📣 “My legacy is making it better for people behind me” - together we count metastatic breast cancer
“My legacy is making it better for people behind me” - Lisa Tobin, Consumer Representative for BCNA and living with metastatic breast cancer. Lisa is one of the 20,950 living with metastatic breast cancer (MBC) in Australia - more than double previous estimates. Now, it's time to make the numbers count. 👉Sign BCNA's pledge urging state and territory governments to invest in their cancer data registries. 🧑🤝🧑Check out Channel 9's coverage of this important announcement - It's more than just a number. Being counted means being seen, and being seen is the first step to being properly cared for.🧑🤝🧑Today, BCNA took to Parliament House: Advocating for Change
Today, BCNA’s Director of Policy & Advocacy, Vicki Durston, stood at Parliament House to champion the voices of those living with metastatic breast cancer. Her mission has been clear: every person must be counted in all states and territories. Accurate data is essential to ensure equitable access to care, resources, and support for those who need it most. This is a powerful step toward recognition and better outcomes for the metastatic breast cancer community. 👉 Click here to watch Vicki's personal messagefor those living with metastatic breast cancer in our Online Network community 💬 What does being counted mean to you? Share your thoughts below.‼️Tomorrow is the day.
No one knows how many people are living with metastatic breast cancer, not just in Australia, but around the world - something that BCNA has been advocating to change for over 27 years. Together, we acknowledge the missing link and everyone who has waited to be counted. Tomorrow, we make it count. For too long, a community has been living in the shadows, their experiences missing from our national data. BCNA has been fighting to change that. Change begins tomorrow.‼️Tomorrow is the day.
No one knows how many people are living with metastatic breast cancer, not just in Australia, but around the world - something that BCNA has been advocating to change for over 27 years. Together, we acknowledge the missing link and everyone who has waited to be counted. Tomorrow, we make it count. For too long, a community has been living in the shadows, their experiences missing from our national data. BCNA has been fighting to change that. Change begins tomorrow.November 27th is almost here..... 🥳🥳
Metastatic breast cancer (MBC) is treatable but incurable. No one knows how many people are living with MBC not just in Australia, but around the world, something that BCNA has been advocating to change. "Our advocacy over the last three years has focused on counting those living with metastatic breast cancer (MBC) and our attention and determination has led to this defining moment. Through strong collaboration with governments, researchers, data experts, and consumer advocates, we have achieved what once seemed impossible - visibility for people living with MBC in our national data systems. This outcome is the result of the collective strength of a sector determined to transform invisibility into insight, and insight into influence. " - Vicki Durston, Director of Policy & Advocacy BCNA 📝The successful reporting of national metastatic breast cancer data marks a significant step forward in Australia’s commitment to improving cancer outcomes. It demonstrates how far we have come in recognising and responding to the needs of people living with metastatic disease. Stay tuned to find out the numbers on November 27th....let's make metastatic breast cancer count. 👉Learn more about MBC with our Upfront about breast cancer podcast episodeNovember 27 🚨 Big News Coming! 🚨Counting Metastatic Breast Cancer
In 2022, BCNA began the Making Metastatic Breast Cancer Count initiative - a vital step toward ensuring every person living with metastatic breast cancer is counted and supported. After years of advocacy, collaboration, and research, we’re thrilled to announce that on November 27, we will finally share the outcome of this groundbreaking work. This is more than just numbers - this is a long awaited step in the right direction towards visibility, equity, and driving change for thousands of Australians living with metastatic breast cancer. 📖 Learn more about the journey: 🔗 Time to Count: A Way Forward 🔗 Our Pledge 🎉 Get ready for the big announcement on November 27! Together, we’re making metastatic breast cancer count. 💖November 27 🚨 Big News Coming! 🚨Counting Metastatic Breast Cancer
In 2022, BCNA began the Making Metastatic Breast Cancer Count initiative - a vital step toward ensuring every person living with metastatic breast cancer is counted and supported. After years of advocacy, collaboration, and research, we’re thrilled to announce that on November 27, we will finally share the outcome of this groundbreaking work. This is more than just numbers - this is a long awaited step in the right direction towards visibility, equity, and driving change for thousands of Australians living with metastatic breast cancer. 📖 Learn more about the journey: 🔗 Time to Count: A Way Forward 🔗 Our Pledge 🎉 Get ready for the big announcement on November 27! Together, we’re making metastatic breast cancer count. 💖📣 Calling all men living with metastatic breast cancer to share their story ❤️
On November 27th, BCNA will be making a significant announcement for Australians living with metastatic breast cancer. To support this, we are looking to connect with and share real stories of those living with metastatic disease - including and importantly, men. Your voice matters, and your story can help raise awareness and understanding. 📷 We're also looking for men living in Victoria, for an additional photo opportunity next Wednesday, November 19th in Port Melbourne. For men especially, living with breast cancer can feel very isolating, I would love to see more connection and support from the men in this space living with breast cancer. Though the prevelance numbers are smaller - your story, voice and experience matters. Your involvement can make a real difference to others, and men living with breast cancer 💙 let's advocate for the men who need more support out there. 👉 If you’d like to share your story or learn more about the photo opportunity, please comment below or message me privately.
Exciting research showing possible 'on/off' switch for Mets
Exciting research being done on an 'on/off' switch for BC Mets - let's hope this one makes it thru the trial stages. Given this study has produced results from a mouse model, the timeline for introduction at the clinical level for *successfully* approved drugs and testing is closer to 12-15 years. It should be noted that fewer than 5-10% of drugs/tests actually make it successfully through this lengthy research process, which includes 3 phases of clinical trials. https://news.stanford.edu/2023/12/20/breast-cancer-metastasis-off-switch-revealed/
hormone blockers and plantar fasciitis
Hi Everyone, I was diagnosed with metastatic breast cancer in Oct 2020 and have been on Letrozole ever since. About 6 months ago I developed plantar fasciitis and my holistic Dr told me that it was unlikely to get better due to the hormone blockers. Has anyone in my position healed from a soft tissue injury like plantar fasciitis and if so what did you do?
