Targeted clinical trial for patients with lymphoedema related to breast cancer surgery
Hi members, The below clinical trial conducted by LeapCure may be of interest to some of you. If you have breast cancer surgery related lymphoedema following a dissection or biopsy procedure, you could be eligible to join a clinical trial that is enrolling nearby. Initial eligibility includes lymphoedema patients who have had surgery for their breast cancer at least 6 months ago and diagnosed with lymphoedema within the past 4 years. The following pre-screener will help you determine your suitability, match you to a nearby trial site, and enter you on to a list for the LeapCure team to give you a call back. To help you determine if you are eligible for the study, LeapCure, who are administering the recruitment of this study in Australia, have developed a survey found at the link below. By taking this survey, you are providing your consent (agreement) for LeapCure to collect and store your survey answers on an overseas server (large computer) that is compliant with the Health Insurance Portability and Accountability Act (USA). Here is the pre-screening link: https://research.leapcure.com/studies/bclymph?locale=en-AU&utm_source=BCNA&utm_medium=mixed&utm_campaign=060921Pv22&utm_cat=PAGNWAU&utm_study=bclymph
First Mammogram with Lymphoedema in breast
Hi All Just wondering if anyone in this group has LD in their breast and how they went with mammograms? My first one after initial surgery, radiation etc is scheduled for early October and I had hoped by now the swelling, tenderness etc would have settled but it is starting to look like I will have it permanently despite massages, compression, taping etc. I don't want to wuss out as prior to BC a mammogram didn't worry me, but some days it is really sore and tender. Thanks, Kari
Breast Lymphodeama, Who has heard of it?
Hey girls, Just wondering who has heard of breast lymphodeama and/or experienced it? Not sure if you remember but I put up a post a while back about my concerns of recurring BC in my affected breast. Well this has been going on since Christmas. I have seen my GP twice who also had a trainee student with her the second visit, my top dog chemo Oncologist twice (not his side kicks which was very unusual), various Breast Nurses, a Breast Surgeon at one of the major hospitals in Perth, I have had 3 ultrasounds and one mammogram since last October, various blood tests and a chest X-ray BUT still it has not been confirmed 100% I have breast lymphodeama. One of the breast nurses I spoke to over the phone suggested it might be breast lymphodeama from how I explained it to her and from her experience. I had never heard of it before that day and I did a huge amount of reading during my BC journey. I didn't get to see that particular breast nurse when I went to see the Surgeon but the other nurses said that she would be correct because she was so experienced. I am now at the point where I have been referred to a Physiotherapist who specialises in lymphodeama. I had read up on Inflammatory BC and felt I had all the suggested markings for it to be that. My head kept saying impossible, impossible because you have not long finished all your treatment but every medical person I saw didn't seem 100% convinced aleit all the tests etc....... My first indication that there was something wrong was the changes in my breast which started under the skin of the breast but on the opposite side to the surgery. Then I started to notice red marks forming in that area that didn't go away and were growing (still there now) and then there was the orange peel effect (has a special French name I think) noticeable and then the cording started to feel more like leather/sinuey under the skin. Anyway just thought I would put it out there and remind you all to see someone in the medical field should you notice any changes in your breast just to be on the safe side. I am running with the diagnosis of Breast Lymphodeama at present but there is always that horrible horrible nagging feeling called doublt sitting in the back of our minds. Hope you are all doing exceptionally well and coping with your treatment as best you can and those post treatment are getting on and getting back to normality like this lil pink sister is striving to do. Lots of love always, Mich xoxo
Daunting....
Thought I'd check some other's websites. There is so much information from personal experiences here! Fantastic way to get ideas and help. But it is also daunting..... There seem to be so many new things that can cause me grief with bits of my body. Having been someone who has hardly ever taken a sick day I am finding this extremely difficult to adjust to. Maybe some denial that this is really happening to me. But I think it is also the me that says no matter what happens I'll deal with it. Lymphoedema - any cut, abrasion to my left arm could cause this (any time from here on in) and even to my flat breast. Cording - hmmm - thinking I might have that under my left arm. Makes it difficult to stretch the arm. So... do I see a physio to be proactive with learning to deal with drainage and my own massaging and am I doing enough in stretching my arm or do I need help...?? What happened to going for a jog, doing a bit of gardnening, carrying my grandkids or shifting furniture without a second thought!!??
Neoadjuvant Chemotherapy
Hi, I am new to all this - having just being diagnosed with Stage 3 multi-focal locally advanced Triple-negative breast cancer. I have ten lumps in the right breast with the largest being 5cm and positive testing to the lymph nodes. I am 46 and have just commenced neoadjuvant chemotherapy with weekly paclitaxel. I was wondering if anyone else out there had taken the neoadjuvant chemo as part of their treatment plan. The onconcologist is concerned about the possibility of the cancer spreading so wants to treat that first.
