DCIS low grade

Missy81 Member Posts: 2
Hi everyone I’m 37 and was recently diagnosed with DCIs after first being told it was atypical ductal
hyperplasia from the initial biopsy. I have a meeting with surgeon next week but the lesion has already been removed and he told me it has clear margins. I have three children. Whilst I understand this is very early im concerned about whether there is cancer elsewhere and was wondering if anyone had petscan being diagnosed at this stage as I really feel like I want to check there is nothing anywhere else. I have an aunt who died of brain tumour in her late forties and her mother (my grandmother) died of bowel cancer at 62. Surgeon has said radiation is next step but I am also considering mastectomy? I would like to hear about anyone’s journey with early breast cancer. 


  • SoldierCrab
    SoldierCrab Member Posts: 3,445
    HI @Missy81
    sorry you have need to join us in the forum 

    Below are a couple of links to help you find your
    way around the forum and also how to find a breast care nurse and how to order
    a MY journey Kit if you haven't got one yet. 

    It can be a a whirlwind when we first get a
    diagnosed.... Breathe and take it one step at a time. 

    The what and how thread.


    Breast Care Nurses


    My Journey Kits and other


    BCNA Helpline 1800 500 258

    If you have any questions, concerns or require any further information
    or support please call 1800 500 258.  The Helpline is open Monday,
    Wednesday and Friday from 9 am till 5 pm EST and Tuesday and Thursday from 9 am
    till 9 pm EST.

  • lrb_03
    lrb_03 Member Posts: 1,267
    Hi @Missy81. Have you thought about, or has anyone mentioned some genetic counselling,  or geneitic testing, to help guide decisions?
    Beyond that, the nature of DCIS, as the name suggests means that it is not an invasive cancer. At this point in time, there is no way of predicting  which cases of DCIS go on to become invasive, and which won't. That does nothing to take away the fear we all have. Ask your surgeon when you have your appoinment about whether further testing is warranted.
    Hope your appointment goes well.
    Take care
  • Missy81
    Missy81 Member Posts: 2
    Thank you yes that has been mentioned by breast care nurse and I have another appointment this week so will know more than. 
  • iserbrown
    iserbrown Member Posts: 5,552

    Here's a link that hopefully will give you some in depth information on your type of cancer and help with your next appointments


    This is on the BCNA website where hopefully you can explore more 

    Take care
  • kmakm
    kmakm Member Posts: 7,974
    I found this website to be very good.

  • June1952
    June1952 Member Posts: 1,830
    Hello @Missy81
    I sent you a personal message which u will find in the 2nd icon from the right of your username in the top navy-blue bar.
  • Giovanna_BCNA
    Giovanna_BCNA Member Posts: 1,839
    Hello @Missy81 sending you a private message