SELF CHECKING AFTER A DOUBLE MASTECTOMY AND LOBULAR CANCER
Hi all, I have just had my reconstruction which hasn't been successful..(that's another long story) but I am wanting to know if any one had Lobular Cancer , double mastectomy and breast implants? I was booked in for an MRI and my surgeon canceled this due to me having my tissue removed in both breasts, she then told me I have to self check my boobs as there is no screening etc. Again I left the hospital appointment with no clue how to do this self checking, and my anxiety has hit the roof thinking... I had no lumps in my breast that I felt and the mammogram picked up calcifctions not my cancer, and I was then told I have the 'Sneaky Cancer' So how do I know if the cancer returns? if technology did not pick this up, how do I do this to 'prevent' this going to my lymph.(The breast Care nurse stated that I will feel a lump in my lymph) But I don't want to get to the stage of it returning in my lymph.. Also I have the Zoledex injections every 28 days as I was high risk as near my chest wall.... how do I check the chest wall etc? My breast care nurse said to speak to my oncologist at my next appointment, to show me how to test myself, but im wondering if anyone else had a double mastectomy with lobular and how is the after care with testing? Thanks and hope you are all keeping well xx373ViewsSign in to react to this post15Comments
Confirmed BRCA2 gene carrier, 29 year old. Reconstructive surgery discussion re:surgeons etc
Hello everyone, I am 29 years old. I got tested and carry the BRCA2 gene after my aunty developed ovarian cancer. I am pretty confident and sure I would like to proceed down the preventative bilateral mastectomy route. I am in fact a nurse but have been living in England for the last 4 years. I plan to come home next year for my 30th and reconstruction! what an event to enter my 30th year! Please can anyone recommend any fantastic preferably female oncoplastic breast surgeons in Melbourne? Public or private. Has anyone done the same this as me and have had a preventative mastectomy? I would love to get in contact with someone in the same boat as me. Thanks :)ViewsSign in to react to this postComments
Whats happening in choosing breast recontruction
Hi all, If you haven't been over to our group lately here's a snapshot of our latest posts. We have a new member having her recon on Monday Questions about recovery pain after implants Another member struggling after losing an implant A post from a member counting down to her DIEP reconstruction Mel is almost at the finish line getting her Nipples tattooed next week and another member with questions about post op nipple care As always we have very generous members adding to our growing PHOTO STORIES announcement. This is such a great place to start if you are wondering realistically about outcomes. We are so very lucky so many of our members very generously share their personal stories If your aren't a member and would like to join just click here. Don't forget our group is private so you need to visit to read posts. Please if you think you can offer some words of wisdom, please do, or just pop over and say hi. Have a great weekend all Paula and the team Jane @jane221 Chris @chorsell Alex @alexinbrisbane, and Louie @LouiseTurnerViewsSign in to react to this postComments
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