Journey so far

GlynnisGlynnis Member Posts: 277
edited May 21 in Metastatic breast cancer
Hi everyone, just thought I would update, been on Kisqali for 2 months now, just had a blood test done and Tumor markers are down from 64 to 55 I’m so so pleased that the meds are doing what they are suppose to. Just had to share my good news with you all 😃


  • NefertariNefertari Member Posts: 94
    Congratulations, Glynnis :) always like to hear good news
  • kmakmkmakm MelbourneMember Posts: 7,503
  • Blossom1961Blossom1961 Regional VictoriaMember Posts: 1,295
    Great news is always worth sharing. Thank you
  • Giovanna_BCNAGiovanna_BCNA Administrator, Staff, Member, Moderator Posts: 1,162
    Great news @Glynnis
  • lrb_03lrb_03 Member Posts: 1,158
    Great to hear
  • GavinChGavinCh Perth WAMember Posts: 26
    Great to read, stay positive and share when able.
  • SisterSister Adelaide Hills, SAMember Posts: 4,328
    Great news!
  • GlynnisGlynnis Member Posts: 277
    Well my bubble has been burst, had another blood test last week and that’s saying tumour markers have gone up 😞 so off for a full body ct scan next week let’s hope that everything is ok.

  • arpiearpie Mid North Coast, NSWMember Posts: 2,994
    That's a Bugger @Glynnis - all the best for the CT scan next week xxx  Thinking of you xx
  • SisterSister Adelaide Hills, SAMember Posts: 4,328
    Bugger! Fingers crossed for next week.
  • elisewjkelisewjk BrisbaneMember Posts: 30
    Hi Glynnis, I just wanted to add, that I've been on Ribociclib/Letrozole very successfully for some months now (breast/lymph lesions shrunken and bone spots inactive/stable). Despite that the tumour marker has slowly been creeping up. My Onco takes the tumour marker with a bit of a grain of salt, as in itself is not a definite indicator of the cancer on the move, various other factors can also affect how a tumour marker blood test reacts, so in itself is not an definitive indicator :)

    Hope it all goes well for you all the same :)

  • arpiearpie Mid North Coast, NSWMember Posts: 2,994
    Hoping your CT scans have been done & dusted & showing nothing to be worried about, @Glynnis

    Got fingers and toes crossed for you xx

    As @elisewjk says - the tumour marker tests can be misleading xxx

    Terrific that you are responding so well, @elisewjk ;  xxx

  • PatchworkmumPatchworkmum Member Posts: 13
    I have heard or read somewhere that markers can go up as the cancer cells are dying. Mine also went up last blood test. But I have another blood test next week, so it will be interesting to see if they have gone up or down (hoping for down of course)
  • GlynnisGlynnis Member Posts: 277
    [email protected] thankyou for that, I have also heard that too but great to hear from someone it has actually happened too. Great news everything has shrunk or is stable I hope it all stays that way for you it’s great to hear. 
    Hi @arpie, heard from breast care nurse yesterday, onc hasn’t had time to fully look at results but she said she wasn’t stressed about it and if she didn’t ring me to take it that all is well, which is what I’m doing, as at tonight haven’t heard from her so in my eyes that’s good news, she onc on Tuesday 28/6
  • arpiearpie Mid North Coast, NSWMember Posts: 2,994
    Last time I saw my GP, I asked about tumour markers - and she said the same thing too. 

    Great that the BC Nurse is positive - but Grrr, the waiting is the pits!!

    Take care @Glynnis ; xxxx
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