OMG @roylej - I am so sorry to hear this - it is NOT the standard of care that any of us would expect or necessarily accept :(
The Hormone therapy DEFINITELY gives you aches & pains - I went on to Medicinal Cannabis Oil for mine (as it was severe) but I have recently gone off the oil, to see how I would go without it - and so far, so good! I have the occasional ache but not as devastating as before .... but they usually say that if it goes to your bones (ie metastasises) - the ache is 'different' - sort of more 'deep seated' - just 'different'. I had 'similar' aches (particularly at night) last year & my Onc sent me to the Nuclear Medicine dept for in-depth full body scans. .... all on Medicare ....
How long have you been on AIs? Some find that the aches & pains subside after 'time' - it's just that everyone's 'time' ... varies! :(
Where abouts are you? State/town? We may have members nearby who can point you to specific services available to you there? You can add it in your 'profile' ..... And you ARE able to change Oncs as well, (I did!) particularly if you find that yours isn't as supportive of you as they should be - and members may be able to point you to a different centre for support if they know what area you are in. xx
Also, jump onto this thread for some links on the blog that you might like to check out ....
https://onlinenetwork.bcna.org.au/discussion/23961/welcome-new-members#latesttake care & if you start feeling REALLY down & sad about what's happening -
please ring the Helpline (number at the top of the page) tomorrow and chat with someone - or contact your Cancer centre who should be able to put you onto someone to help you work thru your concerns. You DON'T have to do this on your own xx
