Forum Discussion
ChezaH
5 years agoMember
Tamoxifen - Endometrial Cancer
Has anybody else had this
happen. ??????
Now I am booked in to see a gynecologist / also is oncologist in his field ,as my GP says that the Tamoxifen tablets have cause Endometrial thickness now measures 9mm ,has gone from 4mm to 9mm in just 6 months, and there is a chance to get endometrial cancer, so I am thinking he will want me to have a hysterectomy NOT HAPPY JAN !!!!! I checked and it says in the side effects of the tablets, that it is a side effect. My GP rang my oncologist but he wants me to stay on the tablets. š Really concerning as you are damned if you do and damned if you don't
15 Replies
- Dory65MemberHi @ChezaH,
Yes, me too. Endometrial hyperplasia caused by Tamoxifen. Hysteroscopy. Nothing sinister. Went away once I changed to Letrozole tablets and Zoladex injections. - ChezaHMemberStork said:I have been on Tamoxifen for 4 years
every year I have a ultrasound at a womenās radiology clinic
Lsst week I had my annual ultrasound
my results was reviewed by a specialist gynaecologist at the time of the exam and was told my results were normal for my age and my medications
One day later I saw my oncologist and was advised to keep on taking the tamoxifen for one more year might change next year
I am happy and confident with the advice I have received
Best wishes Stork
Thank you - StorkMemberI have been on Tamoxifen for 4 years
every year I have a ultrasound at a womenās radiology clinic
Lsst week I had my annual ultrasound
my results was reviewed by a specialist gynaecologist at the time of the exam and was told my results were normal for my age and my medications
One day later I saw my oncologist and was advised to keep on taking the tamoxifen for one more year might change next year
I am happy and confident with the advice I have received
Best wishes Stork - FLCloverMemberThatās a good idea. Have your gyn onco tell you what they think, then make a decision with your onc based on that. Hope it sorts out smoothly and gently š
- ChezaHMemberCath62 said:Sorry to hear you are going through this @ChezaH. As if you have not been through enough already. I am in tamoxifen but I had a hysterectomy some years back. I had tge choice of AIs or tamoxifen and am on tamoxifen because of the joint pain issue with AIs. I hope this is nothing sinister for you. Sending hugs. š·Thank you xx
- ChezaHMemberFLClover said:Thatās a major bummer Cheryl. One of the main reasons I never want to go on Tamoxifen is cos it causes heavy periods, and Iām still on mine, and cos it can cause endometrial cancer. In short, it messes with your uterus. But as the ladies have said, itās probably hyperplasia at the moment. My friend, who is 42 and had bc in 2017, is on T and is going through check ups right now for the same thing. Is there absolutely no way for you to be transferred on to an aromatase inhibitor?? They generally donāt give this side effect, and are also a little more effective in preventing recurrence. Why isnāt your onc switching you to one of those, have they told you?And can you get a hysteroscopy instead?Sending you a big hug š¤ā„ļø
Thank you, My GP rang my oncologist but he wants me to stay on Tamoxifen, so when I see the gyno/oncol I am waiting to see what he says first then maybe go back to my oncologist not sure yet xx - Cath62MemberSorry to hear you are going through this @ChezaH. As if you have not been through enough already. I am in tamoxifen but I had a hysterectomy some years back. I had tge choice of AIs or tamoxifen and am on tamoxifen because of the joint pain issue with AIs. I hope this is nothing sinister for you. Sending hugs. š·
- FLCloverMemberThatās a major bummer Cheryl. One of the main reasons I never want to go on Tamoxifen is cos it causes heavy periods, and Iām still on mine, and cos it can cause endometrial cancer. In short, it messes with your uterus. But as the ladies have said, itās probably hyperplasia at the moment. My friend, who is 42 and had bc in 2017, is on T and is going through check ups right now for the same thing. Is there absolutely no way for you to be transferred on to an aromatase inhibitor?? They generally donāt give this side effect, and are also a little more effective in preventing recurrence. Why isnāt your onc switching you to one of those, have they told you?And can you get a hysteroscopy instead?Sending you a big hug š¤ā„ļø