Forum Discussion
Are you a member of the private Living With Metastatic Cancer group?
My name is Rachelle and I am based in Melbourne. I have MBC and joined the newly formed MBC Advisory Group to help BCNA, at this stage, with the revision of the Hope & Hurdles hardcopy guide and to inform BCNA of emerging issues affecting people with metastatic breast cancer.
I have also put my hand up to be a group leader of the private ‘living with metastatic breast cancer’ group to encourage people to share their experiences and support one another. I will also keep you informed of the advisory group activities and welcome your thoughts on the good things and gaps in care that you may experience in your local areas to share at committee meetings.I see that people are more active in this forum but I was hoping, along with BCNA, that we can transfer the activity to the private group, where people may feel more comfortable to be open with their posts/comments yet feel reassured that all posts remain private.
If you are not yet a member, please consider joining. If you are a member, perhaps you would like to post your story under the Stories announcement.
34 Replies
- Hi @Ro123
You can follow this link to view the group https://onlinenetwork.bcna.org.au/group/2-living-with-metastatic-breast-cancer.
If you're on your computer, you can access groups along the top banner under the heading 'groups' or if you're on your phone you can click on the three lines in the top left hand corner and groups will appear under there as well.
Hope this helps. If you have any trouble, please let me know. - Hi there, I can’t see how to get onto the Mets group? Xx
- Hi @Ro123 I have sent you a private message and joined you to the group.
- Hi @Ro123 - sorry to see you here, joining the club you never thought you'd join xx I hope you are recovering well from your surgery.
Here's a link to a thread that has lots of info on the Forum - with lots of 'off topic' threads, like pets, gardening, art & craft, cooking & other stuff xx
https://onlinenetwork.bcna.org.au/discussion/23477/a-big-welcome-to-all-our-new-members#latest
I'll tag the mods & they will be able to add you to the Mets Group (and any other groups you may like to join): @BCNA ... can @Ro123 be added to the private Mets Group please?
Take care xx - Hello,
I have recently been diagnosed with secondary breast cancer. I have just had a rod placed in my femur bone and about to start a trial.Could I please join this group. X - Hi I recently diagnosed with metastatic breast cancer, I will like to join living with metastatic breast cancer group please. Thanks
- Hi @Richo2
I've just accepted your request to join the private Metastatic group. I've also sent a private message with some information.
Kind regards
Jenny - Welcome to the club that no-one wants to join, @Richo2 - here, you can ask any questions & those who've 'been there, done that' will do their best to answer them xx You can ask more private & personal questions & get support in the private Mets Group - I shall tag @Riki_BCNA & @Jenny_BCNA - to join you up xx
You may also like to check out this site for Mets Support too
https://counterpart.org.au/support-services/metastatic-cancer/
If you are up to it, feel free to put up your 'story' here, so those who've had similar treatments/diagnosis can jump on & help.
https://onlinenetwork.bcna.org.au/categories/newly-diagnosed
Check out this post for general 'forum stuff' ... and also put your 'city/town' on your profile, as locals may know of specific info that may be of assistance to you xx
https://onlinenetwork.bcna.org.au/discussion/comment/201679
Take care, all the best xx - Hi could I please join the MBc group?
- Hi @Maggs54 I've just sent you a request to join the Living with metastatic breast cancer private group.
