New diagnosis triple negative BC
Hi all, I'm having a bit of difficulty reaching out to talk to anyone going through a similar experience - I'm 27 and just diagnosed with triple BC. I've joined the young persons group and awaiting to join triple negative group. I'm in the limbo period of waiting to be referred to oncologist and awaiting appt with the surgeon, so I really don't know anything yet. I suppose I'm just wanting reassurance and support from someone that has go e through a similar experience or maybe if anyone has any recommendations for other places I can go to for support, I've contacted a breast cancer nurse, but I haven't heard back yet. Thank you! Oops posted twice!229ViewsSign in to react to this post4Comments
Feeling very isolated
I am 35, and was diagnosed last year on July 12th with triple negative inflammatory breast cancer. I started AC double dose chemo on the 27th of July and then paclitaxal 21st of September. Early November it became clear the pacli had stopped being effective on the cancer in my breast so I was zoomed into surgery and had a unilateral mastectomy and auxiliary lymph node removal November 25th. I started Carboplatin December 20th and have it again January 11th, before switching to radiotherapy five days a week for five weeks January 31st. After that I’m being told two more Carboplatin, then capecitabine for six months. I’ve had allergic reactions, side effects and difficulties throughout. I think due to covid there has been no support groups that I’ve been put in touch with and the only people I already know who’ve been through breast cancer are in their 60’s and have had a very different journey and experience and support network. I’m single, living in share accomodation in the inner west of Sydney and am currently disabled due to my mental health (and was before my cancer diagnosis). Some friends have been amazing and some have been so selfish and awful it’s hard to believe. I’m just wondering if there are support groups that I’m just not finding. Either for younger people or for LGBTQIA+ people. Covid has made everything harder and I’m really finding it all very exhausting and overwhelming- especially since the world keeps on burning and normal everyday life nonsense keeps happening. I’m exhausted and struggling. Any help much appreciated.ViewsSign in to react to this postComments
Support
Has anyone tried or found any local support groups? I was diagnosed with triple negative breast cancer July ‘19. With covid getting back to some normality went out the window, while finishing radio end of March. Even though I’ve had brilliant support just wondered if anyone found outside support helpful too.ViewsSign in to react to this postComments
Triple negative and liver lesions !
Hi all, I have not been on here for sometime. Quick refresher I was diagnosed with TNBC in jan 2018 had lumpectomy no cancer in lymph nodes went on to have chemo then radiation and regular check ups. My check up 2wks ago I had tenderness in my abdomen (liver) so was sent for ultrasound which they have found lesions on my liver and are now sending me for a CT scan for a better look . Has anyone else had this issue I am so stressed as I usually am (scanxiety)I am to scared to look anything up on Dr Google As that makes me worry more. I am hoping that it is nothing .ViewsSign in to react to this postComments
Triple Negative - persistent cancer cells after mastectomy.
Hello 👋 I am currently in hospital after having a double mastectomy, axillary clearance & reconstruction. The operation was quite a bit more intense than I imagined, so it’s thrown me around a bit. I’m coming good though after 7 days in hospital. The disappointing part is the pathology results.. Obviously I was hoping for a complete pathalogical response, but unfortunately there are persistent cancer cells. All of the lymph nodes which were removed had cancer cells present & the actual breast cancer itself had doubled in size & is a bit of a creeper rather than a contained tumour. I am disappointed to say the least. My surgeon has suggested we move radiotherapy forward by a few weeks & then look into immunotherapy. My question to you guys is, has anyone else been in this position? What did you do moving forward? Any helpful tips? Diet ideas? Im feeling a bit naked in the rain..ViewsSign in to react to this postComments
Should I Crop or Not?
I’m due for my first Chemo Oncologist appointment next Monday. It’s the appointment where we discuss wether Chemo therapy will be beneficial for me. Being Triple Negative I’ll be surprised if I don’t need it. Hair loss is constantly on my mind and I’ve decided against the Cold Cap. What I want to ask is did any of you wonderful woman crop your hair before chemo, during chemo or did you let it all ‘just happen’? Thank you in advance xxViewsSign in to react to this postComments
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