📢 Capivasertib (Truqap) to be listed on the PBS!
The Australian Government has announced that as of 1 October capivasertib (Truqap) will be listed on the Pharmacetucial Benefits Scheme (PBS), providing another vital option for Australians with HR+/HER2- metastatic breast cancer. This means more equitable access to a treatment that previously cost over $98,000. This decision addresses an urgent need for effective treatments and provides another vital option for patients when their cancer has developed resistance to existing therapies. BCNA remains committed to fighting for equitable access to innovative treatments and supporting those living with metastatic breast cancer through every step of their journey. Read more about the announcement at https://www.bcna.org.au/latest-news/bcna-news/government-announce-access-to-capivasertib-truqap-another-option-for-those-living-with-metastatic-breast-cancer/
Are you using Kisqali?
Hi, I have an opportunity to talk to the manufacturers of the medication Kisqali. If you are using it, I’m wondering if there is anything about this drug that you would like me to pass on them? For example - was the information you received from your oncologist and in writing informative and easy to understand? Have you had any concerns you might have about taking this medication answered? Would it help to have a phone number or an email address in order to talk to a representative from the drug company? What about the side effects? I’d like the tablets to be smaller - a small thing but perhaps useful for others as well? What do you think? Is there anything else I can pass on to them? I’m very happy to hear all your suggestions, ideas and thoughts. Here is a wonderful opportunity for us, as users, to be proactive in getting the company to understand how this drug is effecting us and how they can further support us. I’m looking forward to your comments and suggestions so that I can have a bigger impact on the way the company works with its consumers. Debbie Packham
Horrid Bone and Joint Pain after Pegfilgrastim (Neulasta) injection????
Just wondering if anyone has had the horrible side effects of severe joint/bone pain from the waist down after their shot of the white blood cell booster Pegfilgrastim? My oncologist said it could be handled with panadol, well a trip to the ER because it was unbearable has left me having 5mg endone every four hours, but this ain’t working. I feel horrible already from the normal chemo side effects (TC, first dose) and to have this on top, plus adding more drugs to my body is starting to really stress me out. I cannot seem to find any info on Australian reputable sites about side effects and treatments of for the Pegfilgrastim. So I’m willing to hear any advise to get me through this crappy time !!
