Trials

Hi Mandy I am in Brisbane. If you are not confident then discuss it with your oncologist and you do have a right to ask them to refer you for a second opinion . Everyone's cancer is different and comparing regimes is impossible. My cancer was further advanced than yours and now I think of it as removed and chemo is my insurance policy. Good luck and yes you deserve the best treatment available. Angela

Thank you Annie. As everyone I just want to make sure I'm getting the most up to date treatment possible. I have looked Into trials however they appear to be for advanced TNBC. I am, thankfully, stage 2a with clear margins and negative sentinel node but with this beast you never know. My oncologist is giving me what he considers Gold Standard chemo which is FEC and Docetaxol but I do know regimes differ in different states. I have read that platinums are very effective with TN and I wonder if I should push to have it added to my treatment. All advice welcome! As a nurse I feel that Gold Coast risks being a little behind the likes of Melbourne and Sydney and I wonder how I find out their standard treatments ? Mandy x

Hi Mandy,

This is Annie from BCNA. I thought I would jump on here and mention that the Australian Cancer Trials website (www.australiancancertrials.gov.au) allows you to search for clinical trials. I did a quick search using the key words 'triple negative' and a number of trials came up.

Also, I thought I'd mention that there is a face-to-face support group specifically for women diagnosed with triple negative breast cancer, which meets Chandler QLD. For more information about the group, visit the member group section of the BCNA website.

All the best Mandy,

~Annie

Hi There Angela

Thank you for your reply. Where abouts are you having treatment? I am not having a platinum as part of my treatment and would like to discuss this with my Oncologist. What stage etc are you Angela?

Mandyx

Hi Mandy I too had read stuff about parps and was anxious to receive the most upto date treatment for a cure for this dammed Tnbc I was diagnosed with in October. I spoke to my oncologist this December who explained about results of recent trials and that parps were not an option for me as it would compromise the doses of the other agents taxol and platinum that I was about to start ( have done the mastectomy and 4 rounds of AC ). I know lots of people have different regimes. Anyway I felt so much better after talking to him and went out of his rooms happy for the first time!! I am pretty sure he told me there were no trials in aus with parps at present. My advice is ring and get an extra appt with your oncologist and ask and that way they get to know that you want to know as much as possible . Hope that helps and good luck Angela