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Friday Update - 13th May 2022

Mez_BCNAMez_BCNA VictoriaAdministrator, Staff, Member, Moderator Posts: 267


Friday Update 13th May 2022

Hello members

As mentioned in the last update, BCNA are getting back to face-to-face forums. Join us in Ballarat Thursday 26th May as we host a breakfast for people living with metastatic breast cancer and an information forum for people with early breast cancer (I will share the link and other forums to look out for in this update).

My colleague Amelia who does the monthly round-ups for you, has also given me some insight into the topics and stories to expect the June edition of The Beacon.

Hope you enjoy the update.


Community highlights

Popular forum discussions

Members new and old may have missed some of the forum discussions that have been most active the past fortnight:

1. Waiting game

2. Everything seems to be wrong

3. Post surgery

4. to biopsy or not


Private ‘Groups’ in the Online Network

For our new members to the online network, are you aware of the private groups available to join? https://onlinenetwork.bcna.org.au/groups/  There are various groups that may be applicable to your situation and where you may like to reach out to others going through similar journeys. Simply click on the ‘join’ button and one of the moderators will review your request (Please note: you have to be a registered member of the online network to join groups) 


Posts by ‘Category Name’ 29 April – 13 May 2022


Community News

BCNA My Journey article updates

There have been some updates on My Journey articles 'Exercise: why, what and how?' and ‘Tips to get started with exercise and stay motivated’  that incorporates the information from the ‘booklet’ on our website.


BCNA News & Events – REMINDER Ballarat Information Forum and Breakfast in two weeks!


Metastatic breast cancer breakfast

Date: Thursday 26 May 2022 

Time: 7.15am for 7.30am start - 9.00am 

Location: Mercure Ballarat, 613 Main Road, Golden Point  

Hear from medical oncologist Belinda Yeo on the latest in treatment and care, and clinical psychologist Dr Charlotte Tottman on managing the emotional challenges of living with metastatic breast cancer. 

Register yourself and a guest for the breakfast by Wednesday 18 May via Eventbrite. 

Living well with early breast cancer Information forum

Date: Thursday 26 May 

Time: 9.00am for 9.30am start - 3.45pm  

Location: Mercure Ballarat, 613 Main Road, Golden Point  

Hear from medical oncologist Belinda Yeo, clinical psychologist Dr Charlotte Tottman, breast care nurses Leanne Storer and Joylene Fletcher and more. 

The forum will explore topics including the latest treatments for early breast cancer, managing common side effects of treatment, living well during and after treatment, and coping with the emotional impact of breast cancer. 

Register yourself and a guest for the Ballarat Information Forum by Wednesday 18 May via Eventbrite. 

 

Upcoming BCNA Forums

More details to come regarding final dates/venues for the below forums, however you may like to bookmark them in your calendar:

·        Launceston TAS – Late June 2022

·        Port Lincoln SA – Late July 2022


BCNA News - Calling for change ahead of the 2022 federal election

The 2022 federal election presents an opportunity for BCNA to advocate for improvements to Australia’s healthcare system and health policies in the interests of people diagnosed with breast cancer. Read BCNA’s six election recommendations  via link Election Manifesto


Pink Bun Campaign Continues

Still available until 18 May, Bakers Delight will be donating 100 per cent from ALL Fun Bun sales to BCNA so we can continue to support Australians affected by breast cancer. You can read more about the campaign and the stories of Megan, Samantha and Nicholas HERE


The Beacon - June edition


As the June edition of The Beacon is due to be finalised soon, I have the inside word on several topic/stories that will be included:

·        Partner Support

Member/Expert: we speak to two women, Cindy and Ros and their supporters to find out what they found helped and what didn’t. Professor Jane Turner shares her tips of some of the best ways supports can help a loved one diagnosed with breast cancer.

·        Mindfulness

Ask the Expert Story: Professor Craig Hassed answers questions including what mindfulness is, how people can practice mindfulness, how it enhances wellbeing, how mindfulness could help someone who has been diagnosed with breast cancer, how to encourage people to get into mindfulness and effective techniques.

Member Story:  Iris Bar shares her own experience with mindfulness practice after being diagnosed with metastatic breast cancer six years ago.

·        Reducing the financial and emotional burden of breast cancer

Member story:  Lisa shares her story and how she was thousands of dollars out of pocket and didn’t feel like she had the right information.

·        Sex and intimacy after breast cancer

Expert Story: Janine Porter answers questions regarding common side effects of breast cancer treatments that may affect sexual health, how the side effects may affect wellbeing, tips to improve intimate relations and who you can speak to if you have concerns.

·        Busting nutrition myths

Expert Story: Lauren Atkins her insights on the impact of nutrition before and after a breast cancer diagnosis and where you can seek nutritional advice, and bust some myths surrounding sugar, low carb diets, organic food and dairy


Webcasts

Next week! – Webcast: Managing the long-term side effects of breast cancer treatment

Tuesday 17 May 7:00pm-8:30pm (AEST), we will hear from medical oncologist Professor Bogda Kokzwara and BCNA Consumer Representative Naveena Nekkalapudi. Bodga is a senior staff specialist at the Flinders Centre for Innovation in Cancer where she developed a Survivorship Program and is the Cancer Council SA’s Clinical Investigator for chronic disease management after cancer. Naveena was diagnosed with early breast cancer in 2014 and will discuss the long-term side effects she experiences, her strategies to manage them, and her advice for others. Register for the webcast now

Ask the Expert: Managing cognitive changes related to breast cancer treatments with Jo Lewis

Tuesday 24 May 7:00pm-8:15pm (AEST),

We we will hear from occupational therapist Jo Lewis and BCNA member Kate Keogh Murray. Jo has over 20 years’ clinical experience as an occupational therapist and her clinical work specialises in workplace rehabilitation and work health and safety. She is currently completing her PhD, investigating how cognitive changes experienced by women with breast cancer impact on return to work. Kate was diagnosed with early breast cancer in 2017 and is currently experiencing cognitive changes due to her breast cancer treatment and prescription medication. Register for the event here


Books / Movies/ TV Series/ Documentaries

The June edition of The Beacon introduces Professor Craig Hassed, an internationally recognised mindfulness expert and 2019 Order of Australia recipient for services to medicine. He has published 14 books and also featured in documentaries such as ‘The Connection’. If you haven’t watched ‘The Connection’ you may like to check it out https://www.theconnection.tv/


Take care and if you have feedback or any concerns while online, please contact one of the moderators -  

@Jenny_BCNA @Carissa_BCNA @Anna_BCNA @Pat_BCNA @Mez_BCNA

If you need to speak with someone regarding your concern, please call 1800 500 258 alternatively, you can email [email protected]

Take care,

The mod team – Mez, Carissa, Jenny, Anna & Pat

“As soon as healing takes place, go out and heal somebody else”. – Maya Angelou
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