Hi all, We are going to be running a podcast titled 'Just diagnosed what next' for those newly diagnosed. We would love your input into the questions you would have liked to have asked when first dia...
Published 7 years ago
Version 1.0
Blog Post
From a remote (really remote) perspective, I would have liked information on accommodation options, who provides, where, how and costs.
In essense a 'go to' facilitator to organise this essential service right from the beginning at diagnosis.
How to organise a second opinion. Where to go for a second opinion. Costs involved. For remote regional patients a second opinion is a must.
What alternatives are available for treatment. Is treatment needed at this exact moment. Can I take a few weeks / months to research treatment options.
Patient centred treatment. That is, what the patient wants. Put the patient at the centre of all decisions.
Can I meet the team involved in my care. Who will be involved in my care during treatment and post treatment. What will be my post treatment care. A written post treatment care plan is essential.
Ask about the side effects of adjuvant hormone treatment especially in relation to comorbidities.
Eighteen months down the track there are many things I would have approached differently in my treatment if I had been 'armed' with appropriate knowledge.
In essense a 'go to' facilitator to organise this essential service right from the beginning at diagnosis.
How to organise a second opinion. Where to go for a second opinion. Costs involved. For remote regional patients a second opinion is a must.
What alternatives are available for treatment. Is treatment needed at this exact moment. Can I take a few weeks / months to research treatment options.
Patient centred treatment. That is, what the patient wants. Put the patient at the centre of all decisions.
Can I meet the team involved in my care. Who will be involved in my care during treatment and post treatment. What will be my post treatment care. A written post treatment care plan is essential.
Ask about the side effects of adjuvant hormone treatment especially in relation to comorbidities.
Eighteen months down the track there are many things I would have approached differently in my treatment if I had been 'armed' with appropriate knowledge.