GENE TESTING
Just a thought. If, like myself, you are diagnosed with bilateral breast cancer (Stage 2), wouldn't it make sense to have a BRCA1 or BRCA2 gene test done prior to any surgery? My radiation oncologist - seen a few weeks after surgery ordered the test prior to radiation treatment and now the results are holding that up. The frustrating part is... if I do have the gene, then radiation therapy is useless and I may need to consider a mastectomy! Would it not be much more prudent to have the testing done first in order to avoid "unnecessary" surgery and all that goes with it? The whole process has all felt quite rushed (although the team has been great throughout) and now this is adding to it all - potentially unnecessarily.
Season Finale to "Scan day Freaking sux"
A lot of you will know my ongoing soap opera with the elusive eliptical thingy appearing on my MRI's. So after what seemed like an eternal three months after the excisional biopsy I went for the follow up scan. Another two weeks of waiting between scan and results due to limited clinic times....thank you COVID! Interestingly enough I had no jitters. I had pretty much made up my mind that if that thing was still there and did not look like swiss cheese at least, that it really wanted to be there and I was not going to worry about it unless I got a definite yes it's nasty. Anyhooooo.....IT'S GONE and pathology benign! I would have hugged madame BS if I had been allowed to. She's a very good shot considering she was pretty much flying blind. Who woulda thought something as disgustingly named as fat necrosis would be so welcome! Ya bloody hoo. End of chapter. Lotsa luv to all xoxoxoxoScan day freaking sucks......yet again. Probable curse words included.
With only minor trepidation and my shit mostly together I went to clinic today to get my results. I stopped to give a co worker that had just been diagnosed (MOFO BC) a hug and a shoulder to cry on for a bit while we were waiting. I heard my name called and promised her she would get through and I would be happy to help if I could in any way. She thanked me with that smile you put on when you are trying so hard not to burst into tears and your heart is aching as I waltzed on in to the doctors office. Well the whole thing went sideways and turned into me leaving work in a shaky, teary eyed mess. My goodness this thing still rocks you when least expect it. Here we go again with another fucking ambiguous result about the mystical eliptical thingamajjigy that has taken up residence in the rogue boob. Said thingy has decided to grow 2mm in 6 months. BIRAIDS score now moved up from a 3 to a 4 and hey lets poke a needle in it this time. This presents a problem. Considering the MRI is still the only machine that can see thingy (again it can't be felt by anyone either) and it's positioning, it is probable that a biopsy can't be done in the MRI machine. Still waiting on an answer for that one. So do we just poke around in there and try to hit it?? Cut it out or off just for the heck of it? No body is prepared to say it is anything sinister nor are they prepared to say it's not. Seriously, can someone please tell me how, for the love of god, you can have 4 MRI's, 4 mammograms and 6 u/sounds in a period of 12 months and still not know what this is or isn't. So as it sits, back to headlining the MDT on Thursday to get input from group of guru's as quote "my breast don't scan normally". Another targetted u/s on Friday. And wait for an answer on whether the biopsy can be done by MRI. Waiting waiting waiting yet again. Fuckity fuck fuck. I am sick of this roller coaster. I want to get off and my money back. Mental status right now = somewhere between zoned out numbness and seriously pissed off. Strongly considering ostrich tactics at the moment. Thanks for listening. :/
Far out this brings it all back
Didn't know where to go have not been active here for awhile but need a shoulder to cry on. Had my 5 year mammogram was supposed to be the one to send me back to breast screen. All excited I thought that would be it but my GP just called need to discuss my results. I can't do all this again. I'm still recovering from the first go around,. Appoint 8 o'clock tomorrow going to be a long night. Guess I'm up for a biopsy will take it one step at a time. And will worry about it later.
Yearly check up
Hello lovely Ladies Yesterday I went for my 1st mammogram after BC . Before going to the specialist next week. All last week was up and down. I was so nervous. So got called by a lovely young lady and told her I was anxious when asked how I was instead of my usual Yeah I am fine. Had the Mammogram waited as we normally do but she came back and said that her and the Dr had looked at last years and this years and said that there is NO change to my only breast. Phew. Going by last years test which were at the same place, I know that if there is something wrong they don't say anything. This was a huge plus for me. I am not sure that the lovely Radiologist was supposed to tell me anything but I am so glad she did. I will now go and see the Specialist next week feeling a lot better. Just a thought tho. How many of you ladies have gone and had these what seem like endless Scans etc and just wish the person there would tell you something anything to make you feel better. I know this young lady made me feel better yesterday. Jan xx
Déjà vu
Good morning lovelies. I’ve just come home from having my ultra sound to find out why this cellulitis won’t clear up. So as you do you open the envelope and have a look at the scans...why not it’s my boob :smile: And then I see 2 o’clock 3cm...as per original diagnosis. The cellulitis is not at 2 o’clock. I don’t know what to make of this. I am stressing and feel like screaming like a mad woman. And have to wait until next Wednesday when I see my GP :( Next month is my 1 year review and next week is anniversary when I went for my mammogram when this nightmare started... can’t help but think here we go again. Nellie xx
Got the all clear from first mamogram
yippeee j have been laying low as I was quite stressed however just got all clear. HD meeting with dr Mann and he was efficient and informative. Doesn’t recommend gene testing at the moment until it becomes free unless I want to pay. He said within next few years he believes it will be free to all. I feel a massive relief.
