BCNA's State of the Nation Report launched today
HI all, Here is the link to BCNA's State of the nation report which will be presented to government at Parliament House tonight. This report highlights the experiences of over 15000 women and men around Australia who were consulted over an 18 month period. We have been doing some media this morning as there is quite a bit of interest in the report. Here's a link to our CEO, Kirsten Pilatti on the Today Show this morning. Thanks to all of you who contributed to the report. We'll keep you updated with how it goes.1.3KViews0likes62Comments
Sharing your breast cancer experience with the media
Are you interested in sharing your breast cancer story? BCNA exists to support and advocate for our members. The media (print, radio, TV and online) is one way we keep the wider Australian community aware of what BCNA does and what more needs to be done to improve breast cancer treatment in our health system. Our members have so many wonderful and important stories, and we want to help you to share them with a wider audience. We're creating a list of BCNA members who are keen to share their stories with the media, so we can draw on them if and when required. Here are some examples of stories our media team has worked on with our members and the news media: Long wait times for breast reconstruction surgery in Cairns, QLD: http://www.abc.net.au/news/2017-10-27/breast-cancer-survivors-agonising-wait-reconstruction-north-qld/9089424 The impact of sexual side effects of breast cancer treatment (featuring @SoldierCrab): https://www.sbs.com.au/topics/life/health/article/2018/02/26/breaking-taboos-talking-about-sexual-side-effects-breast-cancer-treatment Men's breast cancer awareness day: http://www.illawarramercury.com.au/story/5000764/wollongong-man-raises-awareness-after-mastectomy/ If you are willing to be interviewed please direct message either @Marianne_BCNA or myself @Sophie_BCNA with your name, state and topic you’d like to speak about. It can be any topic related to your breast cancer journey - good or bad, happy or sad. We fully respect that many people do not want to publicly share their story which is why we will only contact people who register their interest to be involved. You will be contacted by a BCNA staff member to check whether you are still interested before your details are passed on to a journalist.891Views0likes53Comments
Exploiting breast cancer
Is anyone else as furious as me about the revolting, demeaning ad campaign by Honey Birdette exploiting Breast Cancer Awareness month? I'd like to know if our leaders are going to write a position statement on this. https://www.collectiveshout.org/honey_birdette_sexing_up_breast_cancer811Views1like21CommentsAnyone interested in doing a podcast with us?
Hi everyone, We are looking for a woman to be part of a podcast we are doing with Breast Screen Victoria next week. If anyone is interested and meets the following criteria, please direct message me. · Diagnosed through routine mammogram (or sent to a breast screen facility after having a symptom) · Victorian based · Able to be part of a podcast recording on Thursday 14 June at 10.30am (must be able to attend in person at Melbourne University) Thanks!631Views0likes58Comments
LOOKING FOR BREAST FRIENDS TO SHARE THEIR STORY
BCNA’s national Pink Bun Campaign kicks on off on 2 May. We often are asked by media outlets to interview breast cancer survivors during this time. Throughout the month of May BCNA wants to celebrate our members and the people who have supported you – your Breasties. A media opportunity might also involve visiting a Bakers Delight store. If you are interested or would like more information please email kcurtain@bcna.org.au Include your: Name, State in which you live- including your nearest Bakers Delight and availability. Please also provide a few lines about yourself and diagnosis and advise if you have breast friends that would also be interested.291Views0likes0CommentsMedia for launch of our State of the Nation Report - we want you!
BCNA is launching our State of the Nation report on 20 June which many of you would have contributed to. The report is the result of more than 10,000 surveys completed by BCNA members and 3,500 face-to-face consultations around the country and highlights the gaps in breast cancer treatment and care across the country. We are looking for women who are willing to talk to media about their experiences and are ok with being recorded or filmed regarding the topics below (as you can see we have some pretty specific requirements!): Fertility Women who were not given all the information they needed about fertility before their treatment began Centrally located (i.e. living in a city) - Ideally Melbourne or Sydney Lymphoedema Women who have struggled to get lymphoedema treatment in the public system Women who have had to pay a lot of money to get lymphoedema treatment in the private system Women who have had a lack of information about lymphoedema Willing and able to have their affected arm/area photographed Centrally located - Any state or territory Financial disclosure Someone with large (greater than $10k) costs who did not know about them beforehand – ‘bill shock’ Someone who almost had a large cost BUT was advised by their Dr/health fund/BCNA etc and were able to avoid these costs Someone with a large cost (documented) that built up over time and was not disclosed to them Centrally located - Ideally WA or SA Mammography in Tasmania Someone who had a breast symptom and could not get a mammogram in the public system, so had to pay for it Centrally located Reconstruction Someone who is waiting for a reconstruction in the public system Has been waiting between 3-5 years Ideally willing to be photographed in a way that shows she has not had a reconstruction (not nesc. topless) Centrally located Ideally QLD251Views0likes6Comments
Why Im proud to be a Pink Lady by Mandy Forteath
Hello everyone, This is a great article written by Mandy Forteath who I had the pleasure of meeting a few weeks ago at BCNA titled 'Why Im proud to be a Pink Lady.' https://www.dailytelegraph.com.au/rendezview/why-im-proud-to-be-a-pink-lady/news-story/31abd9d5b1f98949e8476f9c4602e052241Views4likes7CommentsTattoos to cover breast surgery scars
Hello everyone, We have had a request from our Communications team to see if anyone in our online network is interested in being interviewed for a possible newspaper story. They would like to speak with a woman who has had a tattoo/s on her breast cancer scars. If you have done so and are interested, please let me know and I will forward your details to our Communications Manager. Thanking you221Views0likes2CommentsBreastScreen Victoria Podcast
HI all, Here is the much awaited BreastScreen Victoria podcast featuring our CEO Kirsten Pilatti and the online network's very own @kmakm who did a fabulous job. The podcast explores what it’s like to be diagnosed, supports available and why events like the Field of Women are so important.211Views0likes12CommentsCall out for anyone living in Queensland who has experienced out of pocket costs for breast MRIs
Hi everyone, I have another call out for someone interested in talking to the media! There is so much interest at the moment in breast cancer related stories so we want to make the most of this. This time a senior journalist with a major paper is wanting to run a story on the lack of rebates for breast MRI and wants to interview a Qld woman. If you live in Qld and were left out of pocket for your MRIs and are interested in speaking to the media about your experience please direct message me Thanks!191Views1like8Comments
Exploiting breast cancer
Is anyone else as furious as me about the revolting, demeaning ad campaign by Honey Birdette exploiting Breast Cancer Awareness month? I'd like to know if our leaders are going to write a position statement on this. https://www.collectiveshout.org/honey_birdette_sexing_up_breast_cancerTattoos to cover breast surgery scars
Hello everyone, We have had a request from our Communications team to see if anyone in our online network is interested in being interviewed for a possible newspaper story. They would like to speak with a woman who has had a tattoo/s on her breast cancer scars. If you have done so and are interested, please let me know and I will forward your details to our Communications Manager. Thanking you