Forum Discussion
14 Replies
- Giovanna_BCNAMemberHello @relign and @tisme sending you both a private message
- ZoffielMemberIf you have a breast care nurse @relign it might be a good idea to talk to them and ask if they can unpack the reports and explain what is going on. They often have more time to read everything (which the doctors often don't seem to do) and they are used to dealing with complex situations.
- SisterMemberYou'll keep seeing the surgeon as he/she checks your recovery and to co-ordinate treatment. The sentinel node removal can cause a lot of residual pain for awhile - I was convinced that the area was rubbed raw when it looked fine. That will settle down although you may not get full feeling back. The other spot that doesn't seem to recover for me is where one of the drains sat along a rib bone - it's still tender 16 months later. Try not to overthink things although I know it can be hard. Your body has gone through some trauma and it's going to take some time to recover.
- tismeMemberI had the lumpectomy march 20 saw the surgeons side kick, small cancer clear margin I was told. I have to see the surgeon again evidently , so im worried sick , why ?? was there a clear margin ?? then next week I see the oncologist. my boob has been sore along the cut line since it was done. my gp says its nerve damage and it takes time. I worry that waiting this long for treatment the small invasive cancer may have invaded. my depression is through the floor I cant stand it . 3 types of arthritis , cancer , dental issues that I cant get seen to till at least july ( that is when ive been waiting long enough for the govt ). and what happens to daughter if anything happens to me ?/ I tried talking to beyond blue last night and they cut me off ( I didn't know there was a time limit for such things. they said I could reconnect if I wanted but I didn't. im at the end of my tether
- relignMemberI am Back, had two appointments today, one chemo dr, one radio dr, got to hospital at 8.30am, saw the first at about 9.30, this is chemo dr, after weight taken, a few questions, then a hands on exam which I kinda yelped, she asked me if i had beeen drinking, she had my last blood work results, said it wasn,t her area and I needed to make an app with my gp, so I leave and go to waiting room for dr #2, boob dr radiation, and I wait, two hours later I get a male, the hospital registrar radioligy, who asked me about my arm, just one, scars on both, I asked him to read my file 4 cancers all at once all unrelated, he tells me brain tumor can be fixed, later I see radiation dr, she is on phone to him, saying no we do nothing she is fine, how confusing, I have been on wdge for a week thinking I would have chemo, I was left with get off lyrica, and get use to not sleeping and the pain
- jennyssMemberDear @December2018, ditto to all the greetings and info from network members above.
and keep in touch. jennyss in Western NSW - SisterMemberI love us, too @kmakm!
- kmakmMemberIsn't it ace @December2018?! I love us! K xox
- December2018MemberThank you to all for your welcoming words and opening my eyes to what this forum can do for me.
Yes sometimes a good rant and foot stomp can help, I will keep this in mind when I can't do this in front of my beautiful family and friends.
P.S. I have been reading a lot of the posts in all the different areas and it is nice to hear from people who actually have been there and done that!!!! - primekMember@Newbie
Well what a horrid time you've had. Have you been linked with a breast care nurse?
Have you looked at the resources.
Even though you have lots of home support, it's not the same as having the support of others who have walked in your shoes.
Emotions can be up and down but for friends and family "the brave face" is what we show. Here its ok to rant, cry and just be silly at times. Ask anything...no question is silly. Kath x