Off for surgery
Morning All, Really grateful to have found this forum. I was diagnosed last week, 6 Oct, and like many of you, came as a total shock. I have invasive ductal carcinoma, 95mm, ER+ PR+ HER2-. I’m have a double mastectomy on 3 Nov. I’ve been reading a lot but was after some tips for hospital and anything you found helpful to help recovery. Thank you all x129ViewsSign in to react to this post5Comments
Discussion about surgery with Surgeon
Hi all, I have been diagnosed with invasive breast cancer and I have my first meeting with the surgeon on Thursday. I know to expect surgery soon but dont know if this will be lumpectomy or mastectomy. I know that this will be one of the things to discuss on Thursday but I am curious if there is a 'choice' - in a sense part of me just wants to be told which option but I wondered if anyone here made a decision one way or the other and how they felt about that? Am also putting this query in the treatment thread as I have not posted before and not sure which is better for this. Thanks for any thoughts.ViewsSign in to react to this postComments
Implant Reconstruction After Radiation
Hi, this is my first post. I had a lumpectomy with radiation 10 years ago at 44, and I've recently undergone my 2nd lumpectomy on the same side due to the return of this hormone ER and PR+ BC. Due to having my lifetime exposure of RADS on my left breast 10 years ago, my option is mastectomy. I'm battling with my options (of which I'm blessed to have) and tossing between a double mastectomy with reconstruction using first tissue expanders and later implants, or going flat on my left side. My right breast is healthy. I only have enough fat for one very small breast, about half the size of my healthy breast. My main concern is having implants after radiation. The aspect of capsular contracture, skin or nipple death has thrown me for a sixer, and I would love to hear from you beautiful survivors about your stories of reconstruction after radiation. I have a wonderful breast surgeon who I have been blessed to have 2nd time around. She highly recommended the PC who has been transparent in the risks. Stories?ViewsSign in to react to this postComments
Lipofilling - tips for preparation and recovery please.
Hi everyone. Back in 2024, I was diagnosed with DCIS and subsequently had a lumpectomy and radiotherapy. I'm now booked for my first round of lipofilling/fat-grafting at the end of July. The thighs are most likely going to be the donor site. I would like to hear from anyone who has experienced this type of surgery and what helped them to recover comfortably. Any tips on what to have in place for recovery? Are there similarities in the recovery process for this, as they are for a lumpectomy? I bruise really easily and dramatically, so it should be interesting to see how my thighs react. I'm also still experiencing daily pain from the lumpectomy and radiation (although I'm under the care of a Pain Clinic). Thank you. Cozycat.ViewsSign in to react to this postComments
New diagnosis, mum guilt and surgery
Hi All! It’s been a big month… recent diagnosis of invasive ductile carinomas x 2 in left breast, E+ PR+HER2LOW+1. Grabbed my breast after shooting pain on night before my 39th birthday, GP few days later, week after that had mammogram/ultrasound/biopsies x 3. Scheduled for bilateral mastectomy with DIEP flap reconstruction in a few weeks at the Wesley in Brisbane. Have been feeling quite positive, but now surgery date locked in I’m having a lot more anxiety!! Have 2 kids (5 & 7) that I’m worried about being away from, and have a busy job as a lawyer that I’m keeping going whilst waiting for surgery. I’m finding it a lot to plan for all I want to organise before surgery, so any tips/suggestions/ support would be amazing - I like to be super organised so particularly keen for any recommendations re what to pack etc!!ViewsSign in to react to this postComments
Radiation with Old Implants
I am about to undergo radiation and am concerned about how this may affect my implant (approx 10 years old). I am aware that radiation can cause issues with the implant and had thought I could have a reconstruction down the track if needed, although I am now finding out that this can be tricky due to the damaged tissue. Does anyone have experience with this? I am also waiting on genetic testing which may push me down the mastectomy/reconstruction path instead (if positive) so I am wondering if this is going to be a better option.ViewsSign in to react to this postComments
Unilateral mastectomy with delayed reconstruction
Hi everyone, I’m currently in treatment for TNBC and starting to plan my surgery and reconstruction, and I’m really hoping to connect with others who have had a similar pathway. Others who chose unilateral mastectomy with expander/implant reconstruction I’m 41 and currently undergoing chemotherapy (AC followed by weekly Paclitaxel). Surgery is planned after chemo finishes very soon. My current plan, pending final discussions with my surgeon and a plastic surgeon, is: Unilateral mastectomy (left side) Nipple removal (due to previous lumpectomies and blood supply concerns) TExpander placed at the time of mastectomy Later exchange to a permanent implant (skin is tight and I'm too small for immediate reconstruction/DIEP) Possible fat grafting and/or minor adjustment to the natural breast for symmetry Genetic testing was negative, so my surgeon feels comfortable with a single-sided mastectomy rather than bilateral. One of my biggest challenges right now is that most of the stories and photos I find online seem to be double mastectomies and DIEP, and I’m finding it hard to visualise what unilateral reconstruction looks like long-term. Some things I’m especially curious about: How close did the reconstruction get to your natural breast over time? Did you end up having adjustments to the other breast? What did the expander stage look like under clothes? Were you happy choosing unilateral rather than bilateral? Anyone who slightly increased their size with implant? Did anyone here go on to have fat grafting to improve symmetry? I’m quite small-framed and originally around a B/C cup (medically-induced menopause and weight loss have decreased this somewhat), and ideally would love to maintain a similar size and shape if possible. I’m also trying to understand what the timeline looked like for others, particularly between mastectomy, expansions, and implant exchange. I would really appreciate hearing from anyone who has taken this path, especially if you: had unilateral reconstruction had expanders then implants were younger (30s–40s) when treated Even just hearing your experience would help me feel a little less like I’m navigating this blindly. I’m finding the lack of similar stories and images a bit overwhelming, so I’d really value hearing from anyone who’s been through something like this. Also, anything to potentially be aware of for out-of-pocket expenses. Thank you so much in advance.ViewsSign in to react to this postCommentsJust need to talk to someone
I’m 59yo and newly diagnosed with breast cancer. I’m really not sure I get what is going on either because I’m just slow or it’s just not all clear yet so I feel confused, in total panic and that I’m drowning and there is nobody to save me 😢 I am waiting for an mri this Thursday. I have a 10cm Not Special Type Grade 1 something positive to do with hormones and her2 1+. The surgeon says mastectomy is the only choice because of the size. There isn’t anything clear about what happens after that… is that how it’s meant to be? I just feel very lost appreciate any words of wisdom for these circumstances? susanViewsSign in to react to this postCommentsSecond mastectomy
20 years ago I had a tram flap reconstruction after a mastectomy on one breast. Since then I found I was BRCA2 and in the last week I have been diagnosed with cancer in my other breast. I am interested to hear the stories of anyone that had a reconstruction on one side and then had to look at getting a second mastectomy years later. Did you go the construction route or perhaps decide to get a prosthesis, or even remove the reconstructed breast and go flat? I am in my late sixties.ViewsSign in to react to this postComment
One night stay thoughts
Hi all, I am going in for a mastectomy, reconstruction and symmetry reduction and lift and was advised if all goes well I will only be staying over one night in hospital, Im wondering how you all felt about this experience and if you coped ok going home that early etc? Feeling a bit nervous about it but understand its out of my hands.ViewsSign in to react to this postComments
129Views
5Comments