Forum Discussion
djmill
14 years agoMember
Diep Flap
I wanted to post a positive experience about having a reconstruction done via diep flap. I had a lumpectomy where the lower portion - a good portion - of my right breast was removed in April 2010. My breast cancer was diagnosed early but the surgeon took a wide incision and my breast ended up looking like a capsicum - or so my girls tell me. After four lots of chemo and radiation, I decided to have my breast reconstructed. It was not an easy decision as I was tormented by the thought people would think I was vain. I showed my breast to those who mattered and everyone who saw it said go right ahead.
Then I made the mistake of consulting Dr Google. Pretty well everything I read was a horror story. Barbaric was the word that come up pretty frequently. I saw my plastic surgeon, a great calm level headed gorgeous guy, Gerard Bayley in Brisbane. He calmly stated that none of his patients had written on the internet. He told me very matter of factly that the first day I would feel like I had been hit by a truck, the second day by a car and the third day I would be on the road to recovery. I got measured for a corset and bra. He explained the procedure. I had a couple of xrays and it seemed as if there were valid blood vessels to use for the removal of the flap and insertion into my breast.
The next few weeks I must admit I was extremely nervous. Very worried about what was ahead. I was having the op in early December and had a frantic rush to get Christmas presents organised etc. My husband's birthday is on December 24 and my daughter on December 28 so I also wanted to get that organised as well as I imagined myself as totally incapacitated for months.
The op commenced with Dr Bayley drawing on my stomach above my belly button and down to the pubic line. I said what's that and he told me that was what he would take out. Had a long talk with the anaethesist and it would be a long op. Seven and a half hours later I woke up. No pain really as that is well controlled. I had my corset on and a special dressing on my breast. I didn't have a need at that stage to look at it. I thought I would spend a couple of days in the ICU but instead went straight to the ward as the op had been very successful.
For the next two days the flap had to be checked every hour. It was hard. You basically doze all day and night. I got very uncomfortable in the bed and actually slept sitting up for two nights. Lots of meds and injections. A self adminstered pump for the pain. I had a reaction to morphine - vomiting - not pleasant with a dissected stomach muscle and a cut from hipbone to hipbone. The physio came on the day after. It really was about 12 hours after the op to get me out of bed. He took great care in the preparation of getting me up. I must admit I didn't mind getting out of bed. It wasn't nice cause I was on the "hit by the truck" day but I knew it had to be done.
The second day after was alright but I was still very uncomfortable in the bed. The flap was taking and I just kept thinking, "This will all be over soon". The third day I hit a wall. My IV feed failed and I had to go to Xray and get a pic line installed. Not what I felt like doing. I was upset and knew without a shadow of a doubt I would never be out of hospital. Through all this my husband and family were amazing. They were there for me all the time. I needed that this day.
On the fourth day, a wonderful nurse came to me early in the morning. By now you are on two hourly checks. Not really much better. She cleaned me up, got me out of bed, said come on my rounds with me and I had a long walk which I badly needed. I had slept in a chair now for three nights, had about six tubes and drains coming out of me, hadn't showered since the op, my dressing was falling off my breast. I was extremely uncomfortable and this was what I needed to do. I turned the corner that morning.
On the fifth day, drains and tubes started decreasing. I begged the nurse to take off the thigh high compression stockings. They were cutting into me badly. Dr Bayley pointed out to me the error of my ways. Now the big one, my bowels moved that night. Not pleasant but necessary. I had a sore back for two days after this mammoth effort.
Sixth day, I was nearly tube free. One drain left in, I think. My stomach wound had been cleaned and redressed. I had my bra to wear. Dr Bayley came in and said, "What are you going to do today?" "Go home I hope". "I don't see any reason why not." Yes. I rang my husband, had final drains removed, had that first wonderful shower after the op and washed my hair and home I came.
It was great. Now mind you I wasn't fully recovered. Still a way to go. Our bedroom is upstairs - 14 of them - but that was OK. I could get around. Got tired very quickly. Walked bent over for a while. Slept with the help of some pain meds - just Panadol. But could make a coffee, check my emails, do some basic housework. Christmas was fine. I actually made one of the courses for 15 people.
Yesterday I had my final appointment with the plastic surgeon. He was happy with my development. I have a flat stomach. Two boobs that look exactly the same.
Would I do it again? I would think long and hard but probably no. I am glad I did it though as the end result was fabulous. Now I was fortunate - no infections, wonderful support, great doctor, excellent result. But this is my story of having the diep flap. I hope yours is similar. Good luck.
39 Replies
- ParishaMember
Diane,
Thank you so much for your message. Surgery is comming up quick. I dont need to tell you how happy I will be to put this all behind me! I actually have met a woman who I was able to sit down and pick her brain on all the specifics on the DIEP Flap and that was helpful. My husband and I are going to attend a class where all of the women have had various types of reconstruction and ask questions too! This site has been a wealth of support and encouragement for us. How long were you off of work?
- ParishaMember
Diane,
Thank you so much for your message. Surgery is comming up quick. I dont need to tell you how happy I will be to put this all behind me! I actually have met a woman who I was able to sit down and pick her brain on all the specifics on the DIEP Flap and that was helpful. My husband and I are going to attend a class where all of the women have had various types of reconstruction and ask questions too! This site has been a wealth of support and encouragement for us. How long were you off of work?
- DeeayMemberSo glad all these descriptions helped you! No worries at all about 'being under' for so long. I was worried too but I had absolutely no side effects and was awake in the ward about 30mins later! They monitor you so well nowadays that they only give enough anaesthetic to keep you under and towards the end of the op they lighten it so you come out easily. The pain is all managed well so not bad at all. It's mainly the limitations you have. You can't bend, turn, stretch for things etc. Sleeping on your side is hard for about 4 weeks. That's the difficult, sore part. Painkillers work! Just don't have too much morphine like I did! Good luck! It will be fine! Diane
- ParishaMember
I am scheduled for a bi-laterial DIEP Flap November 30th and you have no idea how helpful this was! You can read, read and read more but to hear first hand accounts is so much more meaningful! I am not so nervous about the pain afterward (as I know it will be hell) but more nervous for being under for so long.... any thoughts?
- DeeayMemberAlthough the operation is huge and recovery long I am so glad I did this. My breasts are becoming better every day as the swelling goes and incisions heal. I have a cleavage and nice fullness above the bra line now. I feel so confident in my clothes now, especially with the flat tummy! It's 4 weeks now since my double Diep and I thank God every day for my wonderful surgeon who helped me reclaim my self image. I'm not sure if it would be a good idea to have a bilateral mastectomy and then double Diep at the same time though. I have had no major problems but I believe risks increase if you do both at the same time. It's too much for the body to cope with. Especially if you have to go on and have Chemo and radiation. I could never have coped!! I waited about a year which was good healing time after my mastectomy and treatment. Good luck Louise. If you want another opinion I'd recommend Dr Pennington. He's in Macquarie St but does the procedure at Macquarie and Strathfield Hospitals. Only private patients.
- DeeayMemberAlthough the operation is huge and recovery long I am so glad I did this. My breasts are becoming better every day as the swelling goes and incisions heal. I have a cleavage and nice fullness above the bra line now. I feel so confident in my clothes now, especially with the flat tummy! It's 4 weeks now since my double Diep and I thank God every day for my wonderful surgeon who helped me reclaim my self image. I'm not sure if it would be a good idea to have a bilateral mastectomy and then double Diep at the same time though. I have had no major problems but I believe risks increase if you do both at the same time. It's too much for the body to cope with. Especially if you have to go on and have Chemo and radiation. I could never have coped!! I waited about a year which was good healing time after my mastectomy and treatment. Good luck Louise. If you want another opinion I'd recommend Dr Pennington. He's in Macquarie St but does the procedure at Macquarie and Strathfield Hospitals. Only private patients.
- LouiseTurnerIn MemoriamHi ladies, thank you, thank you, thank you. I am researching my options and DIEP seems to be the Rolls Royce procedure right now. So glad to hear positive and realistic accounts of your surgeries. I have an appointment at Macquarie Uni clinic with Dr Hussain in Nov. When looking into reconstruction, it's really hard to get ladies thoughts months and years down the track, to see if there is any regret or long term negative aspects. I am so pleased to have found this blog. Thanks for sharing. Louie
- LouiseTurnerIn MemoriamHi ladies, thank you, thank you, thank you. I am researching my options and DIEP seems to be the Rolls Royce procedure right now. So glad to hear positive and realistic accounts of your surgeries. I have an appointment at Macquarie Uni clinic with Dr Hussain in Nov. When looking into reconstruction, it's really hard to get ladies thoughts months and years down the track, to see if there is any regret or long term negative aspects. I am so pleased to have found this blog. Thanks for sharing. Louie
- DeeayMemberHi Ladies, My op was postponed from August 22 to Sept 10 as Dr P got the flu! I ended up at Macquarie Uni hospital which was just great. The actual op was 13 hours for a bi-lateral DIEP flap. I was monitored every 30 minutes for about 48 hours, then hourly, then finally four hourly. I also had 6 drains in, the drip with pain relief button, a catheter and oxygen. The morphine made me also vomit on the third day so I suggest you don't keep pressing the magic button unless you need it! My blood pressure was very low the second day so the Physio didn't get me out of bed until the third day. The catheter came out the fourth day and I was so afraid I wouldn't be able to get out of bed, let alone walk on my own to the toilet! But.... Each time I did it became easier and I am truly amazed at the human body's capacity to cope and to heal. I was in hospital for 10 days. (I stretched it an extra day). I've been home a few days now and am still very tired. Everything exhausts me but I'm trying to walk outside each day and I hope to drive at the end of the week. I'm also really happy with the results. I have nice round, firm high breasts, like a 24 year old, not a 54year old! I see Dr P on Friday for a check up. All my dressings were removed before I left hospital and the stitches are dissolving ones (except for the navel which had to be re made) Those stitches were removed the day I left hospital. So now I'm looking forward to getting my fitness back and enjoy my lovely flat stomach in some nice summer clothes. See you at the Sydney Conference! Diane
- DeeayMember
No I won't tell him that-but I'll watch out! :)