Her2 positive
Hello I'm 40 and recently diagnosed with her2 positive. No family history of breast cancer. My sister and maternal cousin recently diagnosed with lobular cancer. They are having surgery. It's been a Whirlwind recently. The professionals say it's early, the treatment is going to be chemo , waiting for my medical oncologist appointment to find out how long etc. Surgery then hormone tablets. I'm struggling to understand why I need chemo first. If anyone had or has her2 I would be grateful to share your story. Thank you kindly.
chemo or no with micro metastasis
Recent mastectomy with aesthetic closure, one mini slash micro metastasis in one lymph node, hormone positive at 90% and no chemo? Only a 2% chance of it adding anything to my 10 year rates? I keep reading everyone has chemo with lymph node involvement… just a wee bit concerned I’ve made the right choice? Thankyou.
Decisions on surgery
Hello Thank you for accepting me. I've just been diagnosed with ER+, PR+, HER2-. Absolutely devastated and am in shock. No signs, no symptoms, nothing on the breast on the mammogram - only 2 lymphs showed and were biopsied and confirmed, nothing on the breast MRI or PET, and only a slight shadow on the ultrasound. I've started taking an AI, and am now trying to work out the surgery options. Oncologist and surgeon just want to do a lumpectomy and take out the lymph nodes, then chemo (depending on the tests) and radiation. They both said that the was no real difference in the outcomes between lumpectomy and mastectomy. I'm thinking that I want a double mastectomy to really reduce the chance of a reoccurrence in the future. I also don't think I'm going to have the mental strength to go through this again - I'm really struggling at the moment. My questions are around how you made your decisions on the surgery options. Are there any resources that can help me - I've looked but just keep going down dark holes. Will a DMX really reduce the chances of the cancer returning? I'd be very grateful for any guidance, feedback or experience you have. Thank you!
Newly Diagnosed & Over Thinking it all!
I'm a 54 year old women of 3 gorgeous grown up sons living with my partner of 5 years & loving life after a few years of turbulence both personally & professionally. I am newly diagnosed with invasive NST, + for both ER & PgR apparently that's good, yesterday was a week after right boobie lumpectomy & 3 x axillary lymph nodes removed and results show its travelled to the lymph nodes so pet scan booked for next Tuesday. Its been a roller-coaster, which I know many of us have experienced and my positivity since surgery is now replaced with a sick to the core feeling of dread. Which is unusual for me as a normally face everything head on but this has got me. Radiotherapy has been mentioned and then yesterday chemo was mentioned for the first time as a most likely scenario not all results were back & the rest awaits me next Tuesday. My head space at the moment is like a magpie flitting from shiny wtf-ness to omg-ness!! The cherry on the top is I'm 2 months into a new career and on LWOP from a 34 year career wondering what my new employer who has been very supportive will wonder & yes I am over thinking it :)
I’m so lost
Hi all, I am newly diagnosed with Breast Cancer. I am 34 years old and I have 3 children- 9,8 and 4. Because I have been in shock for about a month and the stress of it all has got me lost. The doctor who gave me my results seemed to just be ticking boxes when he showed me my plan. He did not explain the hormone receptor test and what it all means. All I know is that I am positive with all 3 receptors and I am a grade 3. I’ve just been told that I need surgery and depending on the surgery- If it isn’t good I’ll be heading to chemo but if it is ok it’s radiotherapy. I feel so lost. I was just bombarded with so much information that I do not even understand it all and to make matters worse, I tend to freeze when I hit a stressful situation :( sorry for the long post. Just wanted to talk about it
1st Hospital Clinic Visit & Planning
Hi lovely ladies Short story so far. Found a lump, got it checked & biopsied. Positive. My hospital referral has gone through & 1st clinic appointment next Tuesday. I'm a "planner" in all things, I've researched my pahtology results, I've considered my work/life plans (I know they might not work out as I wish, but I have various options ready in my head). I've told my family, boss & co-workers what I can so far. I've prepared my paperwork & family history for the hospital. I've ordered Post surgery bras & have a diary started for logging doctors notes, feelings, side effects etc. I'm a rather pratical & realistic person so I'm not freaking out or going down the rabbit hole, I'm planning what I can based on the steps so far. ie. Surgery, lymph dissection are definately happening. Based on ER/PR+ Hormone therapy is probably a definate as well. Chemo/Radiation will probably depend on further test results but I've thought about both of those options as at least 1 or the other (or both) is likley. My question is, at the 1st Clinic visit do they generally have some idea of a "possible" treatment plan. I know that they will need to do MRI/CT or something to further check what is exactly where, but would they have some idead or is it likely to be "come back for MRI/CT whatever & THEN we'll give you an idea of where we are heading with plans"? BTW. Pathology report show "invasive Carcinoma (of no specific type). Malignancy in lymph node. 2cm Grade 3 mass (8/9 for Grade 3). ER+ 90%. PR+ 30% I know we all hate the waiting :) Huggggzzzzxzxzxzx G
Treatment
I have recently been given the diagnosis we all dread, metastatic her2+++ in my liver I started treatment with Pacitaxel with pertuzumab and trastuzumab. I had a reaction after 7 minutes of pacitaxel so it was stopped the next week when I went for next treatment I was informed that they were changing the treatment to trastuzumab and vinorelbine in three weeks time. I am really anxious about the whole situation the oncologist that I have been seeing for past eight years has been on leave and I have dealt with three different oncologists since receiving the diagnosis four weeks ago and it seems impossible to get information about the change of treatment. When first diagnosed with breast cancer in 2012 I was given lots of information and support this time it feels like all I am getting is pity and am all alone and anxiety is eating me alive I am trying to be positive but it seems so much harder this time around.
