CEO Update - December 2025
Hi everyone, 🎄Can you believe there are only a few more days until Christmas?! Make sure you've seen my personal message to the Online Network as we prepare for the festive season. Watch my message here As we enter into the final weeks of the year, I wanted to check in and share some of my reflections from 2025. I am very conscious of the way we are all feeling after the horrendous events of Bondi last weekend. This will impact us all very differently and I do hope that you have reached out for support if you need it. It is hard for many of our team to understand given we were only at Bondi in October connecting with the local community there. 💡 We are finishing this year with a milestone that epitomises how we advocate for people living with metastatic breast cancer. For 27 years, we’ve fought for visibility for this community, and now we know there are 20,950 Australians living with metastatic disease, people who have too often been invisible in the health system. This is significantly more than previously estimated. And behind this figure are real people. It is also clear that we now have more work to do to ensure our services and information are reaching all those living with metastatic breast cancer. Knowing the number is a key milestone, now we need to make it count. Read more about our pledge below. ❤️ We also know that moments like this can land differently for everyone. BCNA is here to provide support and resources to help you. Remember that our Helpline is here 1800 500 258 between Monday – Friday, 9am – 5pm AEDT, or request a time for us to call you. We’ll keep pushing for better care, better treatment, and better outcomes, while being a trusted place to turn to for anyone affected by breast cancer. 💪 Access to the best treatment is fundamental to our work and that is why I am also proud that we drove submissions to ensure two new treatments for metastatic breast cancer and high-risk early breast cancer added to the PBS. This means more affordable access to life-changing options. 🫶 2025 also saw the power of community in every corner of Australia through our fundraising events including at the MCG’s Pink Lady Match. There is nothing more powerful that watching people connect – it brings a sense of belonging that is hard to describe but one I know you all feel on this Online Network. One common thing we do continue to hear in the community is that breast cancer is done – we all know that this is simply not true. So our messages to the general public have been about how far we have to go in early detection, treatment and care. We used Breast Cancer Awareness month to shift the community discussion to improving early detection through our Know Your Yourself. Feel Yourself. campaign, including a step-by-step video that encourages women to know their normal so they can identify changes early. I was shocked to hear so many young women tell us that they had never known how to check their breasts or that they had never really looked at their breasts before. We as a community have perhaps underestimated the knowledge of our young women – so if you can please help us to promote the educational video I would love you to. Know Yourself. Feel Yourself. A massive thank you to our hundreds of incredible volunteers and our dedicated Consumer Representatives who have supported us this year at our events, offices, and campaigns. We couldn’t do what we do without you! We know this can be a difficult time of the year for many of you so I am so pleased the Online Network will be here for you and for the many people who may be coming to terms with a breast cancer diagnosis for the first time. The magic of this Online Network is that you truly understand, you offer emotional support during difficult times, and creating spaces where you can share practical advice, find hope, and at times humour when we need it most! So never underestimate how your posts or questions can make a difference. From me and the whole team at BCNA thank you for being a valued member of our community and I hope you have a summer full of joy. 💬 What was your memorable moment this year and what are your fun plans for this summer? I cant wait to get my feet in the sand and salt water in my hair! Regards, Kirsten Pilatti, CEO, BCNAWe’re thinking of our community following the events in Bondi yesterday.
What happened was deeply distressing. We recognise the impact news like this can have—particularly for people living nearby, those with loved ones in the area, and members of the Jewish community. Our thoughts are with everyone affected, in Sydney and across Australia. For anyone who may need additional support, Lifeline (13 11 14) and Beyond Blue (1300 22 4636) are available.BCNA's 🎄Hours & Support Options
We know how important the role we play in your breast cancer journey is, and you know how important you are to us. BCNA will be taking a short break over Christmas, please ensure you are familiar with the following support services available during this time. 📞 BCNA's Helpline’s (1800 500 258) holiday period open times: The Helpline will be closed 5pm, 23 December and re-open on 5 January 2026 at 9am. If you need to talk to someone about a breast cancer diagnosis, you can call Cancer Council on 13 11 20, with reduced hours as follows; Wednesday December 24 – 9am-5pm Thursday December 25 – Closed Friday December 26 – Closed Monday December 29 – 12-4pm Tuesday December 30 – 12-4pm Wednesday December 31 – 12-4pm Thursday January 1 – Closed Friday January 2 – 9am-5pm (normal hours resume) These other services are also available: ✨ Lifeline - 13 11 14 (open 24/7) ✨ Beyond Blue - 1300 224 436 (open 24/7) ✨ If you are Aboriginal or Torres Strait Islander 1300 YARN is also available throughout the holidays. 🧑🤝🧑Most importantly, BCNA's Online Network will remain an available and active community throughout this time however will not be moderated by BCNA staff from December 23rd to January 5th. Please do continue to ask questions, share your stories, and reach out for support here whenever you need it. We also encourage you to offer support on each other’s posts and comments whenever you can - your kindness and connection makes a world of difference, especially during the festive season and for new people that will join the network or receive their breast cancer diagnosis for the first time during these weeks. From the bottom of our hearts here at BCNA, thank you for all you do for each other ❤️📣 20,950 Australians.
After 27 years of BCNA advocacy, we've reached a milestone moment: For the first time, Australia has a national figure for people living with metastatic breast cancer (MBC). That number is 20,950 Australians. These are people with unique, long-term needs who, until now, have been invisible in our health data and largely overlooked in health system planning. On 27 November, we officially announced this landmark data alongside our report; 👉 From invisibility to influence: progress on MBC data reforms in Australia. Together, we can ensure this data translates into meaningful change. People with MBC deserve a health system that sees them, plans for them, and supports them to live longer and live well. This data gives us the foundation to make that happen - but only if we maintain the momentum. What can you do? Sign BCNA's pledge calling for investment in ongoing MBC data collection in all states and territories. 👉 Sign the pledge today 📞 For further support or questions about this announcement, call our Helpline on 1800 500 258 Monday-Friday 9am-5pm AEDT📊 The numbers are out.
Australia continues to lead globally in breast cancer survival rates. The latest 2025 data reveals: ❣️ Five-year survival has risen to 93% (up from 75% in 1987–1991). ❣️ In 2025, around 20,336 people will be diagnosed with breast cancer, including 207 men. ❣️ Breast cancer remains the most common cancer in Australian women, making up 27% of all new cases. ❣️ The average age of diagnosis is 62, with 80% of cases occurring in women over 50. ❣️ Metastatic breast cancer remains undercounted, but estimates suggest up to 16,000 people are living with it in NSW, Victoria, and Queensland. BCNA continues to advocate for national data collection. These statistics highlight both progress and ongoing challenges in breast cancer care and support. Most importantly, they remind us of the big picture behind our WHY - together we work to improve these numbers year on year. 👉 Click here to read more and download the infographic.🏃 Carman’s Fun Run will be back in Melbourne - Early bird reg closes tomorrow!!!🏃
Carman’s Fun Run will be back in Melbourne on 15 February 2026 at Elsternwick Park, Brighton! Early bird registration closes 30 October so register now for the 5k Pink Lady walk, or run the 5k, 10k or half marathon. There’s something for everyone, including your furry friends! Get a group together and fundraise for BCNA to make your run mean more. Register at https://solemotive.com/pages/carmans-fun-run-mel-home🎊 We’re delighted to welcome Christina to the BCNA team! 🎊
We’re very pleased to officially announce that Christina_BCNA has joined the BCNA Online Network team as our newest moderator! Don't panic! Christina is here to be a wonderful addition to our team - the current BCNA mods you know and love are all still here. While the rest of our team continues to support you over the helpline phones, Christina is here as a dedicated presence in the Online Network, helping to nurture connection, conversation, and care within our digital community. Christina is passionate about creating safe, inclusive spaces where people feel supported, heard, and connected. As a moderator, she’ll be helping to guide discussions, offer encouragement, and ensure our network remains a welcoming, respectful and active environment for everyone at all times. You may have noticed a few changes to the Online Network group pages recently, like updated page content, new groups like DCIS and the public Breast cancer awareness group, as well as new forums like Policy & advocacy and new initiatives like our Wednesday Wellness check ins. These are just some changes Christina has been busy making behind-the-scenes as part of her mission to ensure BCNA's Online Network remains an updated, active and impactful space. This is all part of our ongoing campaign to show how much we truly care and invest in our members in the Online Network—because we know how important it is to you. Stay tuned for more exciting updates, deeper connections, and positive energy as we continue to nurture and grow BCNA's Online Network. We’re thrilled to have Christina_BCNA on board and can’t wait for you to get to know her! 💗 Please do reach out and say hello - we know she'd love to hear from you.🌸 What a Day! Carman’s Fun Run Sydney 🌸
It was incredible to see Metcalfe Park into a sea of pink for Carman’s Fun Run. There were 3000 runners and walkers that laced up, participated and stayed to enjoy the event village under the sunny skies of Sydney. A heartfelt thank you to everyone who: 🏃♀️ Ran or walked alongside us 🎉 Cheered from the sidelines 🤝 Partnered with us to make it all happen 💌 Supported from afar We hope you’re enjoying a well-earned break this week — and don’t forget to polish those medals! 🏅First Carman's Fun Run in Sydney!
Carman’s Fun Run is only one month away. We’re excited to bring Carman’s Fun Run to Sydney for the very first time in 2025! Following its overwhelming success in Melbourne, Carman’s Fun Run is launching its inaugural Sydney event on Sunday 21 September 2025. In collaboration with Sole Motive and Carman’s Kitchen, we invite you to join us for an unforgettable, pink-filled day at Metcalfe Park, Pyrmont. Join our inclusive and supportive community who will help inspire you, your family and friends along your journey to walk, jog or run 5km, 10km or 21.1km and make it count by raising funds to help Australians affected by breast cancer. Secure your spot now and help us turn the Harbour City PINK! Find our more and register todayFriday Update - 1st August 2025
Hello and welcome to our Friday Update! Whether you’re new to the BCNA Online Network or a long-time member, we’re so glad you’re here. This safe space built on connection, understanding, and shared experience. Last month, we’ve seen powerful conversations, and practical advice shared across the community. From navigating treatment side effects to finding emotional support, your contributions continue to make this network a safe and empowering place for all. If you’re just joining us, we encourage you to explore the forums Get started here introduce yourself, or simply read along. And if you’ve been with us for a while, thank you for continuing to support others. 💬 Trending Online Network Discussions – July 2025 Bone and join pain side effects of chemotherapy Offering practical advice and emotional support for those newly starting chemotherapy treatment. From bad to worse, but getting better. Metastatic breast cancer (MBC) after previously having early-stage cancer. Kindly sharing story with the community, sparking conversation and shared experiences. Implant or Autologous Flap? Exploring reconstruction options post-mastectomy, with members sharing their experiences with implants versus DIEP flap procedures. WHO do I tell? Emotional challenges of disclosing diagnosis to loved ones. Members sharing advice on navigating conversations with family and friends. Letting go of blame - WHY did I get cancer? Inspired by a BCNA podcast, this discussion sparks meaningful dialogue about emotional healing and self-compassion. 🌟 BCNA Highlights – July 2025 Expanding the ‘Seat At The Table’ Program BCNA continued to grow its internationally recognised Consumer Representative Program Seat at the Table program , empowering people with lived experience to influence cancer research, policy, and care. This initiative ensures that real voices shape decisions that affect breast cancer patients nationwide. BCNA Consumer Representative Kym shares what she thinks Do you think it’s important that those with lived experience are involved in research? Global Advocacy for Metastatic Breast Cancer BCNA joined forces with Breast Cancer Now (UK) and Rethink Breast Cancer (Canada) at the Australian High Commission in London to launch a joint advocacy pledge. The united call to action urges governments and health systems worldwide to count and recognise people living with metastatic breast cancer; a critical step toward improving care, visibility, and support. Watch Together for visibility, equity, and support! Exciting News! BCNA is proud to welcome Red Energy as our inaugural Principal Partner. This partnership marks a significant milestone in our mission to support all Australians affected by breast cancer. Together, we’re powering hope, connection, and change. Stay tuned for more on how this collaboration will make a meaningful impact. Male Breast Cancer Awareness In November 2024, Martin noticed signs that something was wrong with his health. Read his story via the link Humbled by the love and support 📅 BCNA Events BCNA Pink Lady Match – Sunday 10 August 2025 Join BCNA and major partner Red Energy at the Melbourne Cricket Ground (MCG) as the Melbourne Demons take on the Western Bulldogs in support of Australians affected by breast cancer. Watch video Pink Lady Match is back, and tickets are on sale now Event Schedule 1:30 PM – BCNA Tribute Field opens in Yarra Park 1:30 PM – BCNA merchandise available outside Gate 1 and between Gates 5–6 2:00 PM – MCG gates open; attendees take seats for entertainment and pre-match ceremony 3:00 PM – Players enter the field 3:20 PM – Match begins Carman’s Fun Run Sydney– Sunday 21 September 2025 🏃♀️ Location: Metcalfe Park, Pyrmont, Sydney Time: 6:00 AM – 1:00 PM AEDT Event Options Half Marathon (21.1K) – Wave A: 7:15 AM | Wave B: 7:20 AM 10K & 5K Runs – Waves start from 9:00 AM Pink Lady 5K Walk – Starts at 10:15 AM Read more and register via the link Carman’s Fun Run 2025 - Sydney That’s a Wrap! Thank you for joining us for another month of connection, support, and shared strength in the BCNA Online Network. If you have any questions, concerns, or feedback, please don’t hesitate to reach out to our moderators via BCNA_Mod or email helpline@bcna.org.au . We’re here to help and always happy to hear from you. Until next time, take care and stay connected! BCNA_Mod Team
