of pocket at all, even oncologist bulk billed but I have heard doing radio privately can leave you out of pocket by thousands. That is an awful lot of Moo Goo LOL
- DandelionMemberHow annoying @Glemmis most of my post disappeared again grr .
Thanks for the heads up with the moo goo , I'm going to do moo goo baths just like you did with the sorb cream . Just feels so much different hey !!!!
Carnt believe we public get the shitty toxic sorb cream and private get the moo !!
In debt from going private for the mastectomy so happy to go public and buy my own cream :) - DandelionMemberYay @Glemmis that is brilliant
- GlemmisMemberThanks @Dandelion, all done! After radio I had an app with lymphodema specialist & she said not to use sorbolene as it sits on top of skin but to use Moo Goo udder cream. She said public use sorbolene & private Moo Goo so now will use that even though I have finished.
- DandelionMember@glemmis woot woot :) thinking of you with your last session today x
hi @LucyE, I have heard about the calendula cream . Iv now started with the moo goo and feels really nice but I actually can invision my bedroom dresser with a variety of moisturisers :) never been one for that in the past but loving it now - AnonymousNot applicableI used calendula cream and it was amazing. I still use it almost 18 months after radiotherapy as a general moisturiser. I get it from the health food shops and it is in a blue and white tube and costs around $15. It isn't to often scented. The nurse at the radiotherapy clinic gave me a range of creams during radiotherapy.
- GlemmisMemberThat's great you have a solution. It is a very greasy cream & I haven't used it as much as I should, interesting how different the hospitals are in their practices. One more session on Wed & that's it. They told me today to keep using the Novosone cream for a week afterwards as the redness can get worse before it gets better.
- DandelionMember@Glemmis, I think I worked out what happened to the remainder of the message I sent you . My apologies, I didn't save all and most of it deleted.
I spoke with the nurse today which is in the above comments . Thanks for your advise .
Wow u think you have finished all your rads or is it one to go ? How exciting . Well done to you it must feel fabulous x