DCIS low grade

Missy81

Hi everyone I’m 37 and was recently diagnosed with DCIs after first being told it was atypical ductal
hyperplasia from the initial biopsy. I have a meeting with surgeon next week but the lesion has already been removed and he told me it has clear margins. I have three children. Whilst I understand this is very early im concerned about whether there is cancer elsewhere and was wondering if anyone had petscan being diagnosed at this stage as I really feel like I want to check there is nothing anywhere else. I have an aunt who died of brain tumour in her late forties and her mother (my grandmother) died of bowel cancer at 62. Surgeon has said radiation is next step but I am also considering mastectomy? I would like to hear about anyone’s journey with early breast cancer. 

SoldierCrab

HI @Missy81
sorry you have need to join us in the forum 

Below are a couple of links to help you find your
way around the forum and also how to find a breast care nurse and how to order
a MY journey Kit if you haven't got one yet. 

It can be a a whirlwind when we first get a
diagnosed.... Breathe and take it one step at a time. 

The what and how thread.

http://onlinenetwork.bcna.org.au/discussion/14879/the-what-and-how-thread/p1 

Breast Care Nurses

https://www.mcgrathfoundation.com.au/OurMission/OurNurses/FindANurse.aspx 

My Journey Kits and other
resources. 

https://www.bcna.org.au/resources/

BCNA Helpline 1800 500 258

If you have any questions, concerns or require any further information
or support please call 1800 500 258.  The Helpline is open Monday,
Wednesday and Friday from 9 am till 5 pm EST and Tuesday and Thursday from 9 am
till 9 pm EST.

lrb_03

Hi @Missy81. Have you thought about, or has anyone mentioned some genetic counselling,  or geneitic testing, to help guide decisions?
Beyond that, the nature of DCIS, as the name suggests means that it is not an invasive cancer. At this point in time, there is no way of predicting  which cases of DCIS go on to become invasive, and which won't. That does nothing to take away the fear we all have. Ask your surgeon when you have your appoinment about whether further testing is warranted.
Hope your appointment goes well.
Take care

Missy81

Thank you yes that has been mentioned by breast care nurse and I have another appointment this week so will know more than. 

iserbrown

@Missy81

Here's a link that hopefully will give you some in depth information on your type of cancer and help with your next appointments

https://www.bcna.org.au/understanding-breast-cancer/types-of-breast-cancer/

This is on the BCNA website where hopefully you can explore more 

Take care

kmakm

I found this website to be very good.

https://breast-cancer.ca/4b-atypical/

June1952

Hello @Missy81
I sent you a personal message which u will find in the 2nd icon from the right of your username in the top navy-blue bar.
Summer

Giovanna_BCNA

Hello @Missy81 sending you a private message