Blog Post
lrb_03
8 years agoMember
@sandramj, if you still have receipts you should be able to claim on the sleeves already purchased.
@Brenda5, you are right.
@Jane221. Like you, i have a lymphatic massage every 3-4 weeks to maintain my lymphoedema. With this, it has remained stable for a long time. As you say, you quickly run out of subsidised visits, regardless of where the subsidy comes from.
The ongoing costs are something that is forgotten once active treatment is over. We have lymphoedema. I have a friend diagnosed osteopaenic at her 1st dexa scan, prior to coomencing an AI. She pays approx $500 twice a year for the medication for that, not covered by PBS. And as @sandramj commented, the ongoing cost of mammograms etc as we are excluded from breastscreen for at least 5 years. These are just the easy things to come up with. Like you, I struggle with the ongoing financisl and emotional impact of bc
@Brenda5, you are right.
@Jane221. Like you, i have a lymphatic massage every 3-4 weeks to maintain my lymphoedema. With this, it has remained stable for a long time. As you say, you quickly run out of subsidised visits, regardless of where the subsidy comes from.
The ongoing costs are something that is forgotten once active treatment is over. We have lymphoedema. I have a friend diagnosed osteopaenic at her 1st dexa scan, prior to coomencing an AI. She pays approx $500 twice a year for the medication for that, not covered by PBS. And as @sandramj commented, the ongoing cost of mammograms etc as we are excluded from breastscreen for at least 5 years. These are just the easy things to come up with. Like you, I struggle with the ongoing financisl and emotional impact of bc
Related Content
I don't have lymphoedema but in my internet noodling today I came across these. Thought they looked rather fun. No idea if they're any good but the woman I saw wearing one has had cancer three times a...
6 years ago297Views
0likes
17Comments
1 MIN READ
Lymphoedema can develop after breast cancer surgery or radiotherapy treatment. If lymph nodes are removed – usually from the armpit – fluid can build up and cause swelling known as ‘lymphoedema’.
F...
2 months ago102Views
2likes
8Comments
After months of trying to use a sports bra with a lymph flow pressure pad my lymphoedema physio has just recommended I move to proper lymphoedema compression bras and am gobsmacked at the cost. I ran...
3 months ago133Views
0likes
5Comments
The ALERT (Australian Lymphoedema Education, Reseach and Treatment) team at Macquarie University are looking for people living with primary or secondary lymphoedema to complete an online survey which...
5 months ago278Views
1like
19Comments
Hi everyone. So I’ve just come back from one of my lymphoedema clinic appointments and they said my sozo measures and arm measurements were a bit high. I’ve been given some extra exercises and self ly...
11 months ago255Views
0likes
13Comments