1 MIN READ
Blog Post
arpie
3 years agoMember
Hi @Mez_BCNA, Is there any word on the video link yet from the Mets Database discussion last week?
I found this link that shows that Mets/recurrences don't 'count' on the data base, which is absolutely ridiculous!
Some recurrences/Mets diagnoses are DECADES after the first diagnosis & would have 'dropped off' the previous 'data base' and as we all know, some are diagnosed straight up with Stage 4 too.
https://www.aihw.gov.au/about-our-data/our-data-collections/australian-cancer-database/about-australian-cancer-database
How on earth can they do accurate funding forecasts if they don't even know the figures??
I found this link that shows that Mets/recurrences don't 'count' on the data base, which is absolutely ridiculous!
Some recurrences/Mets diagnoses are DECADES after the first diagnosis & would have 'dropped off' the previous 'data base' and as we all know, some are diagnosed straight up with Stage 4 too.
https://www.aihw.gov.au/about-our-data/our-data-collections/australian-cancer-database/about-australian-cancer-database
How on earth can they do accurate funding forecasts if they don't even know the figures??
Related Content
We’ve recently updated our system, so the way you start a new discussion has changed slightly. We know that any change can be a little confusing at first, but we’re here to help make it as easy as po...
8 months ago439Views
5likes
2Comments
Hi, I'm all very new to this being diagnosed only 7 wks ago with stage 4 metastatic breast cancer (triple positive) which has spread to my bones. I am 51 with 2 children. I had only had my first ma...
8 months ago1.1KViews
3likes
26Comments
Hi, I only just got my breast cancer diagnosis 1.5weeks ago and initially it was tentatively said to be Stage 3 due to being grapefruit sized and lymph node involvement. Then a couple of days ago afte...
2 years ago963Views
0likes
18Comments
1 MIN READ
On this Metastatic Breast Cancer Awareness Day, we acknowledge that Metastatic Breast Cancer (MBC) is treatable but incurable.
Katie shares what she wants others to know about living with MBC and h...
2 months ago71Views
4likes
2Comments
I’m new to this group. I’m 43 years old and today I was told I have ER, PR negative, HER2 positive metastatic breast cancer. I have mets in lymph nodes, bones and liver. No symptoms- only had a mammog...
3 years ago1.3KViews
0likes
21Comments