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BrisKate's avatar
BrisKate
Member
3 months ago

Newly diagnosed DCIS

Hi folks - I just got my diagnosis this morning and am going through ALL of the emotions. Seeing my GP on Monday for referral to a surgeon, but this site is huge - any suggestions for where to start?

My treatment is likely to be a lumpectomy - hopefully with no radiation treatment but that’s a possibility. Unlikely to be chemo. Details are that it’s an intermediate grade ductal carcinoma in situ with focal comedonecrosis and calcifications (7mm x 4mm x 6mm). ER positive, PR positive. Both auxiliary lymph nodes normal. 

8 Replies

  • Hi BrisKate​ . There is so much information to take in &  when we hear 'you have cancer' our brains go crazy & it can be difficult to remember everything we are told. I suggest you keep a notebook handy to write down notes or questions. I was diagnosed with DCIS & had double mastectomy in Nov. I assume because you are seeing your GP for a referral you are going private? Have you decided on a surgeon? If you are unsure, theres most likely ladies from your area that would be able to recommend someone. The podcasts are a great place to start & also searching the boards for DCIS - you'll find a lot of helpful info. If there's anything specific you would like to know please ask All the best for navigating this journey

    • BrisKate's avatar
      BrisKate
      Member

      Thank you! Yes, I’m going private and my work bestie has given me the name of her surgeon, so I’m all sorted there. 🙂

  • Hi! Understandable that you are overwhelmed. Last week I underwent a wide excision for DCIS and it’s been a steep learning curve.

    Hopefully you have been referred to a McGrath Breast Nurse. I have found that extremely helpful, as my contact has been so supportive and a wealth of information. 
    So much useful reading on the BCNA website, especially the treatment options for DCIS, including the DCISionRT testing that is available. Be prepared for a number of treatment option decisions along the way. 

    • BrisKate's avatar
      BrisKate
      Member

      Thanks! How do I get referred to a McGrath Breast Nurse? I’ve heard really good things about the McGrath Foundation…

    • BrisKate's avatar
      BrisKate
      Member

      Thank you! I’ve had a look at the link and there are a couple at the Mater so I’ll look at getting in touch once I’ve seen my GP on Monday.