New diagnosis triple negative BC
Hi all, I'm having a bit of difficulty reaching out to talk to anyone going through a similar experience - I'm 27 and just diagnosed with triple BC. I've joined the young persons group and awaiting to join triple negative group. I'm in the limbo period of waiting to be referred to oncologist and awaiting appt with the surgeon, so I really don't know anything yet. I suppose I'm just wanting reassurance and support from someone that has go e through a similar experience or maybe if anyone has any recommendations for other places I can go to for support, I've contacted a breast cancer nurse, but I haven't heard back yet. Thank you! Oops posted twice!
Feeling very isolated
I am 35, and was diagnosed last year on July 12th with triple negative inflammatory breast cancer. I started AC double dose chemo on the 27th of July and then paclitaxal 21st of September. Early November it became clear the pacli had stopped being effective on the cancer in my breast so I was zoomed into surgery and had a unilateral mastectomy and auxiliary lymph node removal November 25th. I started Carboplatin December 20th and have it again January 11th, before switching to radiotherapy five days a week for five weeks January 31st. After that I’m being told two more Carboplatin, then capecitabine for six months. I’ve had allergic reactions, side effects and difficulties throughout. I think due to covid there has been no support groups that I’ve been put in touch with and the only people I already know who’ve been through breast cancer are in their 60’s and have had a very different journey and experience and support network. I’m single, living in share accomodation in the inner west of Sydney and am currently disabled due to my mental health (and was before my cancer diagnosis). Some friends have been amazing and some have been so selfish and awful it’s hard to believe. I’m just wondering if there are support groups that I’m just not finding. Either for younger people or for LGBTQIA+ people. Covid has made everything harder and I’m really finding it all very exhausting and overwhelming- especially since the world keeps on burning and normal everyday life nonsense keeps happening. I’m exhausted and struggling. Any help much appreciated.
Triple negative and menopause
Hi all, it’s been a while since I’ve visited this site, I have my 3rd year post treatment check up coming up in a few weeks, so far all clear 😁 I was wondering if any of you chemo induced menopausal women have any advice on skin care. I feel like my skin is ageing at a rapid rate. I’ve been taking silica, tried many lotions but nothing is helping. I’ve been told to be weary of taking collagen due to the lack of studies of its affect on TNBC. Any advice will be appreciated xxx
Support
Has anyone tried or found any local support groups? I was diagnosed with triple negative breast cancer July ‘19. With covid getting back to some normality went out the window, while finishing radio end of March. Even though I’ve had brilliant support just wondered if anyone found outside support helpful too.
Triple negative and liver lesions !
Hi all, I have not been on here for sometime. Quick refresher I was diagnosed with TNBC in jan 2018 had lumpectomy no cancer in lymph nodes went on to have chemo then radiation and regular check ups. My check up 2wks ago I had tenderness in my abdomen (liver) so was sent for ultrasound which they have found lesions on my liver and are now sending me for a CT scan for a better look . Has anyone else had this issue I am so stressed as I usually am (scanxiety)I am to scared to look anything up on Dr Google As that makes me worry more. I am hoping that it is nothing .
stomach always upset
Hi, I was recently diagosed with a triple neg stage 3 cancer. Successfully removed with clear margins, but pathology showed, particularly aggressive. Just had first 2 chemo treatments of doxyrubicin/cyclophosphamide, having 4 fortnightly sessions, followed by 12 weekly sessions of paclitaxel. Then 3 months of radiation therapy. Finding that I have a multitude of side effects, but the one that is causing me the most trouble is my stomach. I take a daily pantoproprazole tab for reflux, and often an anti nausea tab as well. I find that I either have no appetite because my stomach just feels gross all the time, or I am then starving, and feel like my stomach is eating itself. I try to eat small amounts frequently, but the symptoms never let up. I've tried various foods, but wondering if anyone has found anything in particular to ease that "unwell" feeling. I have read so much contradicting information about what to eat and what to avoid, that my head is in a spin.
Diet changes for tnbc
Evening! I have been doing some research into changes in diet to help keep tnbc at bay, but would love to know what you guys have implemented. I know karma/fate may ultimately have other ideas but I am in a good head space and want to kick this f***** to touch if I can and get a lot healthier. Thanks to taxol and steroids I am also quite a bit overweight and currently partway through rads with Capecitabine to follow, so I know medically I am doing all I can. thanks x
Another year done!
Hi All, This week I got the results of my second year mammogram n ultrasound after triple negative BC. It's all good so on with the next 6months and MRI in December. It was such a relief to hear the words that all was ok. Hubby and I then went out for a nice lunch to celebrate. Just thought I would share the good news with you all as you have always given me loads of support. Another piece of good news is I have got myself a new job horrary!! It's casual but that's fine with me and the hours are a lot better than the last one defiantly only 6 hours a day. So this week has been a good one all round for me. Thanks for listening and hope you all have a good weekend. Take care 🤗💕
Triple Negative - persistent cancer cells after mastectomy.
Hello 👋 I am currently in hospital after having a double mastectomy, axillary clearance & reconstruction. The operation was quite a bit more intense than I imagined, so it’s thrown me around a bit. I’m coming good though after 7 days in hospital. The disappointing part is the pathology results.. Obviously I was hoping for a complete pathalogical response, but unfortunately there are persistent cancer cells. All of the lymph nodes which were removed had cancer cells present & the actual breast cancer itself had doubled in size & is a bit of a creeper rather than a contained tumour. I am disappointed to say the least. My surgeon has suggested we move radiotherapy forward by a few weeks & then look into immunotherapy. My question to you guys is, has anyone else been in this position? What did you do moving forward? Any helpful tips? Diet ideas? Im feeling a bit naked in the rain..Should I Crop or Not?
I’m due for my first Chemo Oncologist appointment next Monday. It’s the appointment where we discuss wether Chemo therapy will be beneficial for me. Being Triple Negative I’ll be surprised if I don’t need it. Hair loss is constantly on my mind and I’ve decided against the Cold Cap. What I want to ask is did any of you wonderful woman crop your hair before chemo, during chemo or did you let it all ‘just happen’? Thank you in advance xx